Parenting Stress in Infancy and Psychosocial Adjustment in Toddlerhood: A Longitudinal Study of Children with Craniofacial Anomalies

Pope, Alice W.; Tillman, Karen; Snyder, Heather T.

doi:10.1597/04-066r.1

Cited by 73 publications

(75 citation statements)

References 13 publications

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“…Research on craniofacial conditions has also shown that lower levels of parenting stress are associated with better child adjustment (Krueckeberg and Kapp-Simon, 1993; Krueckeberg et al, 1993; Pope et al, 2005) and better parental health status (Coulter et al, 1991). Baker et al (2009) documented that positive, approach-oriented coping strategies were correlated with better parental adjustment for parents of children with cleft lip and palate.…”

Section: Single-suture Craniosynostosismentioning

confidence: 99%

“…Whether parent functioning is viewed primarily in terms of resilience or risk for poor outcomes, parents’ cognitive, affective, and behavioral responses to stressful events must all be considered (Patterson, 1983; Deater-Deckard, 1998; Crnic et al, 2005; Pope et al, 2005; Haskett and Willoughby, 2007; Kwon, 2007; Baker et al, 2009). Abidin’s (1992, 1995) model of parenting stress is a good example of a multifaceted approach, focusing on parental perceptions of and attributions about the child’s various characteristics, the quality of the parent-child and marital relationships, and parents’ roles and responsibilities.…”

Section: Single-suture Craniosynostosismentioning

confidence: 99%

“…Many studies have examined parental stress in relation to children who have medical conditions (e.g., mental retardation, cardiac problems, cystic fibrosis, cerebral palsy, diabetes, spina bifida, very low birth weight), with most finding that parents of a child with a diagnosed medical condition report more stress and problems with adaptation than parents of children without such conditions (Kazak and Marvin, 1984; Britner et al, 2003; Nereo et al, 2003; Uzark and Jones, 2003; Hung et al, 2004; Vermaes et al, 2007; Wulffaert et al, 2009). There is also some evidence that higher parenting stress is associated with poorer child outcomes over the long term, including both internalizing and externalizing behavior problems (Anthony et al, 2005; Pope et al, 2005; Pai et al, 2006; Ashford et al, 2008). However, other studies have suggested that the stress associated with parenting a child with a medical condition can activate parental coping resources that promote resilience in the child and family (Case-Smith, 2004; Vermaes et al, 2007; Lightsey and Sweeney, 2008; Baker et al, 2009; Feragen et al, 2009).…”

mentioning

confidence: 99%

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Mothers' and Fathers' Reports of Stress in Families of Infants with and without Single-Suture Craniosynostosis

Rosenberg

Kapp-Simon

Starr

et al. 2011

The Cleft Palate Craniofacial Journal

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Objective To compare relative levels of stress reported by mothers and fathers in families containing infants with and without single-suture craniosynostosis. Design Case-control study. Participants Mothers and fathers of 246 infants with recently diagnosed single-suture craniosynostosis and 253 frequency-matched control infants completed the Parenting Stress Index just prior to their infant’s cranioplastic surgery. Family demographic information and mothers’ ratings of the severity of their child’s single-suture craniosynostosis were obtained. Results Average Parent Domain scores for parents of infants with single-suture craniosynostosis differed little from those reported by parents of control infants; however, Child Domain scores among parents of infants with single-suture craniosynostosis were higher on some subscales, primarily related to unexpected infant health and appearance issues. In both groups, fathers reported higher Child Domain stress than mothers, and mothers reported higher Parent Domain stress than fathers. Case mothers reported greater stress if they perceived their child’s condition as more noticeable to others. Conclusions Prior to cases’ cranioplastic surgery, parents of children with and without single-suture craniosynostosis reported similar levels of stress in relation to their parenting roles and the behavioral characteristics of their infants. Visibility of condition should be considered a risk for increased stress for mothers of infants with single-suture craniosynostosis. Stress differences between mothers and fathers were far more discernible than those associated with the presence or absence of single-suture craniosynostosis.

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Section: Single-suture Craniosynostosismentioning

confidence: 99%

Section: Single-suture Craniosynostosismentioning

confidence: 99%

mentioning

confidence: 99%

See 1 more Smart Citation

Mothers' and Fathers' Reports of Stress in Families of Infants with and without Single-Suture Craniosynostosis

Rosenberg

Kapp-Simon

Starr

et al. 2011

The Cleft Palate Craniofacial Journal

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show abstract

“…For example, a recent study used a resilience model and suggested that parents of children with cleft who used problem-focused coping and had high levels of social support reported less family impact and more positive adjustment to their child’s condition than those who used avoidance-oriented coping strategies and had lower levels of social support (Baker et al, 2009). Indeed, how families and parents cope with their child’s condition impacts their stress level (Pope et al, 2005). …”

mentioning

confidence: 99%

Coping with Cleft: A Conceptual Framework of Caregiver Responses to Nasoalveolar Molding

Sischo

Broder

Phillips

2015

The Cleft Palate Craniofacial Journal

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Objective To present a conceptual framework of caregiver coping and adaptation to early cleft care using nasoalveolar molding. Design In-depth interviews were conducted at three time points with caregivers of infants with cleft lip or cleft lip and palate whose children had nasoalveolar molding to treat their cleft. Qualitative data were analyzed using modified grounded theory. Results Most caregivers expressed initial apprehension and anxiety about the responsibilities of care associated with nasoalveolar molding (e.g., changing and positioning tapes, cleaning the appliance). In subsequent interviews, caregivers often reported positive feelings related to their active participation in their child’s treatment for cleft. These positive feelings were associated with increased self-esteem and feelings of empowerment for the caregivers. Although caregivers also identified burdens associated with nasoalveolar molding (e.g., stress related to lip taping, concerns about the appliance causing sores in their child’s mouth, travel to weekly appointments), they tended to minimize the impact of these issues in comparison with the perceived benefits of nasoalveolar molding. Conclusions Despite the increased burden of care, many caregivers of infants with cleft used nasoalveolar molding as a problem-focused coping strategy to deal with their child’s cleft. Completing nasoalveolar molding was often associated with positive factors such as increased empowerment, self-esteem, and bonding with their infant.

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“…The aim of palate repair is to create a complete closure, having an intact hard and soft palate with a normal functioning velopharyngeal mechanism (18). Even when newborns with cleft deformities receive appropriate treatment, some still have facial deformity and speech impairment (19)(20)(21), which further increases the health care and familial burden of the disease (22). With the help of Speech and Language thera- pists it is possible to improve these patients' speech.…”

Section: Introductionmentioning

confidence: 99%

Quality of Speech Following Cleft Palate Surgery in Children

Fakhim

Shahidi

Javan

2018

ABCMed

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Background: Surgical treatment of cleft palate is accompanied with speech problems. Speech therapy in these children after surgery can improve their speech. In this study, we aimed to evaluate the quality of speaking in operated cleft palate patients and speech therapy effects in a small group of these patients. Methods: In this cross-sectional study, speech quality of 55 children with operated cleft palate was assessed regarding resonance, audible nasal emission, consonant production and speech acceptability. Speech outcomes after therapy were evaluated in 19 patients. Results: Cleft palate types were unilateral cleft and lip palate in 18 cases, bilateral cleft and lip palate in 4 cases, secondary cleft palate type in 30 cases and of mere-soft palate in 3 cases. Thirty-five children were operated during the first year of life and 20 were operated after the first year. More than 55% of patients had normal hypernasality with few cases of severe hypernasality and less than 45% had error in consonant production. Patients operated during first year of life had more speech problems. Speech parameters were improved in 19 patients after speech therapy. Conclusion: In conclusion, children with cleft palate have some degrees of speech disorders after repair surgery than could be improved by the speech therapy. Speech therapy should be considered as one of the main treatment protocols along with repair surgery in children with cleft palate.

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Parenting Stress in Infancy and Psychosocial Adjustment in Toddlerhood: A Longitudinal Study of Children with Craniofacial Anomalies

Cited by 73 publications

References 13 publications

Mothers' and Fathers' Reports of Stress in Families of Infants with and without Single-Suture Craniosynostosis

Mothers' and Fathers' Reports of Stress in Families of Infants with and without Single-Suture Craniosynostosis

Coping with Cleft: A Conceptual Framework of Caregiver Responses to Nasoalveolar Molding

Quality of Speech Following Cleft Palate Surgery in Children

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