Professional Carers' Experiences of Providing a Pediatric Palliative Care Service in Ireland

Clarke, Jean Illsley; Quin, Suzanne

doi:10.1177/1049732307308316

Cited by 33 publications

(38 citation statements)

References 31 publications

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“…Such findings were consistent with earlier research 7,8,14,[16][17][18][19] indicating that feelings of sadness and grief were compounded in nurses when a dying child was similar to their own child.…”

Section: Discussionsupporting

confidence: 92%

Living with Dying in the Pediatric Intensive Care Unit: A Nursing Perspective

Stayer

Lockhart

2016

American Journal of Critical Care

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Background Despite reported challenges encountered by nurses who provide palliative care to children, few researchers have examined this phenomenon from the perspective of nurses who care for children with life-threatening illnesses in pediatric intensive care units. Objectives To describe and interpret the essence of the experiences of nurses in pediatric intensive care units who provide palliative care to children with life-threatening illnesses and the children’s families. Methods A hermeneutic phenomenological study was conducted with 12 pediatric intensive care unit nurses in the northeastern United States. Face-to-face interviews and field notes were used to illuminate the experiences. Results Five major themes were detected: journey to death; a lifelong burden; and challenges delivering care, maintaining self, and crossing boundaries. These themes were illuminated by 12 subthemes: the emotional impact of the dying child, the emotional impact of the child’s death, concurrent grieving, creating a peaceful ending, parental burden of care, maintaining hope for the family, pain, unclear communication by physicians, need to hear the voice of the child, remaining respectful of parental wishes, collegial camaraderie and support, and personal support. Conclusion Providing palliative care to children with life-threatening illnesses was complex for the nurses. Findings revealed sometimes challenging intricacies involved in caring for dying children and the children’s families. However, the nurses voiced professional satisfaction in providing palliative care and in support from colleagues. Although the nurses reported collegial camaraderie, future research is needed to identify additional supportive resources that may help staff process and cope with death and dying.

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Section: Discussionsupporting

confidence: 92%

Living with Dying in the Pediatric Intensive Care Unit: A Nursing Perspective

Stayer

Lockhart

2016

American Journal of Critical Care

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“…Other factors that provoked strong emotional reactions included bleak prognoses, lack of contact with the family and psychological suffering in the family. The emotional stress associated with paediatric palliative care is well known from earlier research (Costello & Tinder‐Brook , Clarke & Quin , McCloskey & Taggart , Reid ), but to our knowledge, there are no studies highlighting the emotional experiences of community nurses in caring for children with medical conditions that are not of palliative nature, which makes parts of our results difficult to compare with other research.…”

Section: Discussionmentioning

confidence: 78%

New kid on the block? Community nurses’ experiences of caring for sick children at home

Samuelson

Willén

Bratt

2015

Journal of Clinical Nursing

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“…HCPs work constantly in an emotionally challenging context [43] and are vulnerable to compassion fatigue, burnout and emotional related issues [22,31,44,45]. The main purpose of this study was to examine the relationship between daily fluctuations in seeing patient suffering and daily emotional work display, and to assess whether CF (STS and burnout) moderate this betweenperson relationship.…”

Section: Discussionmentioning

confidence: 99%

Compassion fatigue, watching patients suffering and emotional display rules among hospice professionals: a daily diary study

et al. 2020

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Background: Hospice workers are required to regularly use emotional regulation strategies in an attempt to encourage and sustain terminally ill patients and families. Daily emotional regulation in reaction to constantly watching suffering patients may be intensified among those hospice professionals who have high levels of compassion fatigue. The main object of this study was to examine the relationship between daily exposition to seeing patient suffering and daily emotional work, and to assess whether compassion fatigue (secondary traumatic stress and burnout) buffers this relationship.Methods: We used a diary research design for collecting daily fluctuations in seeing patients suffering and emotional work display. Participants filled in a general survey and daily survey over a period of eight consecutive workdays. A total of 39 hospice professionals from two Italian hospices participated in the study.Results: Multilevel analyses demonstrated that daily fluctuations in seeing patients suffering was positively related to daily emotional work display after controlling for daily death of patients. Moreover, considering previous levels of compassion fatigue, a buffering effect of high burnout on seeing patients suffering -daily emotional work display relationship was found. Conclusions: A central finding of our study is that fluctuations in daily witness of patients suffering are positively related to daily use of positive emotional regulations. Further, our results show that burnout buffers this relationship such that hospice professionals with high burnout use more emotional display in days where they recurrently witness patients suffering.

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Professional Carers' Experiences of Providing a Pediatric Palliative Care Service in Ireland

Cited by 33 publications

References 31 publications

Living with Dying in the Pediatric Intensive Care Unit: A Nursing Perspective

Living with Dying in the Pediatric Intensive Care Unit: A Nursing Perspective

New kid on the block? Community nurses’ experiences of caring for sick children at home

Compassion fatigue, watching patients suffering and emotional display rules among hospice professionals: a daily diary study

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