Preferences, use of and satisfaction with mental health services among a sample of Puerto Rican cancer patients

Castro-Figueroa, Eida M; Torres-Blasco, Normarie; Rosal, Milagros C.; Castro, Wallesca P.; González-Lorenzo, Marilis E.; Vélez, Himilce; Costas-Muñíz, Rosario; Jiménez, Julio

doi:10.1371/journal.pone.0216127

Cited by 6 publications

(4 citation statements)

References 41 publications

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“…Worldwide, over the last 20 years there has been increased interest in the use of measures of satisfaction in the assessment of healthcare delivery (Alazri & Neal, 2003; Carr‐Hill, 1992; Castro‐Figueroa et al., 2019; Fakhoury, 1998; Fan, Burman, McDonell, & Fihn, 2005; Jenkinson, Coulter, Bruster, Richards, & Chandola, 2002). Measures of patient satisfaction are now integral components of quality assurance in many healthcare systems (Department of Health (UK), 2012).…”

Section: Introductionmentioning

confidence: 99%

Factors associated with overall satisfaction with care at the end‐of‐life: Caregiver voices in New Zealand

Frey

Robinson

Old

et al. 2020

Health Soc Care Community

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In New Zealand, as in other industrialised societies, an ageing population has led to an increased need for palliative care services. A cross-sectional postal survey of bereaved carers was conducted in order to describe both bereaved carer experience of existing services in the last 3 months of life, and to identify factors associated with overall satisfaction with care. A self-complete questionnaire, using a modified version of the Views of Informal Carers-Evaluation of Services (VOICES) instrument was sent to 4,778 bereaved carers for registered deceased adult (>18yrs) patients in one district health board (DHB) for the period between November 2015 and December 2016. Eight hundred and twenty-six completed questionnaires were returned (response rate = 21%). The majority of respondents (83.8%) rated their overall satisfaction with care (taking all care during the last 3 months into account), as high. However, satisfaction varied by care setting. Overall satisfaction with care in hospice was significantly higher compared to other settings. Additionally, patients who died in hospice were more likely to be diagnosed with cancer and under 65 years of age. The factors associated with overall satisfaction with care in the last 2 days of life were: caregiver perceptions of treatment with dignity and respect; adequate privacy; sufficient pain relief and decisions in line with the patient's wishes. A more in-depth exploration is required to understand the quality of, and satisfaction with, care in different settings as well as the factors that contribute to high/low satisfaction with care at the end-of-life.

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Section: Introductionmentioning

confidence: 99%

Factors associated with overall satisfaction with care at the end‐of‐life: Caregiver voices in New Zealand

Frey

Robinson

Old

et al. 2020

Health Soc Care Community

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“…17 Compounding this problem, Latinx contextual and cultural influences on caregivers present an unmet need for emotional support, 18 especially when Latinx individuals are less likely to have adequate access to culturally congruent psychosocial interventions. [19][20][21][22][23][24][25][26][27][28][29][30] Latinx cancer research had identified the psychosocial need of Latinx caregivers and described the importance of including psychosocial content related to communication and spirituality. [31][32][33] Contribution of caregivers to patient's well-being…”

Section: Introduction Patients With Advanced Cancer and Informal Care...mentioning

confidence: 99%

Cultural adaptation of meaning-centered psychotherapy for latino families: a protocol

et al. 2022

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IntroductionLiterature suggests couple-based interventions that target quality of life and communication can lead to positive outcomes for patients with cancer and their partners. Nevertheless, to date, an intervention to address the needs of Latino families coping with advanced cancer has not been developed. Meta-analytic evidence suggests that culturally adapted evidenced-based intervention targeting a specific cultural group is four times more effective. Our goal is to culturally adapt a novel psychosocial intervention protocol entitled ‘Caregivers-Patients Support to Latinx coping advanced-cancer’ (CASA). We hypothesised that combine two evidence-based interventions and adapting them, we will sustain a sense of meaning and improving communication as patients approach the end of life among the patient–caregiver dyad.Methods and analysisTo culturally adapt CASA, we will follow an innovative hybrid research framework that combines elements of an efficacy model and best practices from the ecological validity model, adaptation process model and intervention mapping. As a first step, we adapt a novel psychosocial intervention protocol entitled protocol entitled ‘Caregivers-Patients Support to Latinx coping advanced-cancer’ (CASA). The initial CASA protocol integrates two empirically based interventions, meaning-centred psychotherapy and couple communication skills training. This is an exploratory and prepilot study, and it is not necessary for a size calculation. However, based on recommendations for exploratory studies of this nature, a priori size of 114 is selected. We will receive CASA protocol feedback (phase 1b: refine) by conducting 114 questionnaires and 15 semistructured interviews with patients with advanced cancer and their caregivers. The primary outcomes of this study will be identifying the foundational information needed to further the develop the CASA (phase IIa: proof-of-concept and phase IIb: pilot study).Ethics and disseminationThe Institutional Review Board of Ponce Research Institute approved the study protocol #1907017527A002. Results will be disseminated through peer-reviewed publications.

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“…Although several psychotherapeutic interventions have been designed for advanced cancer ( Breitbart et al, 2018 ; Breitbart et al., 2012 ; Breitbart et al, 2010 ; Edmonds et al, 1999 ; Kissane et al, 2007 ; Lorenz et al, 2008 ; Luckett et al, 2011 ; Okuyama et al, 2017 ; Uitterhoeve et al., 2004 ), none of them have been developed or adapted for Latinos. Further, previous research has shown that Latinos diagnosed with cancer have less access to psychosocial and psychotherapeutic services ( Castro-Figueroa et al, 2019 ; Costas-Muñiz et al, 2020 ; Costas-Muniz et al, 2017 ; Luckett et al., 2011 ) and that multilevel and contextual factors (e.g., individual, provider, health system, and social) might influence the access to and uptake of psychosocial services for Latinos diagnosed with cancer ( Costas-Muñiz et al, 2020 ). Primary barriers to the access and use of psychosocial services in the general cancer patient population include having no perceived need for psychosocial services and support, lack of information or wanting more information about services ( Dilworth et al, 2014 ), uncertainty about the need for specialized mental health care, and the cost of such treatment ( Greenberg, 2004 ), receipt of support from other sources outside the cancer clinic, lack of awareness of services, and lack of provider referral ( Eakin & Strycker, 2001 ).…”

Section: Introductionmentioning

confidence: 99%

International adaptation of Meaning-Centered Psychotherapy for Latinos: Providers’ views on pre-implementation

Costas-Muñíz

Torres-Blasco

Castro-Figueroa

et al. 2022

Implementation Research and Practice

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Background This qualitative study aims to identify facilitators of and barriers to the implementation of Meaning-Centered Psychotherapy (MCP) by providers of mental health services to Latinos in the US and Latin America using the practical, robust implementation and sustainability model (PRISM). This information will be used to increase usability and acceptability of MCP for Latino patients with cancer and their providers in Latin America and the US. Methods A total of 14 Latino cancer patient mental health providers completed in-depth semi-structured interviews. Participants were recruited from 9 countries and 12 different sites. They provided feedback about barriers to and facilitators of implementation of MCP at the patient, provider, and clinic levels in their clinical setting. The qualitative data from the interviews was coded according to PRISM domains. Three analysts independently coded the transcripts; discrepancies between analysts were resolved through discussion and consensus. Results Based on PRISM, themes were: clinic environment (protected time for training and supervision), intervention characteristics (adapt the intervention using more simple language, include more visual aids, include more family-oriented content), patient (develop materials for the identification and screening of patients, provide educational materials, increase motivation and knowledge about psychotherapy, assess commitment to psychotherapy, adapt for the inpatient vs. outpatient setting), provider (receive interactive/participatory training, educational materials, ongoing supervision, have flexibility of delivering the intervention in a less structured manner, theoretical framework of the provider) and external environment (work at policy level to integrate services for oncology patients). Conclusion These qualitative data revealed potential facilitators and barriers of this intervention (MCP) on an international scale. Identified cultural, contextual, and healthcare systems factors illustrated the importance of examining pre-implementation needs prior to implementing a trial. We will design and plan a future RCT using the PRISM framework and these pre-implementation data. Plain Language Summary This study integrates frameworks of implementation science and cultural adaptation through the examination of pre-implementation contextual issues at the preparation phase of a cultural adaptation of a psychotherapeutic intervention, Meaning-Centered Psychotherapy (MCP), for Latinos with advanced cancer. By examining implementation needs early in the implementation process, during preparation, the intervention can be adapted in a way that attends to and addresses the providers’ most cited challenges in implementation: having a rigid protocol/structure, complexity of the intervention, disease burden preventing adherence to the intervention, transportation, and competing demands, and limited clinic space to offer the intervention.

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Preferences, use of and satisfaction with mental health services among a sample of Puerto Rican cancer patients

Cited by 6 publications

References 41 publications

Factors associated with overall satisfaction with care at the end‐of‐life: Caregiver voices in New Zealand

Factors associated with overall satisfaction with care at the end‐of‐life: Caregiver voices in New Zealand

Cultural adaptation of meaning-centered psychotherapy for latino families: a protocol

International adaptation of Meaning-Centered Psychotherapy for Latinos: Providers’ views on pre-implementation

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