2021
DOI: 10.1002/pbc.29257
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Pediatric lymphoma patients in Malawi present with poor health‐related quality of life at diagnosis and improve throughout treatment and follow‐up across all Pediatric PROMIS‐25 domains

Abstract: Background Patient‐reportedoutcomes (PROs) that assess health‐related quality of life (HRQoL) are increasingly important components of cancer care and research that are infrequently used in sub‐Saharan Africa (SSA). Methods We administered the Chichewa Pediatric Patient‐Reported Outcome Measurement Information System Pediatric (PROMIS)‐25 at diagnosis, active treatment, and follow‐up among pediatric lymphoma patients in Lilongwe, Malawi. Mean scores were calculated for the six PROMIS‐25 HRQoL domains (Mobility… Show more

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Cited by 9 publications
(9 citation statements)
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“…The total number of PRO items were rarely summarized in the reports. In the reports ( n = 47) providing items per PROM, there were a range from 3 to 390 items (median 34 items) [ 35 , 41 , 42 , 44 , 50 52 , 54 , 56 , 57 , 62 , 63 , 66 , 68 , 71 , 73 , 80 82 , 85 87 , 90 92 , 94 , 95 , 97 , 98 , 100 , 102 , 103 , 107 , 110 , 112 , 114 119 , 124 , 126 128 , 134 , 136 ]. In 30 reports, the number of items was missing for one or more of the identified PROMs, and a total number was not possible to calculate [ 36 , 43 , 45 , 48 , 49 , 55 , 58 61 , 65 , 67 , 70 , 75 77 , 83 , 93 , 99 , 104 , 106 , 108 , 109 , 120 , 122 , 123 , 125 , 130 , 132 , 133 ].…”
Section: Resultsmentioning
confidence: 99%
See 3 more Smart Citations
“…The total number of PRO items were rarely summarized in the reports. In the reports ( n = 47) providing items per PROM, there were a range from 3 to 390 items (median 34 items) [ 35 , 41 , 42 , 44 , 50 52 , 54 , 56 , 57 , 62 , 63 , 66 , 68 , 71 , 73 , 80 82 , 85 87 , 90 92 , 94 , 95 , 97 , 98 , 100 , 102 , 103 , 107 , 110 , 112 , 114 119 , 124 , 126 128 , 134 , 136 ]. In 30 reports, the number of items was missing for one or more of the identified PROMs, and a total number was not possible to calculate [ 36 , 43 , 45 , 48 , 49 , 55 , 58 61 , 65 , 67 , 70 , 75 77 , 83 , 93 , 99 , 104 , 106 , 108 , 109 , 120 , 122 , 123 , 125 , 130 , 132 , 133 ].…”
Section: Resultsmentioning
confidence: 99%
“…In one study, both children, parents, and nurses answered the PROMs [ 130 ]. In the remaining studies, the respondents varied depending on the setting and the child’s condition [ 43 , 57 , 62 , 74 , 87 , 89 , 91 , 96 , 100 , 101 , 108 , 123 , 135 ].…”
Section: Resultsmentioning
confidence: 99%
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“…To address the limitations of variability in diagnostic capabilities and pathologist expertise across institutions, especially in lymphoma diagnosis, and the missed opportunity for enhancing diagnostic reliability through standardized assessments, the incorporation of telepathology and AI tools in future investigations could be pivotal. Telepathology has been shown to enable the real-time interpretation of tissue biopsies and immunohistochemistry, facilitate accurate diagnoses, and potentially standardize assessments 44 , 45 . Additionally, AI tools have the potential to enhance diagnostic accuracy by leveraging large datasets and transfer learning techniques to improve classification performance significantly 46 , 47 .…”
Section: Discussionmentioning
confidence: 99%