Patient participation groups in general practice: what are they for, where are they going?

Gillam, Stephen; Newbould, Jennifer

doi:10.1136/bmj.i673

Cited by 15 publications

(11 citation statements)

References 5 publications

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“…In England, patients and carers can leave feedback about their experience of a consultation with a general practitioner (GP) using a multitude of methods [1]. These include in-house surveys, the National General Practice Patient Survey, suggestion boxes, surveys for revalidation, the Friends and Family Test, Care Quality Commission ratings, and the NHS Choices and other feedback websites.…”

Section: Introductionmentioning

confidence: 99%

Exploring Patients’ Views Toward Giving Web-Based Feedback and Ratings to General Practitioners in England: A Qualitative Descriptive Study

Patel¹,

Cain²,

Neailey³

et al. 2016

J Med Internet Res

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BackgroundPatient feedback websites or doctor rating websites are increasingly being used by patients to give feedback about their health care experiences. There is little known about why patients in England may give Web-based feedback and what may motivate or dissuade them from giving Web-based feedback.ObjectiveThe aim of this study was to explore patients’ views toward giving Web-based feedback and ratings to general practitioners (GPs), within the context of other feedback methods available in primary care in England, and in particular, paper-based feedback cards.MethodsA descriptive exploratory qualitative approach using face-to-face semistructured interviews was used in this study. Purposive sampling was used to recruit 18 participants from different age groups in London and Coventry. Interviews were transcribed verbatim and analyzed using applied thematic analysis.ResultsHalf of the participants in this study were not aware of the opportunity to leave feedback for GPs, and there was limited awareness about the methods available to leave feedback for a GP. The majority of participants were not convinced that formal patient feedback was needed by GPs or would be used by GPs for improvement, regardless of whether they gave it via a website or on paper. Some participants said or suggested that they may leave feedback on a website rather than on a paper-based feedback card for several reasons: because of the ability and ease of giving it remotely; because it would be shared with the public; and because it would be taken more seriously by GPs. Others, however, suggested that they would not use a website to leave feedback for the opposite reasons: because of accessibility issues; privacy and security concerns; and because they felt feedback left on a website may be ignored.ConclusionsPatient feedback and rating websites as they currently are will not replace other mechanisms for patients in England to leave feedback for a GP. Rather, they may motivate a small number of patients who have more altruistic motives or wish to place collective pressure on a GP to give Web-based feedback. If the National Health Service or GP practices want more patients to leave Web-based feedback, we suggest they first make patients aware that they can leave anonymous feedback securely on a website for a GP. They can then convince them that their feedback is needed and wanted by GPs for improvement, and that the reviews they leave on the website will be of benefit to other patients to decide which GP to see or which GP practice to join.

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Section: Introductionmentioning

confidence: 99%

Exploring Patients’ Views Toward Giving Web-Based Feedback and Ratings to General Practitioners in England: A Qualitative Descriptive Study

Patel¹,

Cain²,

Neailey³

et al. 2016

J Med Internet Res

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“…Research suggested that the groups would benefit from clearer goals, resources, train ing and support. 12 These experiences are particularly relevant given that patient and family advisory committees are the most common way that organizations engage patients in Canada currently.…”

Section: Box 1: Considerations When Engaging Patients: Care2mentioning

confidence: 99%

Working with patients to improve care

Kiran

Tepper

Gavin

2020

CMAJ

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“…in Building Better Participation. 8 Gillam and Newbould, in a recent article , 9 criticised the amount of money spent on PPGs. During the enhanced service period, 2011-2013, practices were paid £1.10 per patient to establish and support PPGs, but with no requirement that PPGs would actually be funded.…”

Section: Practices Need To Resource Ppgs Appropriatelymentioning

confidence: 99%

Patient participation groups in general practice: building better partnerships

Wilkie¹

2016

Br J Gen Pract

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The NHS and general practice are generally respected institutions. Indeed, the public, 69% of those sampled, continue to remain relatively satisfied with GP services. 1 One of the great advantages for patients in the UK is that health care is provided free at the point of delivery, with the majority of funding, 76%, paid for out of general taxation and 18% from National Insurance. 2 And yet in 2016 patients and the public know rather little about how general practice is organised, the implications of guidelines, protocols, and targets on how GPs consult and work, how GP practices are funded, and the standards of care patients can expect. 3 In September of 1978 the Declaration of Alma-Ata was adopted at an international conference on primary care. 4 Several important recommendations, still very relevant today, were made, including that people have a duty and a right to participate individually and collectively in the planning and implementation of their health care. NHS England states that it is committed to working with and listening to patients, carers, and the public, and to embedding the patient and public voice in the commissioning process. This is done in the governance structure by having lay members on committees and through effective and ongoing engagement activities, working with patients and the public to jointly design and develop services. 5 The NHS constitution sets out a principle for the government to ensure that: '... there is always a clear and up to date statement of NHS accountability and a transparent process of accountability that is clear to the public, patients and staff'. 6 This is indeed progress. However, these recommendations do not specifically apply to general practice. A further recommendation of the 1978 Alma-Ata Declaration was that primary health care:

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Patient participation groups in general practice: what are they for, where are they going?

Abstract: Millions of pounds have been spent on patient participation groups in the past five years, but is anyone listening? Stephen Gillam and Jennifer Newbould look at the evidence

Cited by 15 publications

References 5 publications

Exploring Patients’ Views Toward Giving Web-Based Feedback and Ratings to General Practitioners in England: A Qualitative Descriptive Study

Exploring Patients’ Views Toward Giving Web-Based Feedback and Ratings to General Practitioners in England: A Qualitative Descriptive Study

Working with patients to improve care

Patient participation groups in general practice: building better partnerships

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