Patient participation during and after a self-management programme in primary healthcare – The experience of patients with chronic obstructive pulmonary disease or chronic heart failure

Patient participation in dialysis care—A qualitative study of patients’ and health professionals’ perspectives

“…For the patients, participation instead includes the entire range of attributes, all of which are essential but vary over time. Thus, for example, engaging in a mutual dialogue is not only a route to shared decision making and self‐care, but constitutes participation in itself . Further, effective collaboration and exchange of information can create mutual understanding between HCPs and patients, promoting patient participation suitable for dialysis care.…”

“…This study highlights that patient participation is a common concept within the dialysis context, for both patients and staff (including managers). Although previously known attributes of patient participation were illustrated in dialysis care, the findings reveal a difference between the significance that each group of stakeholders apply. The HCPs depict the attributes in an order, indicating that patient participation is hierarchical and that communication and information are fundamental to rather than attributes of participation.…”

“…While the study represents the experiences of both patients and staff, including managers, and includes the voices of different units, individuals with language issues (ie patients who needed an interpreter to participate in a dialogue in Swedish) were excluded. Thus, although the findings justify the similarity of patient participation in dialysis care to that promoted by other patients with long‐term conditions, further studies investigating, for example, strategies to facilitate patient participation should recognize cultural features of the dialysis context and its clients.…”

Facilitating patient participation by embracing patients' preferences—A discussion

“…While early concept analyses of patient participation primarily denoted health care professionals' understanding of the concept, later analyses have also included what patients depict as patient participation . Patients advocate a broad conceptualization of patient participation, including aspects such as: sharing information and knowledge, being engaged in self‐care, and partnering in a shared decision‐making process . Thus, an authentic and comprehensive understanding of patient participation is supported.…”

“…9 Patients advocate a broad conceptualization of patient participation, including aspects such as: sharing information and knowledge, being engaged in self-care, and partnering in a shared decision-making process. [10][11][12] Thus, an authentic and comprehensive understanding of patient participation is supported. Further, the connotations of patient participation expressed by patients' foster health care models such as patient-centred care, shared decision-making, person-centred care, and self-management.…”