Physiotherapy and occupational therapy in the hypermobile child

Maillard, Susan; Payne, Julie

doi:10.1016/b978-0-7020-3005-5.00015-x

Cited by 4 publications

(2 citation statements)

References 67 publications

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“…A prerequisite of being able to provide support for patients is that primary-care practitioners are able to recognize and diagnose JHS and to refer patients to JHS-trained specialists. Without a correct diagnosis, unsuitable treatments or information may be given, which may exacerbate symptoms ( 24 ). Currently, primary-care practitioners and other health professionals such as physiotherapists do not routinely receive training related to JHS ( 9 ) and the validity of diagnostic criteria (such as the Beighton score) has recently been questioned ( 25 ).…”

Section: Discussionmentioning

confidence: 99%

Living with joint hypermobility syndrome: patient experiences of diagnosis, referral and self-care

et al. 2015

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Background.Musculoskeletal problems are common reasons for seeking primary health care. It has been suggested that many people with ‘everyday’ non-inflammatory musculoskeletal problems may have undiagnosed joint hypermobility syndrome (JHS), a complex multi-systemic condition. JHS is characterized by joint laxity, pain, fatigue and a wide range of other symptoms. Physiotherapy is usually the preferred treatment option for JHS, although diagnosis can be difficult. The lived experience of those with JHS requires investigation.Objective.The aim of the study was to examine patients’ lived experience of JHS, their views and experiences of JHS diagnosis and management.Methods.Focus groups in four locations in the UK were convened, involving 25 participants with a prior diagnosis of JHS. The focus groups were audio recorded, fully transcribed and analysed using the constant comparative method to inductively derive a thematic account of the data.Results.Pain, fatigue, proprioception difficulties and repeated cycles of injury were among the most challenging features of living with JHS. Participants perceived a lack of awareness of JHS from health professionals and more widely in society and described how diagnosis and access to appropriate health-care services was often slow and convoluted. Education for patients and health professionals was considered to be essential.Conclusions.Timely diagnosis, raising awareness and access to health professionals who understand JHS may be particularly instrumental in helping to ameliorate symptoms and help patients to self-manage their condition. Physiotherapists and other health professionals should receive training to provide biopsychosocial support for people with this condition.

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Section: Discussionmentioning

confidence: 99%

Living with joint hypermobility syndrome: patient experiences of diagnosis, referral and self-care

et al. 2015

View full text Add to dashboard Cite

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“…A prerequisite of being able to provide support for patients is that primary-care practitioners are able to recognize and diagnose JHS and to refer patients to JHS-trained specialists. Without a correct diagnosis, unsuitable treatments or information may be given, which may exacerbate symptoms (24). Currently, primary-care practitioners and other health professionals such as physiotherapists do not routinely receive training related to JHS (9) and the validity of diagnostic criteria (such as the Beighton score) has recently been questioned (25).…”

Section: Discussionmentioning

confidence: 99%

Living with joint hypermobility syndrome. Patient experiences of diagnosis, referral and self-care

et al. 2015

View full text Add to dashboard Cite

Background. Musculoskeletal problems are common reasons for seeking primary health care. It has been suggested that many people with 'everyday' non-inflammatory musculoskeletal problems may have undiagnosed joint hypermobility syndrome (JHS), a complex multi-systemic condition. JHS is characterized by joint laxity, pain, fatigue and a wide range of other symptoms. Physiotherapy is usually the preferred treatment option for JHS, although diagnosis can be difficult. The lived experience of those with JHS requires investigation. Objective. The aim of the study was to examine patients' lived experience of JHS, their views and experiences of JHS diagnosis and management. Methods. Focus groups in four locations in the UK were convened, involving 25 participants with a prior diagnosis of JHS. The focus groups were audio recorded, fully transcribed and analysed using the constant comparative method to inductively derive a thematic account of the data. Results. Pain, fatigue, proprioception difficulties and repeated cycles of injury were among the most challenging features of living with JHS. Participants perceived a lack of awareness of JHS from health professionals and more widely in society and described how diagnosis and access to appropriate health-care services was often slow and convoluted. Education for patients and health professionals was considered to be essential. Conclusions. Timely diagnosis, raising awareness and access to health professionals who understand JHS may be particularly instrumental in helping to ameliorate symptoms and help patients to self-manage their condition. Physiotherapists and other health professionals should receive training to provide biopsychosocial support for people with this condition.

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Joint hypermobility syndrome

Ross¹,

Grahame

2011

BMJ

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Physiotherapy and occupational therapy in the hypermobile child

Cited by 4 publications

References 67 publications

Living with joint hypermobility syndrome: patient experiences of diagnosis, referral and self-care

Living with joint hypermobility syndrome: patient experiences of diagnosis, referral and self-care

Living with joint hypermobility syndrome. Patient experiences of diagnosis, referral and self-care

Joint hypermobility syndrome

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