Preliminary Results of the Generation of a Shortened Quality-of-Life Assessment for Patients with Advanced Cancer: The FACIT-Pal-14

Zeng, Liang; Bedard, Gillian; Cella, David; Thavarajah, Nemica; Chen, Emily; Zhang, Liying; Bennett, Margaret; Peckham, Kenneth; Costa, Sérgio Henrique Nascente; Beaumont, Jennifer L.; Tsao, May; Danjoux, Cyril; Barnes, Elizabeth; Sahgal, Arjun; Chow, Edward

doi:10.1089/jpm.2012.0595

Cited by 35 publications

(25 citation statements)

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“…Patients self‐reported quality of life was captured using the Functional Assessment of Chronic Illness Therapy Palliative‐14 item survey (FACIT Pal‐14) (Zeng et al . ) and the Assessment of Quality of Life‐6 Dimensions (AQoL 6D) (Richardson et al . ).…”

Section: Methodsmentioning

confidence: 99%

“…Patients self-reported quality of life was captured using the Functional Assessment of Chronic Illness Therapy Palliative-14 item survey (FACIT Pal-14) (Zeng et al 2013) and the Assessment of Quality of Life-6 Dimensions (AQoL 6D) (Richardson et al 2012). The FACIT Pal-14 captures quality of life specific for palliative patients relating to physical, social/family, emotional and functional wellbeing; it is self-rated with responses from 0 (not at all) to 4 (very much).…”

Section: Data Sources and Toolsmentioning

confidence: 99%

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Tracking patients with advanced kidney disease in the last 12 months of life

Bonner

Chambers

Healy

et al. 2018

Journal of Renal Care

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Section: Methodsmentioning

confidence: 99%

Section: Data Sources and Toolsmentioning

confidence: 99%

Tracking patients with advanced kidney disease in the last 12 months of life

Bonner

Chambers

Healy

et al. 2018

Journal of Renal Care

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“…However, one has the option of administering them with additional cancer-specific subscales or questions. [6][7][8] All questionnaires have a recall period of the previous week and use a Likert scale for response. The EORTC QLQ-C15-PAL provides patients with four choices (1 = not at all; 2 = a little; 3 = quite a bit; 4 = very much), whereas both the FACT-G7 and the FACIT-PAL-14 give patients five choices (0 = not at all; 1 = a little; 2 = somewhat; 3 = quite a bit; 4 = very much).…”

Section: Resultsmentioning

confidence: 99%

“…6 Both these scales are included in the FACIT-PAL-14 but not in the EORTC QLQ-C15-PAL. Although energy was included as an item in the FACT G-7, emotional support was not.…”

Section: Resultsmentioning

confidence: 99%

“…These instruments are intended to comprehensively assess QOL in advanced cancer patients without substantially reducing measurement precision or core content validity. [6][7][8] Thus far, the 30-item EORTC QLQ-C30 was shortened to produce a 15-item EORTC QLQ-C15-PAL; 8 the 27-item FACT-G was shortened to a 7-item FACT-G7; 7 and the 46-item combination of the FACT-G and the FACIT-PAL was shortened to a 14-item FACIT-PAL-14. 6 A direct comparison of these three tools may assist both health care providers (HCPs) in selecting the most appropriate instrument for meeting the needs of the patients and investigators in the selection of instruments for future clinical trials.…”

Section: Introductionmentioning

confidence: 99%

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Comparison of Three Shortened Questionnaires for Assessment of Quality of Life in Advanced Cancer

Chiu

Chow

et al. 2014

Journal of Palliative Medicine

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The EORTC QLQ-C15-PAL and the FACT-G7 were found to be reliable and appropriate for assessing health-related QoL issues-the former for palliative cancer patients and the latter for advanced cancer patients receiving chemotherapy. Conceptually, the FACIT-PAL-14 holds promise to cover social and emotional support issues that are not completely addressed by the other two questionnaires; however, further validation is needed.

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A lay navigator‐led, early palliative care intervention for African American and rural family caregivers of individuals with advanced cancer (Project Cornerstone): Results of a pilot randomized trial

Dionne-Odom

Azuero

Taylor

et al. 2021

Cancer

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Background The objective of this study was to assess the feasibility, acceptability, and potential efficacy of ENABLE (Educate, Nurture, Advise, Before Life Ends) Cornerstone—a lay navigator‐led, early palliative care telehealth intervention for African American/Black and/or rural‐dwelling family caregivers of individuals with advanced cancer (ClinicalTrials.gov identifier NCT03464188). Methods This was a pilot randomized trial (November 2019 to March 2021). Family caregivers of patients with newly diagnosed, stage III/IV, solid‐tumor cancers were randomized to receive either an intervention or usual care. Intervention caregivers were paired with a specially trained lay navigator who delivered 6 weekly, 20‐minute to 60‐minute telehealth coaching sessions plus monthly follow‐up for 24 weeks, reviewing skills in stress management, self‐care, getting help, staying organized, and future planning. Feasibility was assessed according to the completion of sessions and questionnaires (predefined as a completion rate ≥80%). Acceptability was determined through intervention participants' ratings of their likelihood of recommending the intervention. Measures of caregiver distress and quality of life were collected at 8 and 24 weeks. Results Sixty‐three family caregivers were randomized (usual care, n = 32; intervention, n = 31). Caregivers completed 65% of intervention sessions and 87% of questionnaires. Average ratings for recommending the program were 9.4, from 1 (not at all likely) to 10 (extremely likely). Over 24 weeks, the mean ± SE Hospital Anxiety and Depression Scale score improved by 0.30 ± 1.44 points in the intervention group and worsened by 1.99 ± 1.39 points in the usual care group (difference, −2.29; Cohen d, −0.32). The mean between‐group difference scores in caregiver quality of life was −1.56 (usual care − intervention; d, −0.07). Similar outcome results were observed for patient participants. Conclusions The authors piloted ENABLE Cornerstone, an intervention for African American and rural‐dwelling advanced cancer family caregivers. The acceptability of the intervention and data collection rates were high, and the preliminary efficacy for caregiver distress was promising. Lay Summary To date, very few programs have been developed to support under‐resourced cancer family caregivers. To address this need, the authors successfully pilot tested an early palliative care program, called Educate, Nurture, Advise, Before Life Ends (ENABLE) Cornerstone, for African American and rural family caregivers of individuals with advanced cancer. Cornerstone is led by specially trained lay people and involves a series of weekly phone sessions focused on coaching caregivers to manage stress and provide effective support to patients with cancer. The authors are now testing Cornerstone in a larger trial. If the program demonstrates benefit, it may yield a model of caregiver support that could be widely implemented.

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Preliminary Results of the Generation of a Shortened Quality-of-Life Assessment for Patients with Advanced Cancer: The FACIT-Pal-14

Abstract: The FACIT-Pal-14, a shortened 14-item questionnaire has been generated for the palliative care population. Future studies should complete psychometric validation of this instrument for the assessment of QOL in palliative care patients.

Cited by 35 publications

References 10 publications

Tracking patients with advanced kidney disease in the last 12 months of life

Tracking patients with advanced kidney disease in the last 12 months of life

Comparison of Three Shortened Questionnaires for Assessment of Quality of Life in Advanced Cancer

A lay navigator‐led, early palliative care intervention for African American and rural family caregivers of individuals with advanced cancer (Project Cornerstone): Results of a pilot randomized trial

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