Pediatric Palliative Care

Moresco, Benjamin; Moore, Dominic T.

doi:10.1080/21548331.2021.1964867

Cited by 8 publications

(5 citation statements)

References 107 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Connection, empathy, and compassion invite professionals to put themselves in the place of another and see the world from another's perspective, searching thus to understand -in the singularity of each family and their history -their desires, values, and their sacred, which reinforce the children's well-being and their quality of life as a common goal between professional and family. This evidence corroborates evidence from other studies (14)(15)(16)(17)(18)(19)(20) on the experiences of professionals and families with children under PC.…”

Section: Discussionsupporting

confidence: 91%

“…Taking care of families with children in life-threatening conditions and, therefore, eligible for PC, is an ethical duty, guided by the idea that children are part of their family's context. Moreover, families have the right to provide care in face of the suffering and vulnerability of their children, and it is fundamental that professionals take up the duty of listening to the families with compassion, improving communication and enabling parent empowerment and shared decision-making (16)(17)(18)(19) . Such evidence is close to the presuppositions of Family-Centered Care (FCC), a philosophy of care which is closely related to the principles of PPC.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Searching for human connection to transcend symbolisms in pediatric palliative care

Moreira-Dias

Franco

et al. 2023

Rev. Bras. Enferm.

View full text Add to dashboard Cite

Objectives: to present a theoretical model for the interactional context of health professionals and families of children and adolescents under palliative care. Methods: qualitative study based on the theoretical frameworks of Grounded Theory and Symbolic Interactionism. Ten palliative care professionals took part in this study through semi-structured interviews employing snowball technique from 2020 to 2021. Results: the comparative data analysis resulted in the theoretical model “Searching for human connection to transcend symbolisms in pediatric palliative care”. It reveals symbolic elements that substantiate the construction of a collaborative context integrating two phenomena: “Overcoming boundaries and intertwining paths” and “Embracing suffering to weave meaningful experiences”. Symbolisms in palliative care guide the behavior of families and professionals, which makes them the key factor to be managed. Final Considerations: symbolisms and suffering continually integrate the interactional experience of professionals. Empathy and compassion are fundamental elements to enable their connection with families.

show abstract

Section: Discussionsupporting

confidence: 91%

Section: Discussionmentioning

confidence: 99%

Searching for human connection to transcend symbolisms in pediatric palliative care

Moreira-Dias

Franco

et al. 2023

Rev. Bras. Enferm.

View full text Add to dashboard Cite

show abstract

“…Conexão, empatia e compaixão provocam o profissional a assumir o lugar do outro e ver o mundo sob a perspectiva dele, buscando, dessa forma, compreender, na singularidade de cada família e da sua história, os seus desejos, valores e o seu sagrado, que afirmam o bem-estar da criança e sua qualidade de vida como uma meta comum entre profissional e família. Essas evidências corroboram as evidências de outros estudos (14)(15)(16)(17)(18)(19)(20) sobre experiências de profissionais e famílias de crianças em CPP.…”

Section: Discussionunclassified

“…Cuidar da família de crianças em condições ameaçadoras de vida, portanto, elegíveis para os CP, é um dever ético, pautado na crença de que as crianças existem no contexto da família. Além disso, as famílias têm o direito de cuidar em virtude do sofrimento e da vulnerabilidade de seus filhos, sendo fundamental que os profissionais assumam o dever de ouvir as famílias com compaixão, melhorando a comunicação, potencializando o empoderamento dos pais e a tomada de decisão compartilhada (16)(17)(18)(19) . Tais evidências aproximam-se dos pressupostos do Cuidado Centrado na Família (CCF), filosofia de cuidado que possui estreita relação com os princípios do CPP.…”

Section: Discussionunclassified

Buscando por conexão humana para transcender simbolismos dos cuidados paliativos em pediatria

Moreira-Dias

Franco

et al. 2023

Rev. Bras. Enferm.

View full text Add to dashboard Cite

RESUMO Objetivos: apresentar um modelo teórico sobre o contexto interacional entre profissionais de saúde e famílias de crianças e adolescentes em cuidados paliativos. Métodos: estudo qualitativo sob os referenciais da Teoria Fundamentada nos Dados e Interacionismo Simbólico. Participaram dez profissionais atuantes em cuidado paliativo, por meio de entrevista semiestruturada, a partir da técnica “bola de neve”, entre os anos 2020 e 2021. Resultados: a análise comparativa dos dados resultou no modelo teórico ‘Buscando por conexão humana para transcender simbolismos do cuidado paliativo pediátrico’. Evidencia elementos simbólicos que sustentam a construção do contexto colaborativo integrando dois fenômenos: ‘Rompendo fronteiras e entrelaçando caminhos’ e ‘Acolhendo o sofrimento para tecer experiências de vida significativas’. Simbolismos dos cuidados paliativos orientam comportamentos das famílias e profissionais, constituindo-se no principal interveniente a ser manejado. Considerações Finais: simbolismos e sofrimento integram continuamente a experiência interacional do profissional. Empatia e compaixão são elementos fundamentais para sua conexão com as famílias.

show abstract

“…According to the World Health Organization (WHO), palliative care is defined as "the prevention and relief of suffering for adult and paediatric patients and families facing problems associated with life-limiting illness" [1]. Paediatric palliative care is a specialised field that focuses on the compassionate and holistic care of children with life-limiting illnesses and their families [2]. Each year, more than 8 million children worldwide require specialised palliative care [3].…”

Section: Introductionmentioning

confidence: 99%

Stress Factors for the Paediatric and Adult Palliative Care Multidisciplinary Team and Workplace Wellbeing Solutions

Popa,

Mîndru,

Hizanu (Dumitrache)

et al. 2024

Healthcare

View full text Add to dashboard Cite

Background: Palliative care is a challenging specialty, especially when it comes to caring for children with serious life-limiting conditions and supporting their families. Workers face significant challenges and experience major impacts on their wellbeing. We conducted a qualitative study to understand the sources of stress in the palliative care team, their work expectations, and how they can cope with the demands. Methods: We used an online questionnaire about the causes of stress, the impact of the COVID-19 pandemic and the ways in which support is needed in the workplace. Results: Of the 56 palliative care professionals who participated in the survey, 57.1% considered the main causes of stress to be high workload, difficult emotional burdens (55.4%) affecting their outlook on life (61.2%), the death of patients (46.4%), and communication with patients’ families (26.8%). The COVID-19 pandemic increased stress levels for the majority of respondents (89.3%). The need for specialised training (53.6%), support groups, psychological counselling and adapted organisational policies was highlighted. Conclusions: The study demonstrates the importance of understanding the needs of both paediatric and adult palliative care staff in order to provide optimal care and support their balance in this demanding area of the healthcare system.

show abstract

Pediatric Palliative Care

Cited by 8 publications

References 107 publications

Searching for human connection to transcend symbolisms in pediatric palliative care

Searching for human connection to transcend symbolisms in pediatric palliative care

Buscando por conexão humana para transcender simbolismos dos cuidados paliativos em pediatria

Stress Factors for the Paediatric and Adult Palliative Care Multidisciplinary Team and Workplace Wellbeing Solutions

Contact Info

Product

Resources

About