Prediction of Psychological Distress Among Persons With Spinal Cord Injury or Acquired Brain Injury and Their Significant Others

Scholten, Eline W M; Visser-Meily, Johanna M A; Roels, E; Kouwenhoven, Mirjam; Post, Marcel W M

doi:10.1016/j.apmr.2020.05.023

Cited by 11 publications

(12 citation statements)

References 49 publications

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“…Most (n = 46, 92%) studies were published within the last 10 years of conducting our search (i.e., during or after the year 2010). The majority of studies originated from Europe (n = 20, 40%) 38,[47][48][49][50][51][52][53][54][55][56][57][58][59][60][61][62][63][64][65] and North America (n = 20, 40%), 19,25,46,[66][67][68][69][70][71][72][73][74][75][76][77][78][79][80][81][82] followed by Asia (n = 4, 8%), [83][84][85][86] South America (n = 4, 8%) [87][88][89][90] and Australia (n = 2, 4%). 91,…”

Section: Study Characteristicsmentioning

confidence: 99%

“…The remaining progressive conditions were PD (n = 2, 4%), 63,69 PD-related dementia (n = 2, 4%) 56,57 and MND (n = 1, 2%). 61 Few studies (n = 7, 14%) included sudden-onset conditions including SCI, 58,60,67,91 ABI 50,60 and TBI. 77,91,92 No studies included intermittent (e.g., epilepsy) or stable (e.g., polio, cerebral palsy) conditions.…”

Section: Chronic Neurological Conditionmentioning

confidence: 99%

“…89 Thus, a total of 22 (44%) studies explicitly advanced trait definitions of resilience. 19,25,51,56,57,[59][60][61]63,65,66,70,72,76,[79][80][81][82][83][88][89][90] In contrast, a substantial proportion (n = 18, 36%) of researchers opted for construing resilience as a dynamic process. 38,46,[48][49][50][52][53][54][55]62,68,69,71,74,77,84,86,91 Some (n = 7, 14%) authors used a more mixed model of resilience, presenting the concept of resilience as a hybrid of both a personality characteristic and an evolving process.…”

Section: Resilience Conceptualizationsmentioning

confidence: 99%

“…Independently of burden, resilience was explored in association with a number of positive and negative health outcomes; these variables consisted of psychological distress, 54,60,63,67,71,75,76,82 health-related quality of life, 63,75,77 mental health 47,[68][69][70]84 and coping strategies. 76,80 Three studies (6%) that examined coping and its connection with resilience determined that coping strategies correlated with resilience, 76,80,92 specifically problem-focused coping 76,92 and emotion-focused coping.…”

Section: General Health Outcomesmentioning

confidence: 99%

“…Certain (n = 7, 14%) studies minimally or unclearly defined resilience, 75,85 briefly presenting it as a general protective psychological factor, 51,60 or simply in relation to stress 56,57 or positive coping (see Table 3). 47 The remaining articles (n = 43, 86%) offered some type of a theoretical definition of resilience.…”

Section: Resilience Conceptualizationsmentioning

confidence: 99%

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Towards conceptual convergence: A systematic review of psychological resilience in family caregivers of persons living with chronic neurological conditions

McKenna

Fakolade

Cardwell

et al. 2021

Health Expectations

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Background:The demand for family caregiving in persons with chronic neurological conditions (CNCs) is increasing. Psychological resilience may empower and protect caregivers in their role. Thus, a synthesis of resilience evidence within this specific population is warranted. Aim:In this systematic review we aimed to: (1) examine the origins and conceptualizations of resilience; (2) summarize current resilience measurement tools; and (3) synthesize correlates, predictors and outcomes of resilience in family caregivers of persons with CNCs.Design: We sourced English articles published up to July 2020 across five databases using search terms involving CNCs, family caregivers and resilience.Results: A total of 50 studies were retained. Nearly half (44%) of the studies used trait-based resilience definitions, while about one third (36%) used process-based definitions. Twelve different resilience scales were used, revealing mostly moderate to high-resilience levels. Findings confirmed that resilience is related to multiple indicators of healthy functioning (e.g., quality of life, social support, positive coping), as it buffers against negative outcomes of burden and distress. Discordance relating to the interaction between resilience and demographic, sociocultural and environmental factors was apparent.Conclusions: Incongruity remains with respect to how resilience is defined and assessed, despite consistent definitional concepts of healthy adaptation and equilibrium. The array of implications of resilience for well-being confirms the potential for resilience to be leveraged within caregiver health promotion initiatives via policy and practice.Patient or Public Contribution: The findings may inform future recommendations for researchers and practitioners to develop high-quality resilience-building interventions and programmes to better mobilize and support this vulnerable group.

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