Positive parent/adult child relationships: Impact of severe mental illness and caregiving burden.

Pickett, Stephanie; Cook, Judith Α.; Cohler, Bertram J.; Solomon, Mardi L.

doi:10.1037/h0080225

Cited by 58 publications

(66 citation statements)

References 26 publications

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“…Random regression models were chosen to address longitudinal data concerns, such as state dependency or serial correlation among repeated observations within individual participants, missing observations because not all participants completed all interviews, individual heterogeneity or varying propensities toward the outcomes of interest because of participants' predispositions and other unobserved influences, and the inclusion of fixed covariates (educational level, marital status, diagnosis, illness length, and lifetime inpatient admissions). 39 Covariates were chosen based on prior studies 11,13,38,40 that suggest that these family and ill relative demographic and clinical characteristics may affect psychological well-being and familial relationship assessments.…”

Section: Data Analysesmentioning

confidence: 99%

Psychological Well-being and Relationship Outcomes in a Randomized Study of Family-Led Education

Pickett-Schenk¹,

Cook²,

Steigman³

et al. 2006

Arch Gen Psychiatry

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Context: Family members of adults with mental illness often experience emotional distress and strained relationships.Objective: To test the effectiveness of a family-led educational intervention, the Journey of Hope, in improving participants' psychological well-being and relationships with their ill relatives.Design and Setting: A randomized controlled trial using a waiting list design was conducted in the community in 3 southeastern Louisiana cities.Participants: A total of 462 family members of adults with mental illness participated in the study, with 231 randomly assigned to immediate receipt of the Journey of Hope course and 231 assigned to a 9-month course waiting list.Intervention: The Journey of Hope intervention consisted of 8 modules of education on the etiology and treatment of mental illness, problem-solving and communication skills training, and family support. Main Outcome Measures:Participants' psychological well-being and relationships with their ill relatives were assessed at study enrollment, 3 months after enrollment (at course termination), and 8 months after enrollment (6 months after course termination). Mixed-effects random regression analysis was used to predict the likelihood of decreased depressive symptoms, increased vitality, and overall mental health, and improved relationship ratings.Results: Intervention group participants reported fewer depressive symptoms, greater emotional role functioning and vitality, and fewer negative views of their relationships with their ill relatives compared with control group participants. These improved outcomes were maintained over time and were significant (PϽ.05 for all) even when controlling for participant demographic and relative clinical characteristics. Conclusion:Results show that family-led educational interventions are effective in improving participants' psychological well-being and views of their relationships with ill relatives.

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Section: Data Analysesmentioning

confidence: 99%

Psychological Well-being and Relationship Outcomes in a Randomized Study of Family-Led Education

Pickett-Schenk¹,

Cook²,

Steigman³

et al. 2006

Arch Gen Psychiatry

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“…Caregivers of female patients in a study, reported more contentment and less experience of problems than reported by the caregivers of the male patients. Younger patients had more conflict with parents and a more negative perception by their parents when compared to older cases (9). In another study, burden was assessed to be higher among mothers of the patients, older caregivers, those with lower educational level, caregivers of younger patients and unemployed individuals (10).…”

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confidence: 99%

Burden and burden-related features in caregivers of schizophrenia patients

Ozlu¹,

Yıldız²,

Aker³

2015

Dusunen Adam

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Burden and burden-related features in caregivers of schizophrenia patientsObjective: Burden, social support and coping methods in caregivers of patients and the relationship between these variables were cross-sectionally evaluated in this study.Method: Demographic form, Zarit Caregiver Burden Scale, Multidimensional Scale of Perceived Social Support and Ways of Coping Inventory were administered to the caregivers. The correlation of specified load levels with respect to the disease and characteristics of the caregivers were investigated. Results:The mean burden score of caregivers participated in the study was 60.45 points. By gender, burden in female caregivers was higher than men. The burden of employed caregivers was higher than unemployed.Statistically significant negative correlation between monthly income and burden was found. Helplessness and fatalistic attitudes were statistically correlated with burden. Conclusion:Caregivers who are not able to use effective coping styles have heavier burdens. Caregivers using nonfunctional coping styles, should be helped to change their attitudes.Key words: Burden, caregivers, coping strategies, social support, schizophrenia patients Anahtar kelimeler: Yük, bakıcılar, başa çıkma stratejileri, sosyal destek, şizofreni hastaları ÖZET Şizofreni hastalarının bakımıyla ilgilenenlerde yük ve ilişkili özellikler

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“…Uma hipótese explicativa para os baixos índices de sobrecarga encontrados neste estudo, defendida por alguns autores (Green, 2006;Pickett, Cook, Cohler & Solomon, 1997;Westphal et al, 2005), seria a percepção, não somente de uma sobrecarga, mas, principalmente, de uma gratificação no cuidar, suplantando os prejuízos advindos desta função.…”

Section: Discussionunclassified

Sobrecarga emocional e qualidade de vida em mães de crianças com erros inatos do metabolismo

Pontes-Fernandes

Petean

2011

Psic.: Teor. e Pesq.

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RESUMO -Este estudo objetivou investigar a sobrecarga emocional e a percepção da própria qualidade de vida em mães de crianças com Erros Inatos do Metabolismo (EIM). Participaram 21 mães de crianças com EIM, com comprometimento neurológico grave, de ambos os sexos, com idade até dez anos. A coleta de dados foi realizada por meio dos instrumentos WHOQOL-Bref e Burden Interview. Os dados foram analisados estatisticamente e comparados. Foi observado que os cuidados com a criança com EIM interferem negativamente na qualidade de vida das mães, sobretudo no domínio relações sociais, acarretando uma sobrecarga emocional, de tal forma que quanto maior a sobrecarga, mais baixa a percepção sobre a própria qualidade de vida.Palavras-chave: doença crônica, sobrecarga emocional, qualidade de vida Emotional Burden and Quality of Life of Mothers with Children Having Inborn Errors of MetabolismABSTRACT -This study aims to investigate the perception of women having children with Inborn Errors of Metabolism (IEM) about the experienced emotional burden and their own quality of life. The participants were 21 mothers of children with IEM, with serious neurological injury. The children were of both sexes, up to ten years old. Data collection was accomplished through instruments WHOQOL-Bref and Burden Interview. The data were statistically analyzed and compared. The care of children with IEM interfere in a negative way in the quality of life of the mother, especially in the domain of their social relations, resulting in an emotional burden; the greater the burden, the lower the perceived quality of life.

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Positive parent/adult child relationships: Impact of severe mental illness and caregiving burden.

Cited by 58 publications

References 26 publications

Psychological Well-being and Relationship Outcomes in a Randomized Study of Family-Led Education

Psychological Well-being and Relationship Outcomes in a Randomized Study of Family-Led Education

Burden and burden-related features in caregivers of schizophrenia patients

Sobrecarga emocional e qualidade de vida em mães de crianças com erros inatos do metabolismo

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