Population genetic screening programmes: technical, social and ethical issues

Aymé, Ségolène; Bobrow, Martin; Evers‐Kiebooms, Gerry; Farndon, Peter; Kääriäinen, Helena; Kristoffersson, Ulf; Pembrey, M. S.; Raeburn, Sandy; Schinzel, Albert; Schmidtke, J.; Kate, Leo ten; Tranebjærg, Lisbeth

doi:10.1038/sj.ejhg.5201105

Cited by 7 publications

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“…Plus, it seems clear that the purpose of the research and the source of the genetic material affects the nature of the identification used in a given research project. In fact, The Public and Professional Policy Committee of the European Society of Human Genetics (PPPC) recommends: different approaches to ownership of samples based on the character of the collection (Ayme, 2003), and that the various approaches to ownership should be subjected to multiparty contracts rather than defined in legislation. So, in spite of the possible differences concerning technical design it is possible to acknowledge the following common features:…”

Section: The Ethical Dimensions Of Biotechnologymentioning

confidence: 99%

The Human Centred Approach to Bionanotechnology in Telemedicine

Costa

Silva

Handbook of Research on Developments in E-Health and Telemedicine

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The information and communication technologies (ICTs) field is expanding rapidly and affecting several domains of mankind, as for example healthcare. Therefore, ICTs can act as an enabler or a provider these fields through telemedicine. Consequently, promoting an human centred and ethical approach is the primary challenge concerning ICT healthcare innovation. Simultaneously, can we deter- or at least discourage- innovation that serves malicious ends, or that causes serious threats to humanity? So, the purpose of this contribution is to discuss the relationship between ICT evolution and healthcare, particularly concerning a specific correlated research fields: bionanotechnology and telemedicine. For that, the authors will focus in its applications, and sort of ethical and moral dilemmas encompasses.

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Section: The Ethical Dimensions Of Biotechnologymentioning

confidence: 99%