Perceived unmet supportive care needs and determinants of quality of life among head and neck cancer survivors: a research protocol

So, Winnie K.W.; Choi, Kai Chow; Chan, Carmen W.H.; Tang, Winnie P.Y.; Leung, Alice W.Y.; Wan, Rayman W.M.; Mak, Sum; Ling, W.M.; Ng, Wai‐Tong; Yu, Bernice W.L.

doi:10.1111/jan.12164

Cited by 6 publications

(4 citation statements)

References 21 publications

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“…3 45 It has also been tested for content, face, and convergent validity. 45 When mapped against our conceptual 16 Flexen et al, 17 Wells et al, 10 Ghazali et al, 18 Alt-Epping et al, 28 Manne et al, 29 Henry et al, 30 Chen et al, 31 Butow et al, 32 Boyes et al, 33 So et al, 34 framework, SUNS had 58% of content relevant to HNC, failing to address concerns such as physical needs and symptom control, activities of daily living, dental, nutritional, and sexual needs.…”

Section: Survivors Unmet Needs Survey (Suns)mentioning

confidence: 99%

Content comparison of unmet needs self‐report measures used in patients with head and neck cancer: A systematic review

et al. 2019

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Objective Morbidity from head and neck cancers (HNCs) and their treatment are significant, given their proximity to anatomical sites impacting facial appearance and function. Assessing the needs of HNC patients throughout their cancer journey is critical to informing quality care and improving quality of life. We aimed to identify available unmet needs measures in the HNC setting and appraise their content and psychometric properties. Methods We conducted a systematic search of five electronic databases (July 2007‐July 2019) to identify studies of unmet needs in patients with HNC. In addition, three web‐based patient‐reported outcome measures (PROMs) databases were searched for unmet needs measures. Citations were screened for eligibility and identified measures reviewed for content coverage and psychometric properties. From identified measures and literature, a conceptual framework with 12 clinically relevant aspects of unmet needs was developed and used to assess the conceptual coverage of available unmet needs measures. Results Literature search identified 273 records of which 28 studies assessing unmet needs in HNC cancer met eligibility criteria. Seven unmet needs measures were identified from retrieved studies and seven additional measures from PROM databases. Thus, 14 measures in total were reviewed. Content mapping revealed that three measures demonstrated excellent content validity (greater than 80% conceptual coverage): Patient Concerns Inventory (PCI), Needs Assessment for Advanced Cancer Patients (NA‐ACP), and James Supportive Care Screening (JSCS). Conclusion We recommend PCI be used to measure unmet needs in the HNC setting considering the importance of content validity over quantitative psychometric properties.

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Section: Survivors Unmet Needs Survey (Suns)mentioning

confidence: 99%

Content comparison of unmet needs self‐report measures used in patients with head and neck cancer: A systematic review

et al. 2019

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“…The study was designed as cross-sectional quantitative survey research [21]. Crosssectional methods are useful for examining studies that cross different sections to make inferences about a population of interest at one point in time [22,23]. In November 2020, a call to participate was distributed by email to administrators of different doctoral programs, located within two comprehensive universities in the northern area of Taiwan.…”

Section: Study Design and Participantsmentioning

confidence: 99%

The Part and Parcel of Doctoral Education: A Gap Analysis between the Importance and Satisfaction of the Experience

Ching

Roberts

2021

Education Sciences

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The doctoral student experience is complex and multifaceted, and although it is increasingly examined in higher education research, there is still much to explore and understand about the topic. Despite expanding discourse, few investigations have been conducted in the East Asian context with multiple universities and fields of study. The present paper aimed to overcome these limitations with research conducted in two Taiwan universities with 94 doctoral student subjects. The study was designed as a quantitative cross-sectional survey using gap analysis. Results showed that within three dimensions (experience with mentors, peers, and curricular engagements) nine distinct variables were validated. The importance of peer interaction and support from mentors were noted as key components for a successful, enjoyable doctoral experience within the Taiwan context.

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“…Therefore, care needs increase as the disease progresses. Identifying perceived needs of people with PD can improve the quality of care (So et al, 2013).…”

Section: Introductionmentioning

confidence: 99%

Unmet needs of people with Parkinson’s disease: A cross‐sectional study

Kim

et al. 2019

Journal of Advanced Nursing

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Aims To identify the type and extent of unmet needs in people with Parkinson's disease and to examine the impact of health locus of control and family support on these needs. Design A cross‐sectional study. Methods This study was conducted from October 2015 ‐ February 2016 in Korea. Data were collected through questionnaires focusing on unmet needs, health locus of control, family support and clinical features. Results Therapeutic needs represented the highest percentage of unmet needs in people with Parkinson's disease (85.05%), followed by social/spiritual/emotional needs (82.72%). Physical needs were the lowest reported score (75.01%). Unmet needs were more frequent in those with more severe non‐motor symptoms. Also, higher family support, internal locus of control and doctor locus of control were correlated with more unmet needs. Conclusion Understanding factors that determine the type and degree of unmet needs in people with PD is important to provide appropriate nursing care. The findings of this study can be used for providing nursing interventions reflecting unmet needs and reducing their unmet needs to improve the overall well‐being of people with PD. Impact This study addressed unmet needs unmet needs specific to Parkinson's disease with respect to their nursing needs. Therapeutic needs were the highest unmet needs in people with PD, followed by social/spiritual/emotional needs, need for certainty and physical needs. The findings may be useful for nurses to identify the unmet needs of people with PD which need to be addressed. By reflecting on unmet needs, nurses can give personally tailored nursing care.

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Perceived unmet supportive care needs and determinants of quality of life among head and neck cancer survivors: a research protocol

Abstract: The study will generate in-depth information on the needs of head and neck cancer survivors, to help healthcare professionals allocate resources better and develop new services, which can be more person-centred, to meet the needs of the these survivors.

Cited by 6 publications

References 21 publications

Content comparison of unmet needs self‐report measures used in patients with head and neck cancer: A systematic review

Content comparison of unmet needs self‐report measures used in patients with head and neck cancer: A systematic review

The Part and Parcel of Doctoral Education: A Gap Analysis between the Importance and Satisfaction of the Experience

Unmet needs of people with Parkinson’s disease: A cross‐sectional study

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