Patient indicators of a pulmonary exacerbation: Preliminary reports from school aged children map onto those of adults

Abbott, Janice; Holt, Alison; Morton, Alison; Hart, Anna; Milne, G.; Wolfe, Susan; Conway, Steve

doi:10.1016/j.jcf.2011.11.005

Cited by 15 publications

(11 citation statements)

References 25 publications

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“…Interestingly, a recent study found that lack of appetite was one of the most common symptoms associated with the onset of an exacerbation in children and adults with CF suggesting that regularly assessing appetite as part of a symptom survey could give valuable insight into health status. 20 In our local setting, we observed that patient compliance/non-compliance influenced the speed of disease progression, treatment, and, ultimately, outcome. It is of particular interest that patients with the same genotype exhibit different levels of disease severity suggesting there are other factors at work.…”

Section: Introductionmentioning

confidence: 88%

“…18 This symptom cluster is similarly reported by adults and children with CF. 20 PROs are now believed to be an essential part of patient-centered care and have been used to evaluate drugs, to assess and track the effects and progress of a disease on different aspects of patients functioning and for developing individual treatment plans. 21,22 A well-established PRO, the Cystic Fibrosis Questionnaire-Revised Respiratory Symptoms Scale (CFQ-RRSS), has recently been used to evaluate respiratory symptoms in CF in order to establish the efficacy of inhaled antibiotics over 18 months.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

The Cystic Fibrosis Symptom Progression Survey (CF-SPS) in Arabic: A tool for monitoring patients’ symptoms

Norrish¹,

Norrish²,

Fass³

et al. 2015

Oman Med J

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Section: Introductionmentioning

confidence: 88%

Section: Introductionmentioning

confidence: 99%

The Cystic Fibrosis Symptom Progression Survey (CF-SPS) in Arabic: A tool for monitoring patients’ symptoms

Norrish¹,

Norrish²,

Fass³

et al. 2015

Oman Med J

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“…Abbott (17) realizó un estudio en Gran Bretaña (UK) con 70 personas, comparando niños y ancianos en cuanto a los efectos indeseables durante las crisis de enfermedad respiratoria. En ambos, la falta de apetito relacionada a la disnea fue frecuente entre los participantes.…”

Section: Discusionesunclassified

Fatores que dificultam a alimentação por via oral do idoso hospitalizado

Lima

Pelzer

Barros

et al. 2017

eglobal

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Nº 48 Octubre 2017Página 429 ORIGINALES Factores que dificultan la alimentación por vía oral del anciano hospitalizadoFatores que dificultam a alimentação por via oral do idoso hospitalizado Factors that make it difficult the oral feeding in elderly hospitalized RESUMEN:Identificar los factores que dificultan la alimentación por vía oral en pacientes ancianos hospitalizados. Es esta una investigación cualitativa, con delineamiento transversal, desarrollada con 111 ancianos hospitalizados en una institución hospitalaria ubicada en el sur del Rio Grande do Sul. Para recolección de datos se ha utilizado un instrumento denominado Escala de Evaluación Alimentaria para el Anciano Hospitalizado. Ha sido realizado un análisis factorial y descriptivo. Los datos cuantitativos generados fueron digitalizados y organizados en el software Statistical Package for the Social Sciences, versión 20.0. Fueron identificados cuatro valores relacionados con la dificultad de alimentación por vía oral por los ancianos hospitalizados: factores ambientales, alimentarios, fisiológicos y los relacionados con el equipo de salud. Los factores ambientales se destacaron como aquellos que más dificultan la alimentación por vía oral de los pacientes ancianos hospitalizados, más fielmente los ítems que contemplan el dolor, la depresión y el uso/ acción de las medicinas.Palabras clave: Anciano; Alimentación; Enfermería; Gerontogeriatría RESUMO:Identificar os fatores que mais dificultam a alimentação por via oral em pacientes idosos hospitalizados. Trata-se de uma pesquisa quantitativa, com delineamento transversal, desenvolvida com 111 idosos hospitalizados em uma instituição hospitalar localizada ao sul do Rio Grande do Sul. Para coleta de dados foi utilizado um instrumento denominado Escala de Avaliação Alimentar para o Idoso

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“…20 When children with cystic fibrosis are interviewed about symptom improvement after exacerbations, they report, among other improvements, a sputum color change. 21 As self-assessment of sputum color by patients was demonstrated to be unreliable, 10 so there is a need for validated tools. Although the Sputum Color Chart previously demonstrated a good inter-rater reliability between doctors and subjects, 5 no study had previously investigated the intra-rater reliability for different health caregivers and the inter-rater reliability between different health professionals.…”

Section: Used Thementioning

confidence: 99%

Reproducibility of the Sputum Color Evaluation Depends on the Category of Caregivers

Reychler

André

Couturiaux³

et al. 2016

Respir Care

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BACKGROUND: Sputum production and purulence were proposed as criteria for justifying the use of antimicrobial agents. The Sputum Color Chart was developed and validated to standardize purulence of sputum evaluation. The aim of this study was to observe the reproducibility of the Sputum Color Chart from different categories of health caregivers. METHODS: The color of 10 sputum samples was evaluated using photographs for intra-and inter-reliability. The observation was repeated 3 times. Eighteen volunteers from 6 categories of health caregivers (student in physiotherapy, senior chest physiotherapist, junior resident in pulmonology, medical microbiologist, pulmonologist, and general practitioner) were investigated. RESULTS: Poor inter-rater reliability was observed for all categories with the exception of senior chest physiotherapists. The best intrarater reliability was observed for microbiologists and senior chest physiotherapists. We found a great proportion (>40%) of important discrepancies in 2 categories (junior pulmonologist and general practitioner). The proportion of non-discrepancy between evaluators varied between 10 and 40%, depending on the category. CONCLUSIONS: Even if the Sputum Color Chart is a useful tool for the clinician in the context of clinical deterioration, it presents non-uniform reliability regarding the caregivers and their category.

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Patient indicators of a pulmonary exacerbation: Preliminary reports from school aged children map onto those of adults

Abstract: Child-reported indicators of a pulmonary exacerbation tend to map onto those reported by adults. These results provide the rationale for the development of a single scale for school age children and adults that could be sensitive to progressive stages of CF disease.

Cited by 15 publications

References 25 publications

The Cystic Fibrosis Symptom Progression Survey (CF-SPS) in Arabic: A tool for monitoring patients’ symptoms

The Cystic Fibrosis Symptom Progression Survey (CF-SPS) in Arabic: A tool for monitoring patients’ symptoms

Fatores que dificultam a alimentação por via oral do idoso hospitalizado

Reproducibility of the Sputum Color Evaluation Depends on the Category of Caregivers

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