Povezanost socijalne podrške i nekih aspekata roditeljstva u obiteljima s djecom s teškoćama u razvoju

Leutar, Zdravka; Oršulić, Violeta

doi:10.3935/rsp.v22i2.1219

Cited by 12 publications

(14 citation statements)

References 16 publications

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“…They felt a lack of professionals' interest in their child's condition (McGracey and Hart 2008;Tsai and Wang 2009;Pansini 2011;Chaij et al 2014). The results from Leutar and Oršulić's study (2015) shows that parents of children with developmental disabilities estimated that centres for social welfare and schools are not important sources of support in their lives (Leutar and Oršulić 2015). The participants in the Blaži and Kolarić study (2015) stated that professionals are not emphatic and do not provide systematic information how to achieve social rights for their children.…”

Section: Discussionmentioning

confidence: 99%

Being a Mother of a Child with Prader-Willi Syndrome: Experiences of Accessing and Using Formal Support in Croatia

Buljevac

Leutar

2018

Scandinavian Journal of Disability Research

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The aim of this qualitative study is to obtain insight into the experiences of mothers of children with PWS with the formal support system in Croatia. The study was conducted in 2013 with five mothers of children with PWS. Thematic analysis was used as the analytic method. The results highlight four major themes related to mothers' experience of accessing and using formal support: professionals' lack of knowledge about PWS results in living without support; professionals' lack of empathy; professionals' commitment to improve the well-being of families; and getting support through membership in the Association of Persons with PWS Croatia. The social support in Croatia is defined by the lack of knowledge and lack of empathy of professionals, which results in disrespect for the human rights and dignity of children with PWS. Raising the awareness about PWS is crucial for improving the quality of life of families living with PWS.

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Section: Discussionmentioning

confidence: 99%

Being a Mother of a Child with Prader-Willi Syndrome: Experiences of Accessing and Using Formal Support in Croatia

Buljevac

Leutar

2018

Scandinavian Journal of Disability Research

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“…Socijalna podrška je jedan od najvažnijih resursa koje obitelj može dobiti, a može biti formalna i neformalna (Rusu, 2019). Ona uključuje fizičku i materijalnu pomoć, promjenu stavova, dijeljenje resursa i informacija, kao i emocionalnu i psihološku pomoć (Leutar i Oršulić, 2015). Formalni oblik podrške čine profesionalna podrška stručnjaka, primjerice edukacijskog rehabilitatora, kao i državnih institucija i javne politike, dok se neformalna odnosi na podršku šire okoline, prijatelja, vjerske zajednice (Rusu, 2019) i široko dostupnih informacija poput medija, interneta i literature (Vlah i sur., 2019).…”

Section: Oblici Podrškeunclassified

Roditeljski Stres U Obiteljima Djece S Teškoćama U Razvoju I Strategije Suočavanja

Grbavac¹,

Rako²

2021

MPER

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Biti roditelj smatra se najvažnijom i najispunjenijom ulogom. Ipak, roditeljstvo sa sobom nosi različite zahtjeve i izazove. Ustanovljavanje razvojnih teškoća kod djeteta traumatizirajući je događaj za roditelje te nerijetko rezultira višom razinom roditeljskog stresa, koji ovisi o brojnim čimbenicima kakvi su: veličina obitelji, karakteristike djeteta i njegove teškoće, karakteristike roditelja, strategije suočavanja sa stresom, karijera, percepcija invaliditeta, obiteljska kohezija, socioekonomska situacija, stavovi društva prema invaliditetu, dostupnost usluga, itd. Roditeljima je izuzetno važno pronaći prikladne strategije suočavanja i nošenja sa stresom na osobnoj, obiteljskoj i društvenoj razini, a pritom ne smije izostati podrška sustava i društva kao ni uključivanje roditelja u aktivnosti lokalne zajednice jer se s osjećajem prihvaćenosti i razumijevanja roditelj osnažuje na emocionalnom i socijalnom planu, što se odražava na odgoj njegova djeteta. Cilj ovoga rada je pružiti pregled uzroka roditeljskog stresa, dostupnosti i važnosti kako usluga formalne podrške od strane stručnjaka i institucija tako i neformalne podrške koju pružaju šira okolina, prijatelji, vjerske zajednice i mediji. Kvalitetna podrška može se znatno odraziti na razvoj roditeljskih kompetencija, a roditelje je potrebno staviti u središte interesa stručnjaka i društva upravo zato što su oni najvažniji odgojitelji djece te bez skladne suradnje uspjeh intervencija izostaje.

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“…The aim of the work involving parents of children with developmental difficulties living in the Dubrovnik-Neretva County [11] was to gain insights into social support and some aspects of parenting. The research has shown the importance of all forms of support: emotional, financial, practical and counselling assistance received within the family, and spousal support is the most important and most prominent.…”

Section: Perceived Social Support In Mental Healthmentioning

confidence: 99%

Perceived Social Support of Patients Involved in the Psychotherapeutic Treatment

Vranko¹,

Velimirović

Jendričko³

2020

Arch. Psychiatry Res.

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Paper is theoretically grounded in the model of social support. The aim of presented research is to gain insight in the perceived level of social support for people in hospital conditions due to the diagnostic criteria and forms of treatment. The proposed model is a multi-source support model. The sample of the study consists of 51 participants who were enrolled in some form of treatment in the University Psychiatric Hospital Vrapče, since the beginning of February to the end of April 2017. Multidimensional Scale of Social Support (MSPSS), was used. The highest score of perceived support is experienced by significant others (M= 5.72). Interestingly, weakest result of the perceived support by participants was obtained on the subscale of support experienced by the family (M = 5). Negative significant was found between perceived social support and age; support is negatively related to age. Older participants rated a lower level of support than the younger ones (-279*, Pearson’s correlation coefficient). There are no differences or significant correlations in the perception of social support, gender and form of treatment of participants.

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Povezanost socijalne podrške i nekih aspekata roditeljstva u obiteljima s djecom s teškoćama u razvoju

Abstract: Ključne riječi: roditeljstvo, dijete s teškoćama u razvoju, socijalna podrška.

Cited by 12 publications

References 16 publications

Being a Mother of a Child with Prader-Willi Syndrome: Experiences of Accessing and Using Formal Support in Croatia

Being a Mother of a Child with Prader-Willi Syndrome: Experiences of Accessing and Using Formal Support in Croatia

Roditeljski Stres U Obiteljima Djece S Teškoćama U Razvoju I Strategije Suočavanja

Perceived Social Support of Patients Involved in the Psychotherapeutic Treatment

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