Pilotstudie zur Erfassung von Schlafstörungen bei Erblindung oder relevanter Sehbeeinträchtigung

Dirks, Christina; Grünewald, D; Young, Peter; Heidbreder, Anna

doi:10.1007/s00347-018-0723-z

Cited by 4 publications

(2 citation statements)

References 12 publications

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“…In the present survey, half respondents suffered from sleep disorders (falling asleep, sleep maintenance, and daytime sleepiness), more likely those affected by visual disabilities. Sleep disorders significantly increased during lock-down [23], particularly among people with visual impairments, probably for a reduced perception of light, which plays a fundamental role in the circadian rhythm [24]. Recent studies reported that the prevalence of insomnia and hypersomnia is around 40% and continuously increasing among individuals fearing SARS-CoV-2 contagion and social isolation [25].…”

Section: Discussionmentioning

confidence: 99%

The Impact of COVID-19 on Individuals with Hearing and Visual Disabilities during the First Pandemic Wave in Italy

Bubbico¹,

Bellizzi²,

Ferlito

et al. 2021

IJERPH

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Background. The COVID-19 pandemic has imposed radical behavioral and social changes in the general population, significantly impacting the lives of individuals affected by disabilities. The aim of this study was to investigate the impact of COVID-19 on noninstitutionalized subjects with sensorineural disabilities during the first COVID-19 wave in Italy. Methods. A 39-item online national survey was disseminated from 1 April 2020 to 31 June 2020 via social media throughout Italy to communities of individuals with proven severe sensorineural disabilities, affiliated to five national patient associations. The survey collected extensive information on the socio-demographic profile, health, everyday activities, and lifestyle of individuals with hearing and visual disabilities. Results. One hundred and sixty-three respondents with hearing (66.9%) and visual (33.1%) disabilities returned a usable questionnaire. The mean age of interviewees was 38.4 ± 20.2 years and 56.3% of them were females. Despite the vast majority of respondents (77.9%) perceiving their health status as unchanged (68.8% of interviewees with hearing deficits vs. 96.3% of those with visual impairments), about half the interviewees reported sleep disorders during lock-down, more likely those with visual deficits. Remote services were seemingly more effective for business than school activities were. Furthermore, although just 18.8% of respondents rated remote rehabilitation care unsatisfactory, only 12.8% of interviewees felt supported by health and social services. The vast majority of respondents were concerned about the future and the risk of SARS-CoV-2 contagion, particularly individuals with hearing impairments. Among the various risk mitigation measures, facemasks caused the greatest discomfort due to communication barriers, particularly among interviewees affected by hearing disabilities (92.2% vs. 45.7%). The most common request (46.5%) of respondents to reduce the inconveniences of country lock-down was improving the access to and delivery of health and social services (19.3%), followed by the use of transparent masks (17.5%). Conclusions. Although health protection measures such as face masks and social distancing play a key role in preventing and controlling the spread of SARS-CoV-2, the unmet needs of disabled individuals should be carefully considered, especially those affected by sensory disabilities. Tailored access to health and social services for individuals affected by sensorineural disabilities should be implemented. Additional actions should include the use of face shields as a valid alternative to reduce communication barriers linked to hearing-impairment, as well as the improvement of remote services, especially distance learning at school.

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Section: Discussionmentioning

confidence: 99%

The Impact of COVID-19 on Individuals with Hearing and Visual Disabilities during the First Pandemic Wave in Italy

Bubbico¹,

Bellizzi²,

Ferlito

et al. 2021

IJERPH

View full text Add to dashboard Cite

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“…Aus Studien, welche nur für die USA durchgeführt worden sind, geht weiterhin hervor, dass schätzungsweise 50 %-70 % der blinden Menschen an einer Non-24 leidet [12]. Erste epidemiologische Daten zur Häufigkeit der Non-24 für Deutschland ergaben, dass in einem Kollektiv von 111 blinden und sehbehinderten Menschen 72,2 % der blinden Probanden nach WHO-Stufe 5 (26/36) und 21,3 % der sehbehinderten Probanden nach WHO Stufe 1-4 (16/75) Hinweise für das Vorliegen einer Non-24 zeigten [13].…”

Section: Definitionunclassified

Non-24h-Schlaf-Wach-Rhythmusstörung bei blinden Patienten

Dirks¹,

Young²,

Heidbreder³

2019

Nervenheilkunde

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ZusammenfassungSchlafstörungen sind bei blinden und sehbehinderten Patienten ein häufig unterschätztes Problem. Hierbei kommt der Non-24h-Schlaf-Wach-Rhythmusstörung (Non-24) in der Gruppe der Patienten ohne Lichtwahrnehmung eine besondere Bedeutung zu. Durch den Wegfall des stärksten externen Taktgebers Tageslicht kommt es zu einer Desynchronisation der endogenen circadianen Rhythmik, welche über die Masterclock im suprachiasmatischen Nucleus generiert wird, mit dem externen 24h-Tag-Nacht-Rhythmus. Die Ausschüttung von Melatonin, als wichtigster Botenstoff in der Regulation des Schlaf-Wach-Rhythmus, wird durch den Wegfall der Information über Helligkeit und Dunkelheit nicht mehr extern gesteuert und folgt allein der endogenen Rhythmik, welche häufig nicht exakt 24 Stunden entspricht, sondern bei den meisten Menschen eine längere Periodik aufweist. Die Symptome einer solchen fortlaufenden Verschiebung des Schlaf-Wach-Rhythmus beinhalten zyklisch wiederkehrende Phasen mit insomnischen Beschwerden und Tagesschläfrigkeit, welche mit symptomfreien Phasen alternieren. Die Diagnostik der Non-24 umfasst neben einer ausführlichen schlafspezifischen Anamnese auch die Durchführung einer Aktimetrie für einen Zeitraum von mindestens 2 Wochen und das Führen von Schlafprotokollen. Zudem kann die Messung von Biomarkern z. B. des Melatonins, im Serum oder Speichel, oder dessen Abbauprodukt zur Sicherung einer Diagnose sinnvoll sein.Als Therapieoptionen stehen nicht medikamentöse und medikamentöse Maßnahmen zur Verfügung, welche als Kombinationstherapie angewandt werden sollten. Aktuell ist der Melatonin-Rezeptoragonist Tasimelteon das einzige zugelassen Medikament zur Behandlung der Non-24 bei blinden Menschen.

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Physical activity and visual difficulties in 36 low- and middle-income countries

Smıth

Pardhan

Gorely

et al. 2021

Eye

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Background:Data on the association between visual difficulty and physical activity (PA) from low-and middle-income countries (LMICs) are scarce. Thus, the aim of the study was to investigate the association between visual difficulty and PA among adults from 36 LMICs, and to assess the mediators in this association. Methods:Cross-sectional, community-based, predominantly nationally representative data from the World Health Survey were analysed. The final sample included 199,110 individuals aged ≥18 years [mean (SD) age 38.6 (16.1) years; 49.4% males]. Visual difficulty referred to having severe/extreme difficulties in seeing and recognizing a person that the participant knows across the road. Low PA was defined as not complying with PA recommendations of 150 min of moderate-vigorous PA per week. Multivariable logistic regression, meta-analysis, and mediation analysis were conducted to assess associations. Results:Meta-analysis based on country-wise multivariable logistic regression analysis showed that overall, visual difficulty is associated with a 1.53 (95% CI = 1.38-1.71) times higher odds for low PA. Particularly strong associations were observed in males (OR = 1.72; 95% CI = 1.45-2.05) and adults aged ≥65 years (OR = 1.95; 95% CI = 1.67-2.29). Interpersonal activities, cognition, and sleep/energy explained >10% of the association between visual difficulty and low PA. Conclusions:In conclusion, we found evidence that especially in the case of males and older adults with visual difficulties in LMICs, there were low levels of engagement with PA. Addressing issues such as interpersonal activities, cognition, and sleep/energy in people with visual difficulties may increase levels of PA.

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Pilotstudie zur Erfassung von Schlafstörungen bei Erblindung oder relevanter Sehbeeinträchtigung

Cited by 4 publications

References 12 publications

The Impact of COVID-19 on Individuals with Hearing and Visual Disabilities during the First Pandemic Wave in Italy

The Impact of COVID-19 on Individuals with Hearing and Visual Disabilities during the First Pandemic Wave in Italy

Non-24h-Schlaf-Wach-Rhythmusstörung bei blinden Patienten

Physical activity and visual difficulties in 36 low- and middle-income countries

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