Parameters of Care for Craniosynostosis

McCarthy, Joseph G.; Warren, Stephen M.; Bernstein, Joseph; Burnett, Whitney; Cunningham, Michael L.; Edmond, Jane C.; Figueroa, Álvaro A.; Kapp-Simon, Kathleen A.; Labow, Brian I.; Peterson‐Falzone, Sally J.; Proctor, Mark R.; Rubin, Marcie S.; Sze, Raymond W.; Yemen, Terrance A.

doi:10.1597/11-138

Cited by 118 publications

(105 citation statements)

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“…44 Our findings suggest that for patients with single-suture fusions, primary attention should be given to those with unicoronal and lambdoid synostosis, with more selective screening of children with isolated metopic and sagittal fusions. …”

Section: Discussionmentioning

confidence: 71%

Intellectual and Academic Functioning of School-Age Children With Single-Suture Craniosynostosis

et al. 2015

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We compared the developmental status of school-age children with single-suture craniosynostosis (case group) and unaffected children (control group). Within the case group we compared the performance of children distinguished by location of suture fusion (sagittal, metopic, unicoronal, lambdoid). METHODS:We administered standardized tests of intelligence, reading, spelling, and math to 182 case participants and 183 control participants. This sample represented 70% of those tested during infancy before case participants had corrective surgery. RESULTS:After adjustment for demographics, case participants' average scores were lower than those of control participants on all measures. The largest observed differences were in Full-Scale IQ and math computation, where case participants' adjusted mean scores were 2.5 to 4 points lower than those of control participants (Ps ranged from .002 to .09). Adjusted mean case-control differences on other measures of achievement were modest, although case deficits became more pronounced after adjustment for participation in developmental interventions. Among case participants, 58% had no discernible learning problem (score ,25th percentile on a standardized achievement test). Children with metopic, unicoronal, and lambdoid synostosis tended to score lower on most measures than did children with sagittal fusions (Ps ranged from ,.001 to .82). CONCLUSIONS:The developmental delays observed among infants with single-suture craniosynostosis are partially evident at school age, as manifested by lower average scores than those of control participants on measures of IQ and math. However, case participants' average scores were only slightly lower than those of control participants on reading and spelling measures, and the frequency of specific learning problems was comparable. Among case participants, those with unicoronal and lambdoid fusions appear to be the most neurodevelopmentally vulnerable.

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Section: Discussionmentioning

confidence: 71%

Intellectual and Academic Functioning of School-Age Children With Single-Suture Craniosynostosis

et al. 2015

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“…The frontal view allows an assessment of eye symmetry and position and twisting of the nasal tip. 2,10 In severe cases of craniosynostosis, exorbitism (ie, protrusion of the eyeballs) can result. 10,11 The level (symmetry) of the skull base and any vertical displacement of the ears are assessed from the posterior view.…”

Section: Diagnosismentioning

confidence: 99%

“…2,6 The premature ossification of cranial sutures results in several morphological abnormalities, such as a dysmorphic cranial vault and facial asymmetry. 1 The sagittal suture is the most commonly affected suture (60% of children); next, in order, are the coronal (25%) and metopic (15%) sutures.…”

mentioning

confidence: 99%

Craniosynostosis: Caring for Infants and Their Families

Burokas

2013

Critical Care Nurse

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Craniosynostosis is a developmental anomaly with premature closure of the cranial sutures causing an abnormally shaped skull in an infant. Recommended surgical treatment involves cranial vault reconstruction to open the closed suture, increase intracranial volume, and allow the brain to grow normally. Parents work with a multidisciplinary team during the evaluation process and face various preoperative and postoperative stressors. Critical care nurses can improve the care of the infants and their families by being knowledgeable about the anatomy, assessment, and surgical and nursing management of infants with this anomaly and its impact on the patients’ families. This article discusses the definitions, diagnosis, and treatment of craniosynostosis and support for parents of infants with this malformation.

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“…12,23 This condition occurs in isolation in the large majority of cases, but may also occur in association with more than 130 different syndromes. Management is surgical, with procedure recommendations dependent on patient age, surgeon practice, and other clinical factors.…”

mentioning

confidence: 99%

Complications after craniosynostosis surgery: comparison of the 2012 Kids’ Inpatient Database and Pediatric NSQIP Database

Lin

Pan

Mayer

et al. 2015

FOC

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OBJECT Research conducted using large administrative data sets has increased in recent decades, but reports on the fidelity and reliability of such data have been mixed. The goal of this project was to compare data from a large, administrative claims data set with a quality improvement registry in order to ascertain similarities and differences in content. METHODS Data on children younger than 12 months with nonsyndromic craniosynostosis who underwent surgery in 2012 were queried in both the Kids’ Inpatient Database (KID) and the American College of Surgeons Pediatric National Surgical Quality Improvement Program (Peds NSQIP). Data from published clinical craniosynostosis surgery series are reported for comparison. RESULTS Among patients younger than 12 months of age, a total of 1765 admissions were identified in KID and 391 in Peds NSQIP in 2012. Only nonsyndromic patients were included. The mean length of stay was 3.2 days in KID and 4 days in Peds NSQIP. The rates of cardiac events (0.5% in KID, 0.3% in Peds NSQIP, and 0.4%-2.2% in the literature), stroke/intracranial bleeds (0.4% in KID, 0.5% in Peds NSQIP, and 0.3%-1.2% in the literature), infection (0.2% in KID, 0.8% in Peds NSQIP, and 0%-8% in the literature), wound disruption (0.2% in KID, 0.5% in Peds NSQIP, 0%-4% in the literature), and seizures (0.7% in KID, 0.8% in Peds NSQIP, 0%-0.8% in the literature) were low and similar between the 2 data sets. The reported rates of blood transfusion (36% in KID, 64% in Peds NSQIP, and 1.7%-100% in the literature) varied between the 2 data sets. CONCLUSIONS Both the KID and Peds NSQIP databases provide large samples of surgical patients, with more cases reported in KID. The rates of complications studied were similar between the 2 data sets, with the exception of blood transfusion events where the retrospective chart review process of Peds NSQIP captured almost double the rate reported in KID.

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Parameters of Care for Craniosynostosis

Cited by 118 publications

References 0 publications

Intellectual and Academic Functioning of School-Age Children With Single-Suture Craniosynostosis

Intellectual and Academic Functioning of School-Age Children With Single-Suture Craniosynostosis

Craniosynostosis: Caring for Infants and Their Families

Complications after craniosynostosis surgery: comparison of the 2012 Kids’ Inpatient Database and Pediatric NSQIP Database

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