Pregnant women’s perspectives on decision-making when a fetal malformation is detected by ultrasound examination

Asplin, Nina; Wessel, Hans; Marions, Lena; Öhman, Susanne Georgsson

doi:10.1016/j.srhc.2013.02.001

Cited by 48 publications

(46 citation statements)

References 24 publications

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“…15 On the contrary, the main influences for deciding termination after detection of congenital malformations in non-Islamic countries were the severity of malformations followed by socioeconomic considerations as disruption in employment, lack of resources or relation issues. 16 Increasing woman's age was significantly associated with having a positive attitude towards carrying out prenatal screening (P=0.019) which was in agreement with Kosec V et al 17 This may reflect the woman's knowledge of the link between that biological risk and the occurrence of congenital malformations. In addition, on assessing the effects of the socioeconomic characteristics of studied women on their attitude towards carrying out prenatal screening, it was revealed that increasing the level of education, being a working woman, and living in an urban area were significantly associated with a positive attitude (P=0.026, P=0.005, P=0.046 respectively).…”

Section: 13supporting

confidence: 80%

Knowledge, attitudes and beliefs of women in the reproductive age towards prenatal screening for congenital malformations, Alexandria-Egypt

Youssef

El-Weshahi

Ashry

2017

Int J Reprod Contracept Obstet Gynecol

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Background: The study was conducted to explore the Egyptian women’s attitudes toward the prenatal screening (PNS) for congenital malformations and termination of pregnancy if medically indicated and assessing their knowledge and beliefs regarding prenatal screening.Methods: A total of 351 Egyptian women in the reproductive age giving birth to at least one child completed a structured questionnaire to assess their knowledge of prenatal diagnosis and their willingness to undergo prenatal screening as well as their opinions on termination of pregnancy if medically indicated. Women's beliefs were also assessed.Results: More than half of studied women (52.71%) are lacking knowledge about the availability of the accurate tests for prenatal screening of congenital malformations. After giving information about PNS, more than three quarters (77.5%) of the studied women held positive attitudes toward the prenatal screening for congenital malformations. The other one quarter was either refusing or not sure about their opinion (4.6% and 17.9% respectively). Only 58.7% accepting termination of pregnancy if medically indicated. Positive attitude towards PNS was significantly higher among females with older age (P=0.019) as well as those of higher social class as indicated by higher level of education (p=0.026), urban residency (p=0.046) and working women (p=0.005). Perceived seriousness of congenital malformations and believing in the importance of early detection of such condition were the significant motives to undergo PNS.Conclusions: There is marked lack of knowledge about the prenatal screening tests among the studied women. After giving information about PNS, most of them shows a positive attitude towards carrying out these tests and about half of them reported their acceptance for termination of pregnancy if medically indicated based on prenatal diagnosis of sever congenital malformations. Emphasis national needs for health education programs about PNS importance and development of well-structured national program for PNS.

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Section: 13supporting

confidence: 80%

Knowledge, attitudes and beliefs of women in the reproductive age towards prenatal screening for congenital malformations, Alexandria-Egypt

Youssef

El-Weshahi

Ashry

2017

Int J Reprod Contracept Obstet Gynecol

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“…These factors include perceived benefits from normal results (Utility Theories 14,15,20 ), test response efficacy (Protection Motivation Theory 14,21,22 ), condition coherence (Common-Sense Model of Health Behavior 16,23 ), child-related worry (Common-Sense Model of Health Behavior 7,16,[24][25][26], and motivation to comply with doctors' perceived preferences (Theory of Planned Behavior 6,27 ). In addition, factors suggested by empirical research but which have not been clearly integrated into theory include perceived disagreement with other parent's preference, 28 parity, 20,29,30 and the characteristics of the condition tested for. 29,[31][32][33][34] Prospective parents engaged in deliberative decision making will consider the pros and cons of receiving test results.…”

Section: Psychosocial and Clinical Predictors Of Decisional Conflict mentioning

confidence: 99%

“…Consequently, decisional conflict should be greater when the conditions tested for are late‐onset. Finally, the severity of a condition can also influence decisions around prenatal testing . One study revealed that participants were more accepting of reproductive technologies when used to test for conditions perceived to reduce lifespan and quality of life .…”

Section: Introductionmentioning

confidence: 99%

It's complicated – Factors predicting decisional conflict in prenatal diagnostic testing

Muller

Cameron

2015

Health Expectations

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“…; Asplin et al. ). As the case under discussion makes clear, though, perceptions of severity can vary significantly, and, moreover, these perceptions are not necessarily defeasible by greater knowledge about the condition.…”

Section: The Case Of the Missing Handmentioning

confidence: 98%

The Case of the Missing Hand: Gender, Disability, and Bodily Norms in Selective Termination

Mills¹

2015

Hypatia

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The practice of terminating a pregnancy following the diagnosis of a fetal abnormality raises questions about notions of bodily normality and the ways these shape ethical decision‐making. This is particularly the case with terminations done on the basis of ostensibly minor morphological anomalies, such as cleft lip and isolated malformations of the limbs or digits. In this paper, I examine a recent case of selective termination after a morphology ultrasound scan revealed the fetus to be missing a hand (acheiria). Using the work of Georges Canguilhem, I show that a person with acheiria could be considered normal. Further, I show that this case reveals a kind of “undecidability” in the significance of fetal sex/gender and disability in termination. From this, I consider the conceptual interaction of disability with sex/gender, to argue that the ethics of disability termination are not as distinct from those of sex/gender selection as is commonly supposed.

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Pregnant women’s perspectives on decision-making when a fetal malformation is detected by ultrasound examination

Cited by 48 publications

References 24 publications

Knowledge, attitudes and beliefs of women in the reproductive age towards prenatal screening for congenital malformations, Alexandria-Egypt

Knowledge, attitudes and beliefs of women in the reproductive age towards prenatal screening for congenital malformations, Alexandria-Egypt

It's complicated – Factors predicting decisional conflict in prenatal diagnostic testing

The Case of the Missing Hand: Gender, Disability, and Bodily Norms in Selective Termination

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