Parent Attributions About Child Symptoms Related to Cancer Therapy

Battista, Ashley Di; Dupuis, L. Lee; Cassidy, Marilyn; Portwine, Carol; Johnston, Donna L.; Silva, Mariana Pradier; Sung, Lillian; Barrera, Maru

doi:10.1177/1043454215628002

Cited by 11 publications

(25 citation statements)

References 31 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…In this study, the mothers reported that their family routines were greatly affected by their child's condition. This study supports the results of other similar studies (32).…”

Section: Discussionsupporting

confidence: 83%

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

2017

View full text Add to dashboard Cite

Objectives: This study aimed to find nursing diagnoses for non-physical health problems in mothers of children with cancer through a directed (deductive) qualitative content analysis of interviews with them. Methods:In this qualitative study, eight mothers of children with cancer were interviewed, their problem list was matched with defining characteristics of each nursing diagnosis in non-physical domains of NANDA I taxonomy II, so that they were assigned in pre-determined subcategories and categories. Results:Results showed some common health problems in domains of self-perception, role relationship, coping stress tolerance, life principles and perception/cognition. Conclusions:Qualitative approach for assessment of mothers of children with cancer can help to find their health problems in nonphysical domains, which is important to be included in the holistic family centered care plan of these children and their families.

show abstract

“…In this study, the mothers reported that their family routines were greatly affected by their child's condition. This study supports the results of other similar studies (32).…”

Section: Discussionsupporting

confidence: 83%

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

2017

View full text Add to dashboard Cite

show abstract

“…One study found an association between more than 10 hospital days during the last month of life and lower quality of care ratings by physician (Mack et al., ). Against the background of relationship between longer hospitalisations and quality of care, the highly interrupted daily life (Bjork et al., ; Di Battista et al., ), difficulties to maintain social relationships and accompanying isolation (Enskar et al., ; Gibson et al., ; Hokkanen et al., ), and affected familial relations (Hokkanen et al., ; Patterson et al., ) especially apply to leukaemia patients. Spending more time in the hospital not only decreases the odds of benefitting from protective factors, it also magnifies children's major stressors, for example, those associated with treatment procedures, loss of control and the hospital environment (McCaffrey, ).…”

Section: Discussionmentioning

confidence: 99%

“…A cancer diagnosis marks an abrupt break in life. Lived experiences of children with cancer and their families have been described as an interrupted one with limited opportunities to engage in leisure activities and difficulties in sustaining existing friendships (Bjork, Wiebe, & Hallstrom, ; Di Battista et al., ; Griffiths, Schweitzer, & Yates, ). Cancer diagnosis of a child is often described as a loss of normal family life (Badarau et al., ; De Clercq et al., ; Patterson, Holm, & Gurney, ).…”

Section: Introductionmentioning

confidence: 99%

Burden of treatment in the face of childhood cancer: A quantitative study using medical records of deceased children

et al. 2018

View full text Add to dashboard Cite

Lived experiences of childhood cancer patients and their families have been described as interrupted and as a loss of normal life. Apart from symptoms due to the cancer disease, families continuously experience burden of treatment. Since coping capacities are unique to each individual, we captured variables that offer objective measures of treatment burden, with a particular focus on the disruptive effects of treatment on families' lives. Our sample was comprised by 193 children that died of cancer. Medical records were extracted retrospectively. Quantitative data were statistically analysed with respect to variables related to treatment burden. Deceased children with cancer and their families faced a significant burden of treatment. Results revealed that deceased leukaemia patients had a higher number of inpatient stays, spent more time in the hospital both during their illness and during the last month of their life, and were more likely to die in the hospital when compared to deceased patients with CNS neoplasms and with other diagnoses. Our findings highlight the disruptive effects of treatment that are likely to have a great impact on families' daily life, that go beyond exclusively focusing on side effects, and that needs to be taken into account by the treating staff.

show abstract

“…It is a complex, painful experience, marked by frequent medical consultations, chemotherapy, radiation, surgeries, routine exams, withdrawal from school, limitations in performing some activities, loss of opportunities, and changes in appearance and lifestyle. [18][19][20] In this case, it is necessary to provide support and comfort, especially when the child complains of pain and exhibits behavior of fear and fatigue. 21 Pharmacological analgesia with opioids is necessary to provide pain relief and to alleviate the suffering of the child and family.…”

Section: Discussionmentioning

confidence: 99%

Aspectos Contextuais Sobre O Gerenciamento Do Cuidado De Enfermagem À Criança Com Dor Oncológica Crônica

Silva

Ferreira

et al. 2018

Texto contexto - enferm.

View full text Add to dashboard Cite

RESUMO Objetivo: discutir os aspectos contextuais relacionados ao gerenciamento do cuidado de enfermagem à criança hospitalizada com dor oncológica crônica. Método: pesquisa de abordagem qualitativa, desenvolvida com base no referencial metodológico da Teoria Fundamentada em Dados e no referencial teórico do Pensamento Complexo, a partir de Edgar Morin. A coleta de dados ocorreu por meio da entrevista semiestruturada e da observação não participante. Os 21 participantes da pesquisa foram organizados em três grupos amostrais: o primeiro foi composto por sete enfermeiros; o segundo foi constituído por sete técnicos de enfermagem e o terceiro foi formado por sete profissionais da equipe multiprofissional de saúde. Os resultados da pesquisa foram validados por cinco examinadores, dos quais três apresentavam expertise no método de pesquisa. Resultados: a categoria intitulada “Desvelando aspectos contextuais sobre o gerenciamento do cuidado de enfermagem à criança com dor oncológica crônica” revelou por meio de suas subcategorias que a hospitalização dessa criança é longa, marcada por mudanças na dinâmica familiar, perdas e limitações impostas pela doença e/ou tratamento. O gerenciamento do cuidado de enfermagem é complexo, realizado por meio do trabalho em equipe e da demanda um planejamento que valorize as múltiplas necessidades da criança e do familiar. Conclusão: os resultados apontam para a necessidade do profissional de enfermagem contextualizar suas relações de cuidado, a partir da valorização de aspectos que transcendem a dimensão biológica da criança hospitalizada com dor oncológica crônica.

show abstract

Parent Attributions About Child Symptoms Related to Cancer Therapy

Cited by 11 publications

References 31 publications

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

Burden of treatment in the face of childhood cancer: A quantitative study using medical records of deceased children

Aspectos Contextuais Sobre O Gerenciamento Do Cuidado De Enfermagem À Criança Com Dor Oncológica Crônica

Contact Info

Product

Resources

About