Peripheral health workers’ knowledge and experience related to sickle cell disease: an in-depth interview study in six tribal-dominated districts of India

Babu, B.V.; Sridevi, Parikipandla; Surti, Shaily B; Ranjit, Manoranjan; Bhat, Deepa; Sarmah, Jatin; Sudhakar, G.; Sharma, Yogita

doi:10.1007/s12687-022-00578-z

Cited by 6 publications

(3 citation statements)

References 36 publications

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“…Their findings are similar to ours. [ 10 17 ] Haywood et al . [ 18 ] and other studies also revealed that health-care providers’ views and distrust had an impact on the quality of treatment they provided to patients.…”

Section: Discussionmentioning

confidence: 99%

Knowledge and attitudes of nurses toward sickle cell disease patients in Jazan

Alaajmi

Abdeldafie

2022

Journal of Family Medicine and Primary Care

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A BSTRACT Background: In this study, we look at the role of nurses in dealing with sickle cell disease (SCD) patients in Jazan city. Objectives: The aim of this study was to determine the knowledge of nurses and their attitudes toward SCD patients in Jazan hospitals, Saudi Arabia. Materials and Methods: In this cross-sectional, hospital-based study, based on the inclusion and exclusion criteria, we recruited 240 nurses from Prince Mohammed bin Nasser and Jazan general hospitals in Jazan city, Saudi Arabia. We depend on the validity and reliability of the instrument that were done by the author who prepared the tool of the primary research, and data management processing was incorporated. Statistical analysis was performed with the obtained data. Results: In this study, 24.2% of males and 75.8% of females were included. Of these, 40.4% of nurses between 35 and 40 years of age. About 50.4% has 10–15 years of working experience. 5% of the study participants’ salary is equal to 5000 SR which is the lower salary in the group of the participants. Also, 54.6% of nurses had a bachelor’s degree, 32.9% had a diploma, and only 12.5% had a master’s degree. Approximately 65% of nurses were married. Around 52% of nurses knew that SCD patients should have daily intake of 3 l of liquid and 44% of them recommended pop, juice, and broth. Among the sociodemographic variables, gender and income source were associated with attitude and knowledge scales, whereas among nurses’ groups, only marital status was associated ( P < 0.05). Also, among the sociodemographic variables of nurses, There is statistically significant relation between the nurses’ knowledge and attitude and the demographic characteristics such as income levels, marital status and experiences as revealed by P.vale <0.05. In this study, 72.5% of nurses had poor knowledge score levels and 27.5% had good knowledge. Conclusion: This study concludes that the average total knowledge score was 8.41 and only 27.5% of nurses had good knowledge about SCD in Jazan region. This study also suggests increasing educational interventions, which could aid in improving nurses’ knowledge and attitudes toward SCD. It is recommended to conduct a similar study with a large number of professionals in order to generalize the findings.

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Section: Discussionmentioning

confidence: 99%

Knowledge and attitudes of nurses toward sickle cell disease patients in Jazan

Alaajmi

Abdeldafie

2022

Journal of Family Medicine and Primary Care

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“…Currently, SCD patients are cared for in tertiary‐level public hospitals and some private hospitals only and are available to a few who can afford it. And the healthcare workers, mainly those who work closely with people, had inadequate SCD‐related knowledge and poor management practices 13 . The people are also unaware of SCD, and SCD‐related knowledge is inadequate 14 …”

Section: Introductionmentioning

confidence: 99%

“…And the healthcare workers, mainly those who work closely with people, had inadequate SCD-related knowledge and poor management practices. 13 The people are also unaware of SCD, and SCD-related knowledge is inadequate. 14 This situation necessitates developing a model of population screening and management of SCD, including a registry in tribal-dominated primary health centres.…”

Section: Introductionmentioning

confidence: 99%

Indian sickle cell disease registry for surveillance and patient management: Development and implementation

Babu

Sharma

Surti

et al. 2023

Health Planning & Management

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In India, sickle cell disease (SCD) predominantly occurs in indigenous (tribal) people, who are about 104 million. However, screening and diagnosis seldom happen. This situation necessitates developing a comprehensive SCD care model, including a registry. This paper describes the development and implementation of the Indian SCD registry (ISCDR) in six tribal‐dominated districts of India. The ISCDR was created in two components—(i) an Android‐based mobile/tablet application, (ii) a dashboard/admin panel for patients' data management and retrieval. Data capture involves two electronic case report forms (CRF), that is, the primary form (CRF‐1) and the repeat visit form (CRF‐2). CRF‐1 is completed as soon as the patient is found positive and captures the patient's information, including medical history, diagnosis, symptoms, precipitating factors, hospitalisation history and treatment received. Issues related to quality, security and data‐sharing were addressed. After the screening system was functional, ISCDR was initiated. In 12 months, data of 324 SCD patients and 1771 carriers were entered. The study demonstrates the feasibility of establishing an SCD registry in India. It collects systematic longitudinal data on SCD patients, which are essential for programme planning and management. Further, it is feasible to scale up and integrate with other health management databases.

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