Positive perceptions and perceived control in families with children with intellectual disabilities: relationship to family quality of life

Ferrer, Fina; Vilaseca, Rosa; Olmos, Joan Guàrdia

doi:10.1007/s11135-016-0318-1

Cited by 26 publications

(23 citation statements)

References 54 publications

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“…The influence of family income will be discussed first and then the influence of the family type on FQOL. Similar to other studies (Ferrer, Vilaseca, & Olmos, 2016;Gardiner & Iarocci, 2015;Wang et al, 2004), the current study also found that the family income had a direct, positive relationship with the families' perceived overall FQOL. However, in the current study, it was the family's appraisal of this income that revealed the more interesting finding.…”

Section: Discussionsupporting

confidence: 90%

Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder

Schlebusch

Dada

Samuels

2017

J Autism Dev Disord

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This article describes the family quality of life among families who are raising a young child with autism spectrum disorder. Survey research was conducted with 180 families of children with autism spectrum disorder who were receiving disability-related services in the Gauteng province of South Africa. The principle measure used was the Beach Center Family Quality of Life Scale to assess five subdomains: family interaction, parenting, emotional well-being, material/physical well-being, and disability-related support. Results indicated that families felt the most satisfied with disability-related support and the least satisfied with the family's emotional well-being. Family income, family type, and the severity level of autism were significantly associated with how satisfied families felt about their quality of life.

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Section: Discussionsupporting

confidence: 90%

Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder

Schlebusch

Dada

Samuels

2017

J Autism Dev Disord

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“…Future research on mothers and fathers with a child with an ID should include recorded observations of their interactions at older ages and the analysis of the possible continuity of patterns of mother– and father–child interactions, and their links to children’s developmental outcomes in the early school years. Information regarding the long-term impact of parental psychological well-being on the development of their children would also be interesting, given that parental distress decreases as the child grows older (Ferrer et al, 2017).…”

Section: Discussionmentioning

confidence: 99%

Demographic and Parental Factors Associated With Developmental Outcomes in Children With Intellectual Disabilities

et al. 2019

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The aim of the study was to examine the relation between demographic variables, parental characteristics, and cognitive, language and motor skills development in children with intellectual disabilities (ID). A sample of 89 children with ID, aged 20–47 months, completed the Bayley Scales of Infant Development to measure cognitive, motor, and linguistic development. Parents were administered questionnaires about demographic information and parental anxiety, depression, parental stress, conjugality and familial functioning. Parenting behaviors (affection, responsiveness, encouragement, and teaching) were observed using the Spanish version of PICCOLO (Parenting Interactions with Children: Checklist of Observations Linked to Outcomes). A bivariate analysis showed that cognitive development in infants was significantly related to the mother’s and father’s responsiveness, and to the father’s teaching scores. Infant language development was related to a variety of maternal factors (educational level, anxiety, depression, maternal responsiveness) and to the father’s teaching scores. None of the factors were statistically related to child motor development. A multivariate regression analysis indicated that children’s cognitive development can be predicted by a linear combination of maternal responsiveness and paternal teaching scores. Language development can be predicted by a linear combination of maternal anxiety and responsiveness, and paternal teaching scores. The present study provides evidence of the importance of paternal involvement for cognitive and language development in children with intellectual disabilities, and contributes to the increasing literature about fathering. Gaining knowledge about parental contributions to children’s development is relevant for improving positive parenting in early intervention programs.

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“…A QVF também está relacionada às percepções positivas das famílias em relação ao filho com DI, de forma que uma visão favorável das habilidades do filho e menor importância à deficiência implicam maior satisfação familiar 45 . Na nossa pesquisa, evidenciamos que, à medida que a independência para as AIVDs do indivíduo deficiente aumenta, a QVF percebida pelas famílias é maior.…”

Section: Discussionunclassified

Qualidade de vida de famílias de filhos com deficiência intelectual moderada

Oliveira

Pereira

Apis

et al. 2019

J. bras. psiquiatr.

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RESUMO Objetivo Investigar a qualidade de vida familiar (QVF) entre famílias brasileiras que têm filhos com deficiência intelectual (DI) moderada. Métodos Estudo transversal, realizado com 50 famílias com filhos com DI moderada de São Carlos, São Paulo, Brasil. Os dados foram coletados por meio de formulários, com informações sociodemográficas, os índices de funcionalidade de Barthel e de Lawton & Brody e a Escala de Qualidade de Vida Familiar do Beach Center. Resultados Os domínios mais fortemente correlacionados com a QVF total foram “interação familiar” (r = 0,870; p < 0,001) e “cuidado dos pais com os filhos” (r = 0,845; p < 0,001). Não houve diferenças na distribuição da QVF em relação às variáveis sociodemográficas investigadas. Observou-se correlação moderada (r = 0,326) e significativa (p = 0,021) entre o índice de funcionalidade de Lawton & Brody e a QVF. O modelo de regressão linear ajustado explicou 10,6% da variabilidade encontrada na QVF (p = 0,021) e mostrou que o aumento de uma unidade no valor do índice de Lawton & Brody representou aumento de 0,092 na QVF. Conclusão A QVF das famílias investigadas encontra-se aquém de outras amostras internacionais. Ações clínicas que fortaleçam o diálogo e a coesão familiar e a construção de um plano terapêutico individualizado podem ser meios efetivos de ajuda a essas famílias.

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Positive perceptions and perceived control in families with children with intellectual disabilities: relationship to family quality of life

Cited by 26 publications

References 54 publications

Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder

Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder

Demographic and Parental Factors Associated With Developmental Outcomes in Children With Intellectual Disabilities

Qualidade de vida de famílias de filhos com deficiência intelectual moderada

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