Population-based preference weights for the Adult Social Care Outcomes Toolkit (ASCOT) for service users for Austria: Findings from a best-worst experiment

Hajji, Assma; Trukeschitz, Birgit; Malley, Juliette; Batchelder, Laurie; Saloniki, Eirini-Christina; Linnosmaa, Ismo; Lu, Hui

doi:10.1016/j.socscimed.2020.112792

Cited by 6 publications

(12 citation statements)

References 25 publications

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“…For each domain of ASCOT, there is one item with four response options, relating to four conceptual outcome states (ideal state, no unmet needs, some unmet needs and high unmet needs). ASCOT has been used extensively to assess care related outcomes in community dwelling service using populations in the UK (27)(28)(29), Europe (30)(31)(32) and more recently in the Australian older population (33)(34)(35)(36). Despite its high validity and reliability, barriers exist to engaging sections of the aged and disabled cohort to report on their own outcomes (37,38).…”

Section: Assessment Of Current Social Care Related Quality Of Life (Smentioning

confidence: 99%

WITHDRAWN: Social Research Methods to Support Involvement of Community Dwelling Older Adults With Complex Needs in Assessment of Their Care Related Quality of Life

Phillipson

Towers

Caiels

et al. 2020

Preprint

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Background: Determining whether the needs and preferences of older adults are being met by new ‘ageing in place’ and ‘consumer directed’ care’ policies presents methodological challenges.Methods: This study explored how a cascading methodology, offering different supports as needed, promoted assessment of care related quality of life that was inclusive of home care services users with cognitive and physical disabilities. Multiple tools from the Adult Social Care Outcomes Toolkit (ASCOT) were tested in a sample of older adults living at home in one geographic region in NSW (Australia). Results: Both physical assistance, emotional support and an ‘Easy Read’ format facilitated the inclusion of those with greater physical and cognitive impairments. Importantly, their inclusion identified their greater unmet needs in seven out of eight quality of life domains. Conclusion: The adoption of more inclusive social research methodologies is critical to understanding if shifts in aged and social care policies support quality of life for the most vulnerable.

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Section: Assessment Of Current Social Care Related Quality Of Life (Smentioning

confidence: 99%

WITHDRAWN: Social Research Methods to Support Involvement of Community Dwelling Older Adults With Complex Needs in Assessment of Their Care Related Quality of Life

Phillipson

Towers

Caiels

et al. 2020

Preprint

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“…The Finnish respondents placed both highest and lowest values to attribute-levels of the higher-order control and occupation attributes. A comparison of the Finnish preference weights for the ASCOT instrument to the English, 3 Austrian, 17 and Japanese weights 73 also suggests that the control and occupation attributes were mostly valued ( Supplemental Tables S4 ). Although the estimated models had different scale factors, 74 we can study the relative size of the differences in SCRQoL by using one of the attribute-levels as a common denominator.…”

Section: Discussionmentioning

confidence: 99%

“…This limitation also exists in other studies. 3 , 17 Nevertheless, we adjusted the preference weights as in the English and Austrian preference studies, 3 , 17 and computed the standard errors of the adjusted preference weights. Second, regardless of the exclusion of those with short completion times before the end of the data collection, the used survey administration method did not allow us to observe internal and external incentives or impetuses during the experiment, such as respondent behavior, burden and engagement, or changes in the task environment.…”

Section: Discussionmentioning

confidence: 99%

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Do You Prefer Safety to Social Participation? Finnish Population-Based Preference Weights for the Adult Social Care Outcomes Toolkit (ASCOT) for Service Users

Nguyen

Jokimäki

Linnosmaa

et al. 2021

MDM Policy & Practice

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Introduction. The Adult Social Care Outcomes Toolkit (ASCOT) was developed in England to measure people’s social care–related quality of life (SCRQoL). Objectives. The aim of this article is to estimate preference weights for the Finnish ASCOT for service users (ASCOT). In addition, we tested for learning and fatigue effects in the choice experiment used to elicit the preference weights. Methods. The analysis data ( n = 1000 individuals) were obtained from an online survey sample of the Finnish adult general population using gender, age, and region as quotas. The questionnaire included a best-worst scaling (BWS) experiment using ASCOT. Each respondent sequentially selected four alternatives (best, worst; second-best, second-worst) for eight BWS tasks ( n = 32,000 choice observations). A scale multinomial logit model was used to estimate the preference parameters and to test for fatigue and learning. Results. The most and least preferred attribute-levels were “I have as much control over my daily life as I want” and “I have no control over my daily life.” The preference weights were not on a cardinal scale. The ordering effect was related to the second-best choices. Learning effect was in the last four tasks. Conclusions. This study has developed a set of preference weights for the ASCOT instrument in Finland, which can be used for investigating outcomes of social care interventions on adult populations. The learning effect calls for the development of study designs that reduce possible bias relating to preference uncertainty at the beginning of sequential BWS tasks. It also supports the adaptation of a modelling strategy in which the sequence of tasks is explicitly modelled as a scale factor.

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“…In addition to the raw score, a preference-weighted ASCOT score reflects the relative importance of outcomes in the individual QoL-domains in a country. While preference-weights for other German-speaking countries remain to be elicited, preference-weighted ASCOT scores for Austria can be generated by using the population-based weights [ 16 ].…”

Section: Methodsmentioning

confidence: 99%

Cross-cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for service users (German ASCOT)

Trukeschitz

Litschauer

Hajji

et al. 2020

Health Qual Life Outcomes

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Background There has been considerable interest in using the Adult Social Care Outcomes Toolkit (ASCOT), developed in England, to measure quality-of-life outcomes of long-term care (LTC-QoL) service provision in national and cross-national studies. Objectives The aim of this study was to translate and culturally adapt the original ASCOT service user measure into German and to evaluate its content and construct validity in Austrian home care service users. Methods The translation and cultural adaptation process followed the ISPOR TCA guidelines. We used qualitative data from six cognitive debriefing interviews with Austrian recipients of home care services to assess linguistic and content validity. In addition, cross-sectional survey data (n = 633) were used to evaluate construct validity by testing hypothesized associations established in a previous study for the original English ASCOT service user instrument. Results Cognitive debriefing interviews confirmed that the German adaptation of the ASCOT service user instrument was understood as intended, although two domains (‘Control over daily life’ and ‘Dignity’) and selected phrases of the response options were challenging to translate into German. All ASCOT domains were statistically significantly associated with related constructs and sensitive to service user sub-group differences. Conclusions We found good evidence for a valid cross-cultural adaptation of the German version of ASCOT for service users. The analysis also supports the construct validity of the translated instrument and its use in evaluations of QoL-effects of LTC service provision in German-speaking countries. Further research on the reliability and feasibility in different care settings is encouraged.

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Population-based preference weights for the Adult Social Care Outcomes Toolkit (ASCOT) for service users for Austria: Findings from a best-worst experiment

Cited by 6 publications

References 25 publications

WITHDRAWN: Social Research Methods to Support Involvement of Community Dwelling Older Adults With Complex Needs in Assessment of Their Care Related Quality of Life

WITHDRAWN: Social Research Methods to Support Involvement of Community Dwelling Older Adults With Complex Needs in Assessment of Their Care Related Quality of Life

Do You Prefer Safety to Social Participation? Finnish Population-Based Preference Weights for the Adult Social Care Outcomes Toolkit (ASCOT) for Service Users

Cross-cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for service users (German ASCOT)

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