Parenting Stress and Impact of Illness in Parents of Children with Coeliac Disease

Abstract

Coeliac disease (CD) is a chronic disease which could stress patients and their family. Although, poor attention has been paid to the quality of life in CD children and to the functioning of families with CD children. The study aims to evaluate the parenting perception of the CD impact and the parenting distress level. A group of 74 parents of CD children compiled the Impact Childhood Illness Scale and the Parenting Stress Index which is also compiled by 74 parents of health children. The assessment does not reveal a significant impact of CD on patient’s personal life although some critical areas emerged. Results evidenced an higher level of parenting stress in parents of CD children than parents of healthy children. CD, if suitably managed, has not a critical impact on parenting perception. Although, CD certainly put parents through an higher risk of a distress related to parenting role than parents with health children. A early identification of parenting distress in a pediatric chronic illness could facilitate the adjustment to pathology.

Sağlıklı ve Çölyak Hastalığı Tanısı ile İzlenen Adölesanlarda Psikiyatrik Özellikler ve Aile İşlevselliğinin Karşılaştırılması

“…22,23,24 A study on family functionality and parental stress points out that parents of children diagnosed with celiac suffer from high levels of stress and diffi culties in family functionality. 7 Results are similar to our study.…”

“…When there is a sick child, parents take the emotional weight of the diagnosis and diet training and parenting support is an important factor for the patient's health. 7 Especially in adolescence period, cooperation with families is crucial.8 Family support has an important role in the adherence to treatment of a child with a chronic disease, and this role is more pronounced in diseases such as CD with specifi c dietary therapy.…”

<p>Potential risk factors for celiac disease in childhood: a case-control epidemiological survey</p>

“…By construction, this study made use of snowball sampling in obtaining a small number of its case participants and in obtaining a significant minority of its control participants. Snowball sampling has been used in a number of studies on CD 55–57. While some research suggests that snowball sampling may contribute to biases in a sample,58 other research suggests that, in practice, this concern may be overstated 59–61…”

Çocuklardaki çölyak hastalığının annelerin yaşam kalitesi ve depresyon düzeylerine etkisi

“…Bulduğumuz sonuçlar da çalışma grubundaki annelerin psikolojik yönden olumsuz etkilendiğini göstermiştir. Epifanio ve ark.nın çölyak hastalığı olan çocukların annelerinde yaptıkları bir çalışmada stres düzeyinin sağlam çocuk annelerine göre daha yüksek olduğu sonucu bizim çalışmamızın sonuçlarıyla uyumludur (14).…”