Patient Preferences for Receiving Reports of Test Results

LaRocque, Jeannine R.; Davis, Camille; Tan, Tina P.; D’Amico, Frank; Merenstein, Daniel

doi:10.3122/jabfm.2015.06.150030

Cited by 17 publications

(9 citation statements)

References 19 publications

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“…At that time, the provider should also explore patients' preferences regarding the communication of results. Our finding is consistent with other findings suggesting that accommodating patient preferences for the delivery of test results may improve patient-physician communication [ 35 ]. It is likely that the responses we obtained in the test result domain may have captured broader concerns regarding the disclosure of results not assessed in the AACT items.…”

Section: Discussionsupporting

confidence: 92%

Older Adults’ Attitudes towards Cognitive Testing: Moving towards Person-Centeredness

Wong

Jacova²

2018

Dement Geriatr Cogn Disord Extra

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Background: Research on person-centered cognitive testing is beginning to emerge. The current study is the first to focus on eliciting concrete preferences around the test experience. Methods: Adults ≥50 years old completed the Attitudes Around Cognitive Testing (AACT) questionnaire on mturk.com. AACT elicits preferences for cognitive tests, the importance attributed to having choices, and willingness to engage in testing. Results: Data are reported for 289 respondents. The proportion of participants expressing preferences varied by domain (modality [49.5%], location [47.2%], company [80.1%], result delivery [78.3–89.7%]). Importance ratings for all domains had a median of 4 and a range of 1–5 using a Likert scale of agreement. Most participants (85.5%) were willing to engage in testing. Conclusion: Older adults have preferences for cognitive tests, especially with delivery of results.

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Section: Discussionsupporting

confidence: 92%

Older Adults’ Attitudes towards Cognitive Testing: Moving towards Person-Centeredness

Wong

Jacova²

2018

Dement Geriatr Cogn Disord Extra

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“…Our study shows that, among our predominantly African-American participants, most found it acceptable to receive a PGx result through the mail. This is similar to the findings of a survey study (of mostly white respondents) where most were comfortable with or ambivalent about the idea of receiving genetic testing results (e.g., predisposition, inherited, or carrier) by mail (LaRocque et al, 2015).…”

Section: Discussionsupporting

confidence: 85%

Preferences for and acceptability of receiving pharmacogenomic results by mail: A focus group study with a primarily African‐American cohort

Chan

Lewis

Biesecker

et al. 2021

Journal of Genetic Counseling

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Although genetic counseling is traditionally done through in-person, one-on-one visits, workforce shortages call for efficient result return mechanisms. Studies have shown that telephone and in-person return of cancer genetic results are equivalent for patient outcomes. Few studies have been conducted with other modes, result types or racially diverse participants. This study explored participants' perspectives on receiving pharmacogenomic results by mail. Two experienced moderators facilitated six focus groups with 49 individuals who self-identified primarily as African-American and consented to participate in a genome sequencing cohort study.Participants were given a hypothetical pharmacogenomic result report (positive for c.521T>C in SLCO1B1). An accompanying letter explained that the result was associated with statin intolerance along with a recommendation to share it with one's doctor and immediate relatives. Participants reacted to the idea of receiving this type of result by mail, discussing whether the letter's information was sufficient and what they predicted they would do with the result. Two researchers coded the focus group transcripts and identified themes. Many participants thought that it was appropriate to receive the result through the mail, but some suggested a phone call alerting the recipient to the letter. Others emphasized that although a letter was acceptable for disclosing pharmacogenomic results, it would be insufficient for what they perceived as life-threatening results. Most participants found the content sufficient. Some participants suggested resources about statin intolerance and warning signs be added.Most claimed they would share the result with their doctor, yet few participants offered they would share the result with their relatives. This exploratory study advances the evidence that African-American research participants are receptive to return of certain genetic results by approaches that do not involve direct contact with a genetic counselor and intend to share results with providers.

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“…The authors mentioned that "participants demonstrated preferences in how they received test results by non-in-person communication methods, preferring personal E-mail and password-protected websites, but they did not prefer fax. 1 " Of interest, the new information technology seems to be a useful technology for laboratory result distribution. However, there are many concerns about the system.…”

Section: Re: Patient Preferences For Receiving Reports Of Test Resultsmentioning

confidence: 99%

Re: Patient Preferences for Receiving Reports of Test Results

Wiwanitkit

2016

The Journal of the American Board of Family Medicine

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"participants demonstrated preferences in how they received test results by non-in-person communication methods, preferring personal E-mail and password-protected websites, but they did not prefer fax.1 " Of interest, the new information technology seems to be a useful technology for laboratory result distribution. However, there are many concerns about the system. First, in laboratory medicine, quality control of the postanalytic phase has to cover result reporting.2 There must be the system to validate the correctness of the results in the IT system. Second, privacy and data protection become important issues. We must be well prepared to prevent hackers from hacking the database and laboratory resultreporting IT system.3 Third, it should also be noted that some patients might not want to know their results, and this is their right. 4 There must be a specific operation for not uploading the data for these cases into the IT system.

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Patient Preferences for Receiving Reports of Test Results

Cited by 17 publications

References 19 publications

Older Adults’ Attitudes towards Cognitive Testing: Moving towards Person-Centeredness

Older Adults’ Attitudes towards Cognitive Testing: Moving towards Person-Centeredness

Preferences for and acceptability of receiving pharmacogenomic results by mail: A focus group study with a primarily African‐American cohort

Re: Patient Preferences for Receiving Reports of Test Results

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