Perceptions of the Relationship Between Mental Health Professionals and Family Caregivers: Has There Been Any Change?

Nicholls, Elizabeth; Pernice, Regina

doi:10.1080/01612840802601408

Cited by 23 publications

(24 citation statements)

References 28 publications

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“…A study from New Zealand (Nicholls & Pernice, 2009) confirmed results from studies in Sweden and the US that relatives had problems collaborating with mental health personnel. The ability to communicate is essential for cooperation to occur.…”

Section: Relatives' Experiences With Mental Health Servicessupporting

confidence: 74%

“…Although some relatives in our study reported that they felt health personnel hindered the relatives' attempts at cooperation, Andrew, Farhall, Ong, and Wadell (2009) found that professionals and caregivers each held the other responsible for achieving collaboration. One study found incongruence between health personnel's intentions to foster a positive collaboration and relatives' negative experiences (Nicholls & Pernice, 2009). The present study shows that relatives experienced that health personnel expected them to follow up on the mentally ill person even without cooperation.…”

Section: Relatives' Experiences With Mental Health Servicesmentioning

confidence: 97%

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“Left Alone with Straining but Inescapable Responsibilities:” Relatives’ Experiences with Mental Health Services

Weimand

Hedelin

Hall‐Lord

et al. 2011

Issues in Mental Health Nursing

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Relatives of persons with severe mental illness experience burden and straining changes in their lives that put their health at risk. Consequently, they need support from health professionals. The aim of this study was to describe experiences from encounters with mental health services as seen from the point of view of relatives of persons with severe mental illness. A qualitative, explorative study was performed, based on two open-ended questions in a cross-sectional study of relatives' health, burden, and sense of coherence (n = 216). A manifest qualitative content analysis was used to describe the relatives' experiences. The findings show that some relatives had experienced positive encounters with health personnel, but the majority of experiences reported were negative. The encounters can be summarized into one main category: "Left Alone with Straining but Inescapable Responsibilities." Two categories emerged: "Striving for Involvement for the Sake of the Mentally Ill Person," and "Wanting Inclusion for the Sake of Oneself." There is a gap between relatives' needs for support in order to handle their own situation in relation to their mentally ill next of kin, and what they actually receive from the mental health services. The findings suggest that health professionals should collaborate with and support these relatives.

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Section: Relatives' Experiences With Mental Health Servicessupporting

confidence: 74%

Section: Relatives' Experiences With Mental Health Servicesmentioning

confidence: 97%

“Left Alone with Straining but Inescapable Responsibilities:” Relatives’ Experiences with Mental Health Services

Weimand

Hedelin

Hall‐Lord

et al. 2011

Issues in Mental Health Nursing

View full text Add to dashboard Cite

show abstract

“…Research concerning the relationship between the family members of people with mental health problems and their professional caregivers has shown several problems indicating dissatisfaction and difficulties in this relationship (Ferriter & Huband, 2003; Nicholls & Pernice, 2009; Rapaport, Bellringer, Pinfold, & Huxley, 2006). Family members report experiences of contacts with personnel that were too brief and infrequent, lack of communication, and not being listened to (Ferriter & Huband, 2003).…”

Section: Introductionmentioning

confidence: 99%

Held to ransom: Parents of self-harming adults describe their lived experience of professional care and caregivers

Åström

Graneheim

2010

International Journal of Qualitative Studies on Health and Well

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The aim of the study was to discover and describe lived experiences of professional care and caregivers among parents of adults who self-harm. Narrative interviews were conducted with six parents of daughters with self-harming behaviours and analysed using a phenomenological hermeneutic approach. The meanings of the parents' narratives of their lived experiences of professional care and caregivers were interpreted as their being involved in ‘limit situations’ comparable to hostage dramas. Several meaningful themes contributed to this interpretation: being trapped in a situation with no escape; being in the prisoner's dock; groping in the dark; and finding glimmers of hope. Parents of daughters who were in care because of self-harming often felt obliged to pay an emotional ransom, which included feelings of being accused, being ‘broken’, being confused, and feeling lost. Moments of peace occurred as welcome breaks offering a short time of rest for the parents. Situations that were understood by the parents and solved in a peaceful way were experienced as a respite and inspired parents with hope for their daughters' recovery.

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“…A commonly recognized difficulty to implement evidence-based research into practice is that implementing new interventions often take much time. They require changes in working routines that are often confronted with resistance and challenges [51]. Translating research evidence into every day work is recognized as difficult [52].…”

Section: Discussionmentioning

confidence: 99%

Worlds apart? A scoping review addressing different stakeholder perspectives on barriers to family involvement in the care for persons with severe mental illness

Landeweer

Molewijk

Hem

et al. 2017

BMC Health Serv Res

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Background: Empirical evidence shows that family involvement (FI) can play a pivotal role in the coping and recovery of persons with severe mental illness (SMI). Nevertheless, various studies demonstrate that FI in mental healthcare services is often not (sufficiently) realized. In order to develop more insights, this scoping review gives an overview of how various stakeholders conceptualize, perceive and experience barriers to FI. Central questions are: 1) What are the main barriers to FI reported by the different key stakeholders (i.e. the persons with SMI, their families and the professionals, and 2) What are the differences and similarities between the various stakeholders' perspectives on these barriers. Methods: A systematic search into primary studies regarding FI was conducted in four databases: Medline/ Pubmed, Cinahl, PsychInfo and Web of Knowledge with the use of a PICO scheme. Thematic analysis focused on stakeholder perspectives (i.e. which stakeholder group reports the barrier) and types of barriers (i.e. which types of barriers are addressed). Results: Thirty three studies were included. The main barriers reported by the stakeholder groups reveal important similarities and differences between the stakeholder groups and were related to: 1) the person with SMI, 2) the family, 3) the professionals, 4) the organization of care and 5) the culture-paradigm. Discussion: Our stakeholder approach elicits the different stakeholders' concepts, presuppositions and experiences of barriers to FI, and gives fundamental insights on how to deal with barriers to FI. The stakeholders differing interpretations and perceptions of the barriers related to FI is closely related to the inherent complexity involved in FI in itself. In order to deal better with these barriers, openly discussing and reflecting upon each other's normative understandings of barriers is needed. Conclusions: Differences in perceptions of barriers to FI can itself be a barrier. To deal with barriers to FI, a dialogical approach on how the different stakeholders perceive and value FI and its barriers is required. Methods such as moral case deliberation or systematic ethics reflections can be useful.

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Perceptions of the Relationship Between Mental Health Professionals and Family Caregivers: Has There Been Any Change?

Cited by 23 publications

References 28 publications

“Left Alone with Straining but Inescapable Responsibilities:” Relatives’ Experiences with Mental Health Services

“Left Alone with Straining but Inescapable Responsibilities:” Relatives’ Experiences with Mental Health Services

Held to ransom: Parents of self-harming adults describe their lived experience of professional care and caregivers

Worlds apart? A scoping review addressing different stakeholder perspectives on barriers to family involvement in the care for persons with severe mental illness

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