Patient information in radiation oncology: a cross-sectional pilot study using the EORTC QLQ-INFO26 module

Adler, Johannes; Paelecke-Habermann, Yvonne; Jahn, Patrick; Landenberger, Margarete; Leplow, Bernd; Vordermark, Dirk

doi:10.1186/1748-717x-4-40

Cited by 33 publications

(37 citation statements)

References 23 publications

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“…Although some questions were answered satisfactorily, showing scores far superior to the average, it was observed that 89% of the sample indicates the desire to receive more overall information. This finding is very close to the results presented in other studies, (12)(13)(14)(15)(16) based on which we can suppose that, to respond to the demand concerning the amount of information, the quality of the information provided should be taken into account, as many variables interfere in the absorption of the information, such as the patient's way of life, the patient and family's ability to understand the information and how they interpret the disease.…”

Section: Discussionsupporting

confidence: 93%

“…We believe that this is related to the fact that the sample consists of patients hospitalized at a surgical ward, which means more medical tests and therapeutic conducts, consequently offering information about the test objectives and results and about the disease and treatment more constantly. This finding is similar to the observations by Adler et al, (12) in which the same questionnaire was applied to 72 patients and participants in the German study and to the phase IV study concerning the validation of the EORTC QLQ-INFO25 by Arraras et al (6) Almost all participants indicated some knowledge about the diagnosis of their oncologic disease. About 89% of the sample referred having received moderate or plenty of information.…”

Section: Discussionsupporting

confidence: 88%

“…Studies in other countries have also evidenced that most patients received a lot of information about their diagnosis. (6,12) It should be highlighted, however, that the amount of information referred does not translate the actual knowledge about the disease, as highlighted in the study by Ferraz Gonçalves et al, (13) which verified that most patients (72%) indicated knowing the diagnosis; nevertheless, not all patients affirmed the diagnosis in a way that clearly showed that they were aware of the nature of their disease. Although these study results show the predominance of plenty of information about the diagnosis, a difference exists between the information provided and the patients' needs.…”

Section: Discussionmentioning

confidence: 96%

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Quality of information given to surgical patients with abdominal cancer

Silva

Souza²,

Martins³

et al. 2017

Invest Educ Enferm

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Article linked to research: Cross-cultural adaptation of measuring instruments in oncology care practice. Conflict of interests: none to declare. Results. In general, for most items, the patients showed satisfaction with the amount of information received. The items referring to the disease, examinations, treatment and general information stand out, with an average score of more than 80%. For some items, however, there is dissatisfaction with the amount of information received, especially those related to the cause of the disease, aspects of out-of-hospital and home care, different places of care and aspects of self-help, with a satisfaction level of less than 40%. Conclusion.Despite the high level of satisfaction with the information received, it was observed that almost all patients would like more information, which makes us recommend that, as part of the care, the information offered to these patients about the treatment and the evolutionary process of the disease should be enhanced.Descriptors: abdominal neoplasms; oncology nursing; patient satisfaction. Calidad de la información ofrecida a los pacientes quirúrgicos com cáncer abdominalObjetivo. Evaluar la necesidad de información en pacientes con tumores abdominales como proceso continuo para su cuidado. Métodos. La muestra consistió en 100 pacientes ingresados en la sala de cirugía, destinada a pacientes con cáncer abdominal del Instituto José de Alencar Gomes da Silva / Instituto Nacional de INCA, entre junio y diciembre de 2016. Para la colección de datos se utilizó la versión portuguesa del cuestionario QLQ-INFO25 la EORTC. Resultados. En general, para la mayoría de los artículos, los pacientes se mostraron satisfechos con la cantidad de información recibida. Cabe destacar los artículos relacionados con la enfermedad, examen, tratamiento, e información general, con más del 80% de la media. Sin embargo, para algunos artículos hay insatisfacción en la cantidad de información recibida, especialmente los vinculados a la causa de la enfermedad, los aspectos del hospital y el lugar de cuidado, así como los diferentes sitios de atención y aspectos de autoayuda, con un grado de satisfacción inferior al 40%. Conclusión. A pesar del alto nivel de satisfacción de la información recibida, se observó que casi todos los pacientes les gustaría obtener aún más, lo que nos lleva a creer que proporcionar continuamente información sobre el tratamiento y el proceso de evolución de la enfermedad debe ser un proceso constante en el cuidado de estos pacientes.Descriptores: neoplasias abdominales; enfermería oncológica; satisfacción del paciente. Qualidade da informação oferecida a pacientes cirúrgicos com câncer abdominalObjetivo. Avaliar a necessidade de informação em pacientes portadores de neoplasias abdominais. Método. A amostra foi composta por 100 pacientes internados em enfermaria cirúrgica, destinada aos pacientes portadores de neoplasias abdominais do Instituto Nacional do Câncer José de Alencar Gomes da Silva/INCA, no período entre junho e dezembro de 2016. Para a ...

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Section: Discussionsupporting

confidence: 93%

Section: Discussionsupporting

confidence: 88%

Section: Discussionmentioning

confidence: 96%

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Quality of information given to surgical patients with abdominal cancer

Silva

Souza²,

Martins³

et al. 2017

Invest Educ Enferm

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“…Es drohen Versorgungsbrüche, die einer optimalen Nachversorgung durch eine zeitnahe Reaktion auf Therapie-oder Krankheits-bedingte Beeinträchtigungen der Lebensqualität entgegenstehen. Aus eigenen Untersuchungen wissen wir außerdem, dass viele Patienten trotz intensiver Behandlung zu wenig über Selbstmanagement-Möglichkeiten, Therapieinhalte, die langfristige Behandlungsplanung oder den Sitz zuständiger Spezialisten wissen [14]. Auch auf Seiten der Professionals (Ärzte, Pflegende, Medizinische Fachangestellte, Sozialarbeiter) führt die zunehmende Komplexität der Versorgung onkologischer Patienten im Multimodal cancer treatment gelegentlich zu Unterversorgung, medizinischen Fehlentscheidungen, Doppeluntersuchungen, unnötigen Wartezeiten für die Patienten oder Versorgungsbrüchen [6,15].…”

Section: Hintergrundunclassified

Sektorübergreifende Versorgung von Darmkrebspatienten: Design einer randomisierten kontrollierten Multicenter-Studie (FKZ 01GY1143)

Landenberger

Boese

Fach

et al. 2015

Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheit

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“…Our survey results confirm findings from studies asking patients with various malignancies to respond to the EORTC QLQ-INFO25. 4,5 In these studies it was shown that patients received more information about medical tests, disease and treatment than about other services, different places of care and self-help.…”

mentioning

confidence: 99%