Pediatric rheumatology and palliative care for children: a most relevant match

Ferreira, Esther; Gramasco, Hendrick; Iglesias, Simone

doi:10.25060/residpediatr-2019.v9n2-21

Cited by 2 publications

(4 citation statements)

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“…As for public policies in Brazil, some states have already published their own normative on the topic (7). It is worth remembering that the specificities in pediatrics are unique and should be considered in order to introduce an appropriate policy (8,9). Measuring the need and capacity to provide PPC are key elements in care planning for a country or region (10).…”

Section: Introductionmentioning

confidence: 99%

Scope of services provided to childhood cancer patients by the Brazilian Pediatric Palliative Care Network

Ferreira,

Valete,

Barbosa

et al. 2024

Front. Oncol.

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IntroductionBrazil is a developing and an Upper Middle Income, categorized by the World Bank. Therefore, it is a country that needs a special vision for children with oncological diseases who require Pediatric Palliative Care. This study aimed to understand the specificities of services that provide oncology services in comparison to those that do not provide oncological care.MethodsThis is a descriptive, cross-sectional, and online survey study. A questionnaire was created by a multidisciplinary group of leaders from the Brazilian Pediatric Palliative Care Network and then the survey was distributed using a snowball strategy.ResultsOf the 90 services that answered the questionnaire, 40 (44.4%) attended oncologic patients. The Southeast represented most of the services (57.57%), followed by the Northeast, with 18.89% (17 services), the South with 12.22% (11 services), and the Center West with 8.89% (8 services). No differences were observed in access to opioid prescriptions between the services. It was observed that those services that attended oncologic patients had a tendency to dedicate more time to Pediatric Palliative Care.DiscussionThe distribution of services that cover oncology and those that do not, are similar in the different regions of Brazil. In Brazil, there are difficulties in accessing opioids in pediatrics: access to opioid prescriptions without differences revealed that even pediatric oncologists might have difficulty with this prescription, and this should improve. It is concluded that education in Pediatric Palliative Care is the key to improvements in the area.

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Section: Introductionmentioning

confidence: 99%

Scope of services provided to childhood cancer patients by the Brazilian Pediatric Palliative Care Network

Ferreira,

Valete,

Barbosa

et al. 2024

Front. Oncol.

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“…In this scenario, Pediatric Palliative Care (PPC) emerged as an integral and respectful form of assistance to these patients and their families. 1 PPC implies early identification, evaluation, and adequate treatment, improving quality of life, promoting dignity and comfort, without accelerating or delaying death, and may even positively influence the course of the disease, an essential aspect for the prognosis of the pediatric patient. 2,3 According to the World Health Organization (WHO), in 2011, there were no PPC services in 65.6% of the countries surveyed.…”

Section: Introductionmentioning

confidence: 99%

“…2,3 According to the World Health Organization (WHO), in 2011, there were no PPC services in 65.6% of the countries surveyed. 1 In 2019, in Brazil,191 palliative care services were evaluated, and only 40.3% were qualified for the care of children and adolescents. 4 In Brazil, some states have already published their own normative public policies about PPC.…”

Section: Introductionmentioning

confidence: 99%

“…5 It is worth remembering that the specificities in pediatrics are unique and should be considered in the construction of an appropriate policy. 1,6 Measuring the need and capacity to provide PPC are key elements in care planning of a country. 2 In 2019, the International Children's Palliative Care Network published estimated levels of provision of children's palliative care worldwide, based on information available in the literature.…”

Section: Introductionmentioning

confidence: 99%

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Exploring the Brazilian pediatric palliative care network: a quantitative analysis of a survey data

Ferreira

Valete

Barbosa

et al. 2023

Rev. paul. pediatr.

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Objective: The aim of this study was to identify the characteristics of services in Brazil that compound the Brazilian Pediatric Palliative Care (PPC) Network. Methods: An online survey was conducted among representatives from PPC services. A total of 90 services from Brazil completed the online survey and answered a questionnaire about the service’s characterization, health professionals working in PPC, access to opioid prescription and education, and research in PPC. Results: In total, 80 services (88.9%) were created after 2010, 52 (57.9%) were in the southeast region, 56 (62.2%) were in public hospitals, 63 (70%) had up to 100 beds, and 57 (63.3%) were at the tertiary level. Notably, 88 (97.8%) had a physician in the team and 68 (75.5%) dedicated part-time to PPC. Also, 33 (36.7%) revealed concern with the care of health professionals and 36 (40%) reported difficulty or no access to opioid prescription. Research studies were reported to be conducted in 29 (32.2%) services. Conclusions: This mapping points out to a concentration of PPC services in the southeast region, with part-time professional dedication, and the need to improve professionals’ care. Difficulty in opioid access was reported. It is necessary to extend PPC participation to other Brazilian regions, increase time dedicated to PPC, improve professionals’ care and improve access to opioid prescription.

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Pediatric rheumatology and palliative care for children: a most relevant match

Cited by 2 publications

References 0 publications

Scope of services provided to childhood cancer patients by the Brazilian Pediatric Palliative Care Network

Scope of services provided to childhood cancer patients by the Brazilian Pediatric Palliative Care Network

Exploring the Brazilian pediatric palliative care network: a quantitative analysis of a survey data

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