Participation and Attrition in a Coping Skills Intervention for Adolescent Girls with Inflammatory Bowel Disease

Abstract

The current study examined factors associated with adolescent and parent participation in a coping skills intervention for adolescent girls with inflammatory bowel disease (IBD) and examined factors associated with attrition related to intermittent missing data. Thirty-one adolescent girls with IBD and their parents enrolled in the intervention. Psychosocial and disease factors related to participation in the 6-week web component of the coping skills intervention were examined as were baseline group differences between those who provided post-treatment data and those who did not. Adolescents experiencing more difficulties related to their disease and psychosocial functioning participated less in the web component of the treatment intervention. Families who attrited had higher baseline levels of parental catastrophic thoughts, parenting stress, and adolescent depression. Families experiencing greater levels of psychological and disease-related difficulties may be at risk for low participation and eventual dropout from pediatric IBD psychological treatment interventions.

Characteristics of non-responders to self-reported questionnaires in a large inflammatory bowel disease cohort study

“…This is an important finding, showing that results that might be drawn using data, at least from FPQ, are not prone to selection bias as regards with disease characteristics of the bowel disease itself. Our results are also consistent with previous studies showing that patients with mood disorders [20] and greater levels of psychological and disease-related difficulties [1,14,23,24] are at higher risk of nonresponse to solicitations. Patients who are the most in need of psychological and social help may be more difficult to reach.…”

“…These chronic inflammatory diseases of the gastrointestinal tract, of unknown etiology, are characterized by alternating periods of remission and relapse and have considerable impact on patients' daily life including recurrent symptoms, psychosomatic distress and poorer social and professional functioning [1,2]. IBD is considered as a disease of industrialized nations and is rising in societies with increasing western lifestyles [3][4][5].…”

Utilization and efficacy of internet-based eHealth technology in gastroenterology: a systematic review

“…Reports by parents indicated reduced children's use of approach coping strategies and distraction techniques. In a follow-up study of McCormick et al [22], Reed-Knight et al [24] evaluated the factors that influenced adolescent and parent participation and attrition. No significant differences were found in relation to medical or demographic factors and online participation rates.…”

“…McCormick et al [22] It combined face-to-face and online intervention; rewards were provided after each assignment completion/engagement in chat sessions; it utilized parent-adolescent dyads. Follow-up study [24] of the McCormick et al [22] dataset explored participation and attrition rates.…”

Parental Catastrophizing Partially Mediates the Association between Parent-Reported Child Pain Behavior and Parental Protective Responses

“…This same group also published a manuscript describing factors associated with attrition from the intervention. Baseline levels of parental catastrophizing were higher among families who dropped out versus completed [44]. While these findings offer important implications for intervention, we still know very little about baseline levels of cognitive and interpersonal processes in this population, not to mention associations among these factors.…”