Palliative care and end of life: The caregiver

The Physical Health of Patients With Advanced Pancreatic Cancer and the Psychological Health of Their Family Caregivers When Newly Enrolled in Hospice

“…39 Not only was fatigue the most commonly occurring symptom in this group of patients, it also was reported to cause the greatest symptom distress (mean = 3.0). It is an unexpected finding that in a sample where 72% have pain, that fatigue was more distressing than the pain which ranked second.…”

Communication Behaviors and Patient and Caregiver Emotional Concerns: A Description of Home Hospice Communication

“…In hospice care, the needs of the family and patient are equally important. Studies have noted the necessity of specific inclusion of caregivers to facilitate better understanding of the caregivers' needs from a variety of perspectives during end-of-life care (Evans & Ume, 2012;McGuire, Grant, & Park, 2012). More than 80% of hospice patients are older than age 65, and more than 33% are older than age 85 years (National Hospice and Palliative Care Organization, 2012).…”

The burden of caring for people with dementia at the end of life in nursing homes: a postdeath study among nursing staff

“…Several studies have investigated the wellbeing, and need for support, of family carers of persons with dementia (Donaldson et al, 1998;Schneider et al, 1999;Peeters et al, 2010;McGuire et al, 2012;Peacock et al, 2014;Springate & Tremont, 2014;Zwaanswijk et al, 2013) and have developed interventions to assist them (Parker et al, 2008). However, less is known about the burden and wellbeing of nursing staff caring for people with dementia.…”