Parent‐directed commentaries during children's hearing habilitation appointments: a practice in family‐centred care

Ekberg, Katie; Scarinci, Nerina; Hickson, Louise; Meyer, Carly

doi:10.1111/1460-6984.12403

Cited by 15 publications

(6 citation statements)

References 39 publications

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“…It was noted that 99 parents felt that their interaction with the therapist was good. Similarly, Ekberg and Hickson [ 12 ] reported that therapist was able to engage the parents in the interaction with the child in the therapy session. Thus, there were no communication difficulties between parents and hearing habilitation providers.…”

Section: Discussionmentioning

confidence: 99%

Parental Support for Post Operative Intervention of Children with Cochlear Implantation

Balakrishnan¹,

Thangaraj

2023

Indian J Otolaryngol Head Neck Surg

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The CI team may benefit from assessment of various aspects of parental involvement at home for counselling and outcome prediction. As a result, the current study's aimed to create and deploy a novel questionnaire to measure parental involvement in the rehabilitation of children with cochlear implants (CI). In the current study, 100 parents (Mothers) of children who underwent CI between 2010 and 2020 took part. Based on Des Jardin's Scale of Parental Involvement (DesJardin in Volta Rev 103:391–409, 2003), a questionnaire to measure parental involvement in the rehabilitation of children with cochlear implants was created. The questionarie comprises of 41 questions divided into four categories: participation in the rehabilitation, family and emotional support, device maintenance and followup, and involvement in school. On a three-point rating system, responses were recorded. 100 parents of children with CI were given the questionnaire to complete. The sums of the scores for each domain were determined. The findings showed that more than 80% of parents were able to regularly bring their children to therapy. Some of these parents (13%) stated that their children were unable to wear the speech processor because the spare parts were damaged, and they required more time to purchase replacements since they were unable to afford them. Only 58 percent of parents were able to support their CI child and siblings financially. Parents' worries about their children' academic achievement accounted for 35% of all parent concerns. Although the majority of parents said they were happy with their child's post-implantation growth, additional issues such problems getting financial support, trouble getting to a therapy centre for habitation, and the children' failure to learn via tele-mode were emphasised.

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Section: Discussionmentioning

confidence: 99%

Parental Support for Post Operative Intervention of Children with Cochlear Implantation

Balakrishnan¹,

Thangaraj

2023

Indian J Otolaryngol Head Neck Surg

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“…The data collection procedure for this study is described in detail elsewhere [20]. All participants provided written informed consent.…”

Section: Procedures and Analysismentioning

confidence: 99%

“…The video data was transcribed using the Jeffersonian and Mondada transcription systems [26,27]. The data was analysed using conversation analysis (CA), a well-established method for examining healthcare interactions [28][29][30], including in audiology and speech pathology [20,[31][32][33]. For the current study, the data was searched for all questions from parents (including repeated or re-formulated questions).…”

Section: Procedures and Analysismentioning

confidence: 99%

“…Question-asking is a primary way in which parents can initiate their own involvement in their child's hearing appointments [18] and is thus an important communication behaviour to understand for the facilitation of FCC within appointments. There has, however, been very little research involving direct observation of family-centred communication practices in paediatric hearing habilitation appointments [19,20], and in particular, no research to date has investigated parents' questions in hearing habilitation appointments with children with HL.…”

Section: Introductionmentioning

confidence: 99%

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Parents’ questions to clinicians within paediatric hearing habilitation appointments for children with hearing impairment

Ekberg

Meyer

Hickson

et al. 2020

Patient Education and Counseling

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“…A holistic approach to care in the hearing loss setting improves the overall health outcomes of the child, fostering strong interpersonal relationships between the child and parent [ 13 ]. Additionally, higher staff satisfaction and more effective use of healthcare resources have also been associated with family-centred care [ 12 , 14 ]. Supporting parents’ needs is an important component of achieving the best possible outcomes of a child diagnosed with hearing loss.…”

Section: Introductionmentioning

confidence: 99%

Exploring Parent Support Needs during the Newborn Hearing Diagnosis Pathway

Elliott

Vears

Sung

et al. 2022

JCM

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Universal newborn hearing screening (UNHS) facilitates early detection of permanent congenital hearing loss in newborns. In recognition of specific needs among parents, support services have been established within some UNHS programs, including the Victorian Infant Hearing Screening Program (VIHSP). Despite this, there is limited research about how to best support parents in the context of well-established UNHS programs. This project aims to retrospectively explore parental support needs between the newborn hearing screen and enrolment into early intervention services. We used semi-structured interviews with parents three- to- six-months post confirmation of their newborn’s diagnosis of bilateral moderate-profound sensorineural hearing loss. Data were analysed using inductive content analysis. Thirteen parents of ten children were interviewed. Parents described high satisfaction with the support they received. Some parents felt unprepared for a diagnosis of hearing loss, having been reassured that transient causes such as middle ear fluid caused the hearing screen result. Parents reported mixed responses regarding the value of parent-mentor support along the pathway and some parents described needing additional psychological input to adjust to their child’s diagnosis. These findings provide insights into how a well-established UNHS program, VIHSP, supports parents along the hearing diagnosis pathway and how support can be further enriched.

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Parent‐directed commentaries during children's hearing habilitation appointments: a practice in family‐centred care

Abstract: The parent-directed commentaries identified in this study provide an example of the practical, interactional resources that health professionals can draw on within paediatric appointments to facilitate FCC with parents.

Cited by 15 publications

References 39 publications

Parental Support for Post Operative Intervention of Children with Cochlear Implantation

Parental Support for Post Operative Intervention of Children with Cochlear Implantation

Parents’ questions to clinicians within paediatric hearing habilitation appointments for children with hearing impairment

Exploring Parent Support Needs during the Newborn Hearing Diagnosis Pathway

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