Physical performance, quality of life and sexual satisfaction evaluation in adults with cystic fibrosis: An unexplored correlation

Aguiar, Kátia Cristina Alberto; Marson, Fernando Augusto Lima; Gomez, Carla Cristina Souza; Pereira, Mônica Corso; Paschoal, Ilma Aparecida; Ribeiro, Antônio Fernando; Ribeiro, José Dirceu

doi:10.1016/j.rppnen.2017.02.009

Cited by 6 publications

(7 citation statements)

References 28 publications

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“…Despite the implications for QoL, discussions of sexual health between patients with hemophilia and physicians do not appear to be standard 8,9. This problem has also been identified in other patient populations experiencing chronic illness, such as cancer,10 cystic fibrosis,11 lower back pain,12 type 2 diabetes,13 and rheumatoid arthritis 14. In these patients, sexual satisfaction is significantly correlated with QoL but is not routinely evaluated during QoL surveys or at routine doctor visits 15.…”

Section: Discussionmentioning

confidence: 99%

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<p>Hemophilia and sexual health: results from the HERO and B-HERO-S studies</p>

Blamey

Buranahirun

Buzzi³

et al. 2019

PROM

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Background Sexual health plays a primary role in quality of life (QoL) for many people, including those with hemophilia; however, there is little information available about sexual relationships and satisfaction in patients with hemophilia. Methods To address this issue, the Hemophilia Experiences, Results and Opportunities (HERO) and the Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B-HERO-S) studies included questions from the Male Sexual Health Questionnaire (MSHQ). Results Although these data were not statistically analyzed for comparisons between the 3 populations (HERO, HERO US only, and B-HERO-S), in general, participants in the HERO survey appeared to be more satisfied with their sexual relationship than participants in the B-HERO-S survey. In addition, many patients, especially those outside the United States, reported that they had not discussed sexual health with their doctor or other members of the hemophilia treatment center team. While the topic of sexual health has been infrequently explored in men with hemophilia, this is the first time it has been investigated in women with hemophilia. Conclusion The results of these studies demonstrate that the impact of hemophilia extends to intimacy and suggest the need for large-scale studies in additional countries to explore further the factors associated with sexual health issues in people with hemophilia.

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Section: Discussionmentioning

confidence: 99%

“…In these patients, sexual satisfaction is significantly correlated with QoL but is not routinely evaluated during QoL surveys or at routine doctor visits 15. Therefore, it has been widely suggested that sexual health be evaluated in patients with chronic illness on a regular basis 10,11,13–15…”

Section: Discussionmentioning

confidence: 99%

<p>Hemophilia and sexual health: results from the HERO and B-HERO-S studies</p>

Blamey

Buranahirun

Buzzi³

et al. 2019

PROM

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“…Quality of life as a multidimensional variable is directly correlated with a variety of positive variables such as marital satisfaction (27), sexual satisfaction (28), and family relationships (29).…”

Section: Discussionmentioning

confidence: 99%

The Effect of Skill-based Sexual Enhancement Counseling Program in Quality of life in Women with Multiple Sclerosis–a quasi-experimental study

Sayari

Vakilian

Khalajinia

et al. 2020

Preprint

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Background: Multiple sclerosis (MS) is one of the world’s most common neurologic disorders and the leading cause of neurologic disability in young adults. This study aimed to investigate skill-based sexual enhancement counseling on Quality of Life (QLI) of women with Multiple Sclerosis.Methods: the present study is a quasi-experimental design with two groups. Forty-two patients with multiple sclerosis and their spouses (N=88) voluntarily participated in this study based on the inclusion and exclusion criteria. After obtaining the written consent forms, the couples were randomly assigned in two groups. The subjects in the intervention group (N=22 couples) received the skill-based sexual enhancement counseling program in six sessions (each for 90 minutes). The control group just received routine medical procedure during this period. Both groups completed three stages of pretest-posttest, and the standard MSQOL54 questionnaire 3 months later. Data were analyzed by SPSS-20 using descriptive and inferential statistics (repeated measures ANOVA, chi-square, Friedman and t-test).Results: The results showed that the participants' overall quality of life in the intervention group in pretest was 55.32±9.140 which increased to 73.89± 13.39 in posttest and to 92.59±20.45, 3 months later. Also, the physical quality of life showed a significant difference between the two groups 3 months after the intervention (P <0.05). There was a significant difference between the two groups in psychological quality of life, too. The subscales of physical and mental QLI such as sexual satisfaction, sexual function, emotional wellbeing, social function and energy in post-test and follow-up were significantly different (P<0.05).Conclusions: According to the findings, skill-based sexual enhancement counseling program is effective in quality of life enhancement. Therefore, it is recommended to health care providers to use enhancement program alongside the other rehabilitation and medical services to improve the patients' quality of life.

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“…As alterações no domínio físico são causadas pela deterioração da função de órgãos como pulmões, pâncreas, fígado, entre outros (AGUIAR et al, 2017). Seguindo o domínio físico, os domínios com escores insatisfatórios foram o social e o relacionado ao corpo, talvez pela necessidade de internações referentes às agudizações que impactam o papel da criança na sociedade (AGUIAR et al, 2017). Tal dado revela baixa satisfação com os domínios que podem promover o bem-estar das crianças e o grau de satisfação sobre sua capacidade funcional.…”

Section: Discussionunclassified

Percepção da qualidade de vida em crianças com fibrose cística e seus cuidadores: perspectivas diferentes

Santana

Chaves

Campos

et al. 2018

R. bras. Qual. Vida

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OBJETIVO: Avaliar a percepção da qualidade de vida (QV) em crianças com fibrose cística (FC) e seus cuidadores e comparar os resultados entre esses grupos.MÉTODOS: Estudo transversal, descritivo, onde foram incluídos crianças e adolescentes de 6 a 13 anos de idade com diagnóstico confirmado de FC. Aqueles com condição neurológica que impossibilitasse o preenchimento do questionário de QV foram excluídos. A avaliação da QV foi realizada através do Questionário de FC, considerando o escore total e o escore de cada domínio, sendo eles: físico, imagem, digestivo, respiratório, emocional, social, alimentação, tratamento, vitalidade, saúde, papel social e peso. Para comparar o resultado entre os dois grupos, foi realizado o teste de Mann-Whitney.RESULTADOS: Participaram do estudo 24 crianças com 10,86±1,9 anos, 29,20% do gênero masculino, 47,83% colonizadas por Pseudomonas aeruginosa e 26,09% homozigotos para a mutação F508del. Ao avaliar a percepção da QV pelas crianças, os domínios alimentação e tratamento alcançaram os valores mais altos. Pelos cuidadores, o domínio físico foi o mais pontuado. O valor alcançado pelos pacientes e cuidadores no escore total foi de 73,94% e 73,86% do previsto, respectivamente. Ao avaliar a concordância entre os grupos, só houve diferença estatisticamente significante nos domínios emocional e tratamento.CONCLUSÕES: As diferentes percepções encontradas apontam a necessidade de perceber que cuidadores e pacientes vivenciam a doença de forma diferente no que se refere aos domínios emocional e tratamento. Este entendimento é importante para a realização do tratamento, visto que o mesmo impacta a QV.

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Physical performance, quality of life and sexual satisfaction evaluation in adults with cystic fibrosis: An unexplored correlation

Abstract: There was a correlation between CFQ, SSQ and 6MWT in CF. Finally; we believe that QOL surveys should assess the domain "sexuality" as well as physical performance tests.

Cited by 6 publications

References 28 publications

<p>Hemophilia and sexual health: results from the HERO and B-HERO-S studies</p>

<p>Hemophilia and sexual health: results from the HERO and B-HERO-S studies</p>

The Effect of Skill-based Sexual Enhancement Counseling Program in Quality of life in Women with Multiple Sclerosis–a quasi-experimental study

Percepção da qualidade de vida em crianças com fibrose cística e seus cuidadores: perspectivas diferentes

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