Palliative Care Research – A Systematic Review of foci, designs and methods of research conducted in Sweden between 2007 and 2012

Abstract

The trend is that Swedish palliative care research has expanded in volume from 2007 to 2012 compared to during the 1970s to 2006, with increasing participation of non-cancer-specific populations. A domination of qualitative approaches and small, cross-sectional studies with few interventions is still characteristic. Still more strategies are needed to expand the knowledge development of palliative care to respond to demographical, epidemiological, therapeutic and healthcare structure changes.

Palliative care and nursing in dissertations and theses in Portugal: a bibliometric study

“…Studies conducted in the scope of community, in populations suffering from non-oncological diseases and pediatric populations were scarce. In these areas of palliative care there are clear gaps in knowledge production, which could be explored in future research and are consistent with results of similar international studies (6,28) . The most investigated target populations were students/health professionals (38.51%), followed by patients (25.86%).…”

“…Following the international trend, the provision of palliative care in Portugal is developed in parallel with research, resulting in the widespread interest in palliative care, especially after the change of the millennium (6) . Internationally, palliative care research has contributed to its dissemination and implementation, with a key role in the fulfillment of its principles, philosophy and goals (7)(8) .…”

Nursing research priorities based on CINAHL database: A scoping review

“…Regarding the first phenomenon, long‐term care (Brazil, Maitland, Ploeg, & Denton, ; Deschodt, Zunica, & Wellens, ; Keller, Beck, & Namasivayam, ; McGilton et al, ; Walsh & Yon, ), nursing home settings (Morley et al, ; Simmons et al, ; Walsh & Yon, ), palliative care (Combs, Kluger, & Kutner, ; Hanson & Winzelberg, ; Henoch et al, ; Lunney, ; O'Quinn & Giambra, ; Ritchie & Zulman, ; Schulz, ) and basic/fundamental care (Walsh & Yon, ) are important phenomena that should be studied more closely. With respect to fundamental care, the practical and emancipatory interests are important to direct nursing research and practice (Granero‐Molina et al, ).…”

“…Regarding the first phenomenon, long-term care (Brazil, Maitland, Ploeg, & Denton, 2012;Deschodt, Zunica, & Wellens, 2017;Keller, Beck, & Namasivayam, 2015;McGilton et al, 2016;Walsh & Yon, 2012), nursing home settings (Morley et al, 2014;Simmons et al, 2016;Walsh & Yon, 2012), palliative care (Combs, Kluger, & Kutner, 2013;Hanson & Winzelberg, 2013;Henoch et al, 2016;Lunney, 2015;O'Quinn & Giambra, 2014;Ritchie & Zulman, 2013;Schulz, 2013) and basic/fundamental care (Walsh & Yon, 2012) Improving the quality of life of individuals with chronic conditions (Grady & Gullatte, 2014), patient-level outcome measures (Davis, Morgans, & Stewart, 2016), patient self-management (Grady, 2017), personalized health strategies, health promotion and patient education are topics that need further research (Foster et al, 2018;Grady & Gough, 2015). Grady and Gullatte (2014;also Grady, 2017) state that increasing numbers of people are currently living with chronic conditions and managing long-term illnesses is shifting from health professionals to individuals and their families; consequently, these nursing phenomena ought to be investigated in greater depth.…”

Palliative care research: State of play and journal direction

“…National studies, such as those in Sweden and Ireland, identify upward trends in publication numbers, and an increase in quantitative research approaches and studies outside cancer, although there remain critiques of the small scale of studies. 3,4 International studies are also increasing in number, although they are predominantly observational rather than interventional. 5 Trials in palliative care remain small, with low quality of reporting.…”