Preenchimento do quesito raça/cor na identificação dos pacientes: aspectos da implementação em um hospital universitário

Geraldo, Rafael Marques; Oliveira, Júlio César de; Alexandre, Larissa Sousa Cardoso; Aguiar, Marília Ribeiro de Azevedo; Vieira, Abna Faustina Sousa; Germani, Ana Cláudia Camargo Gonçalves

doi:10.1590/1413-812320222710.08822022

Cited by 7 publications

(5 citation statements)

References 36 publications

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“…Isto se deve pela falta de um treinamento que foque nos critérios para o correto preenchimento do quesito raça/cor nos prontuários e nos sistemas de informação da saúde seguindo a Portaria n° 344. Deve-se respeitar o critério de autodeclaração seguindo os padrões do IBGE de cor amarela, branca, preta, parda e indígena 26 .…”

Section: Resultsunclassified

Perfil por raça/cor de usuários de um serviço de referência em fissuras labiopalatinas: estudo transversal

Bandeira,

Dos Santos,

De Freitas

et al. 2024

CLCS

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Objetivou-se investigar o perfil de usuários por raça/cor atendidos em um centro referência para tratamento de fissura labiopalatina no Rio de Janeiro. A coleta de dados ocorreu pelas informações extraídas do prontuário e da aplicação de um questionário aos pacientes ou responsáveis, quando necessário. Os dados foram tratados com testes estatísticos pertinentes. A maioria dos usuários era negra (71,6%), do sexo masculino (55,2%), na faixa etária de 0 a 3 anos (32,3%) e renda familiar de até 2 salários mínimos (61,2%) com número da mediana de membros da família de 4 pessoas. A fissura transforame incisivo foi a mais frequente (58,2%). Houve associação significativa entre sexo e tipo de fissura, com a fissura transforame predominando em homens (63,2%). O intervalo entre o nascimento e a primeira consulta foi mais prolongado para os usuários negros. Os resultados apontam para a urgência de intervenções precoces e equitativas. Tais medidas podem englobar iniciativas desde a conscientização sobre a importância do diagnóstico precoce até estratégias voltadas à redução do tempo decorrido entre o nascimento e o acesso ao atendimento especializado. Limitações incluíram a incerteza na autodeclaração racial e o número menor de respondentes do que o estimado.

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Section: Resultsunclassified

Perfil por raça/cor de usuários de um serviço de referência em fissuras labiopalatinas: estudo transversal

Bandeira,

Dos Santos,

De Freitas

et al. 2024

CLCS

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“…For example, evidence from the US on HealthCare.gov enrollment data showed that non reporters were disproportionately Black or Hispanic [ 40 ]. In Brazil [ 41 ], a study of a university hospital found that 83% of the valid records for race were for White people, 11% for Mixed race, and only 5% for Black individuals. Potential explanations from this study identified a need for more specific training for health professionals for completing the race/color questionnaire, and that staff were afraid of the reaction of patients when asked to self-declare their race/ethnicity.…”

Section: Discussionmentioning

confidence: 99%

Improvements in data completeness in health information systems reveal racial inequalities: longitudinal national data from hospital admissions in Brazil 2010–2022

Coelho,

Rocha,

Hone

2024

Int J Equity Health

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Background Race and ethnicity are important drivers of health inequalities worldwide. However, the recording of race/ethnicity in data systems is frequently insufficient, particularly in low- and middle-income countries. The aim of this study is to descriptively analyse trends in data completeness in race/color records in hospital admissions and the rates of hospitalizations by various causes for Blacks and Whites individuals. Methods We conducted a longitudinal analysis, examining hospital admission data from Brazil’s Hospital Information System (SIH) between 2010 and 2022, and analysed trends in reporting completeness and racial inequalities. These hospitalization records were examined based on year, quarter, cause of admission (using International Classification of Diseases (ICD-10) codes), and race/color (categorized as Black, White, or missing). We examined the patterns in hospitalization rates and the prevalence of missing data over a period of time. Results Over the study period, there was a notable improvement in data completeness regarding race/color in hospital admissions in Brazil. The proportion of missing values on race decreased from 34.7% in 2010 to 21.2% in 2020. As data completeness improved, racial inequalities in hospitalization rates became more evident – across several causes, including assaults, tuberculosis, hypertensive diseases, at-risk hospitalizations during pregnancy and motorcycle accidents. Conclusions The study highlights the critical role of data quality in identifying and addressing racial health inequalities. Improved data completeness has revealed previously hidden inequalities in health records, emphasizing the need for comprehensive data collection to inform equitable health policies and interventions. Policymakers working in areas where socioeconomic data reporting (including on race and ethnicity) is suboptimal, should address data completeness to fully understand the scale of health inequalities.

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“…One of the possible reasons raised by Oliveira et al [17] was the difficulty in identifying maculopapular rash in people with black skin, but considering that this clinical manifestation primarily occurs mainly in the palmar and plantar regions, generally lighter in black people, this hypothesis still needs proof. Another reason to be considered, already been studied by other authors [18], is related to the completion of race/ color data in health questionnaires, when professionals define the answer to this question by hetero-identification, that is, not considering or not asking for the patient's self-declaration [19], evidencing institutional racism in health services [20].…”

Section: Discussionmentioning

confidence: 99%

Brazilian Spotted Fever Mortality Profile: 2018 to 2022

Kassada,

da Costa,

de Castro

et al. 2023

AID

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Background: Spotted Fever (SF) is an acute febrile zoonosis of variable severity that typically occurs in an endemic manner with worldwide distribution. Considering that SF is a disease of significant public health importance, this study aims to identify the mortality profile due to SF in Brazil from 2018 to 2022. Methods: Quantitative and descriptive cross-sectional approach. Data were collected from Brazilian Spotted Fever (BSF) cases registered in the Notifiable Diseases Information System (SINAN-DATASUS) across all regions of Brazil. The data collected includes information on the following variables: year of symptom, evolution, sex, race, environment of infection, region of notification, and age group. Subsequently, the data was entered into Microsoft Excel to create tables and graphs. The chi-square test was then applied to statistically analyze the associations between qualitative variables. A modified Poisson regression model with robust variance was constructed to analyze the age group data and determine which categories had different probabilities of death. The results show the estimates obtained for prevalence ratios, as well as their respective confidence intervals and p-values. The statistical software SAS version 9.4 was used to perform the analysis and a significance level of 5% was considered. Results: From 2018 to 2022, a total of 1126 cases of BSF were reported. Out of these cases, 59.3% (668) were cured, 32.4% (364) resulted in death, 1.1% (13) died from other causes and 7.2% (81) had no recorded outcome. Regarding the region with the highest death rate, the Southeast region led with 99.45% (362) of cases, followed by the Northeast region with 0.45% (2). As for the age group, the majority (63.7%) fell between the ages of 20 and 59 years old. In terms of race/color, 52.7% of the population identified as white. Regarding the contamination environment, 39.3% were in leisure areas.

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Preenchimento do quesito raça/cor na identificação dos pacientes: aspectos da implementação em um hospital universitário

Cited by 7 publications

References 36 publications

Perfil por raça/cor de usuários de um serviço de referência em fissuras labiopalatinas: estudo transversal

Perfil por raça/cor de usuários de um serviço de referência em fissuras labiopalatinas: estudo transversal

Improvements in data completeness in health information systems reveal racial inequalities: longitudinal national data from hospital admissions in Brazil 2010–2022

Brazilian Spotted Fever Mortality Profile: 2018 to 2022

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