Progress report on the rapid test kit development for early detection of systemic lupus erythematosus in Indonesia

Handono, Kusworini; Benita, KN; Habibah, FU; Dewi, ES

doi:10.1088/1742-6596/1146/1/012019

Cited by 3 publications

(3 citation statements)

References 15 publications

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“…SLE symptoms include joint pain and swelling, muscle pain, unidentified fever, facial redness, chest pain when taking a deep breath, hair loss, pale or purple fingers, sensitivity to sunlight, and skin edema in the feet and around the face, gland swelling, mouth ulcers, and tiredness (3)(4)(5). This disease has periods of fluctuating remissions and exacerbations and causes morbidity and mortality if not properly treated (6). Physical stress, emotional stress, sunlight, irregular eating, lack of sleep, and hormonal changes are the factors that contribute to SLE exacerbation (7,8).…”

Section: Introductionmentioning

confidence: 99%

Relationship Between Family Support and Stress Levels of People with Lupus at the Kupu Parahita Indonesia Foundation

Jannah

Nasution

Hidayah

et al. 2022

Int J Care Scholars

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Introduction: Systemic lupus erythematosus (SLE), also known as lupus, is a complex chronic autoimmune disease that affects the immune system and various organs of the body. The cause of this disease is unknown and many lupus patients experience stress as a result of this condition. Lupus patients rely heavily on their families for help in dealing with their illness. The purpose of this research was to determine the relationship between family support and stress levels in people with lupus at the Kupu Parahita Indonesia Foundation. Method: The research was conducted on 92 people with lupus using a cross-sectional approach, with data collected in the single meeting. A questionnaire was used to collect data on family support and stress levels, which were then correlated using the Spearman rank correlation test with CI=95% and ?=0.05. Results: The majority of people with lupus at the Kupu Parahita Foundation received good family support and experienced mild stress. The correlation between family support and stress levels was significant at p=0.000, indicating that the better family support provided to people with lupus, the lower the level of stress experienced by people with lupus. Conclusion: There was a link between family support and the stress level of people with lupus at the Kupu Parahita Indonesia Foundation. Future researchers who want to study family support and stress levels should involve family members and go directly to the respondent's home to learn more about the family support provided to people with lupus.

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Section: Introductionmentioning

confidence: 99%

Relationship Between Family Support and Stress Levels of People with Lupus at the Kupu Parahita Indonesia Foundation

Jannah

Nasution

Hidayah

et al. 2022

Int J Care Scholars

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“…Penyebab kematian pada pasien ialah gagal jantung, gagal ginjal, sepsis, atau perdarahan serebral. Perjalanan penyakit ini ditandai dengan episode remisi dan kekambuhan yang berulang yang akhirnya menimbulkan kerusakan berbagai organ ( Handono et al, 2019). Penyakit autoimun lain yang berat adalah artritis reumatoid (AR) (Lin et al, 2020).…”

Section: Introductionunclassified

Membangun Desa Binaan Tanggap COVID-19, Lupus, Reumatik, dan Alergi: Upaya Menurunkan Angka Kejadian dan Mencegah Kekambuhan di Malang

Handono

Wahono

Barlıanto

et al. 2021

IJCSL

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Kurangnya pengetahuan masyarakat tentang COVID-19, lupus, reumatik, dan alergi mempengaruhi keberhasilan terapi, penurunan angka kejadian, dan pencegahan kekambuhan. Tujuan pengabdian masyarakat adalah membangun desa-desa binaan tanggap COVID-19, lupus, reumatik, dan alergi di Malang oleh Tim Kelompok Kajian Lupus, Autoimun, Reumatik, dan Alergi (LAURA) Universitas Brawijaya. Warga desa binaan diberikan penyuluhan berupa seminar awam dan pelatihan tentang pertolongan awal pada penyakit COVID-19, lupus, reumatik, dan alergi, kemudian diminta mengisi kuesioner posttest untuk mengukur pemahaman. Desa-desa binaan diberikan thermo-gun dan wastafel untuk menerapkan protokol kesehatan. Satu bulan kemudian dievaluasi adanya kejadian COVID-19, lupus, reumatik, dan alergi di desa binaan. Hasil evaluasi menunjukkan rata-rata warga desa binaan memahami 78,3% materi yang diberikan dan menerapkan protokol kesehatan sesuai yang diajarkan saat penyuluhan. Dilaporkan tidak ada kejadian COVID-19 serta kekambuhan lupus, reumatik, dan alergi dalam satu bulan terakhir kegiatan. Kesimpulan: pembangunan desa-desa binaan di Malang meningkatkan tanggap warga terhadap COVID-19, lupus, reumatik, dan alergi.

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“…Lupus is a non-communicable chronic autoimmune disease for which the cause and cure are still unknown [1,2]. The definition of autoimmune is when the antibody cells cannot recognize their own body's cells and attacking them instead [3].…”

Section: Introductionmentioning

confidence: 99%

Psychoreligious Therapy Increase Self-Esteem of Lupus Survivors at Kupu Parahita Indonesia Foundation

Dewi

Kusuma

et al. 2021

JOCHAPM

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Lupus is a disease of thousand faces with various clinical manifestations and can interfere survivor's appearance, activity, and life. It can cause an inability to realize the strengths and positives that survivors have. This study's aim was to determine the psychoreligious therapy effect on the self-esteem of lupus survivors at Kupu Parahita Indonesia Foundation. The method used was quasi-experimental without a control group with One-group pretest-posttest design on 16 lupus survivors at Kupu Parahita Indonesia Foundation, selected by simple random sampling according to inclusion and exclusion criteria. Respondents were given psychoreligious therapy videos for a month, every weekend with 4 videos in total. We measured theÂ respondentâ€™s self-esteem using the Rosenberg Self-Esteem Scale (RSES) which was translated into Indonesian before and after therapy (Cronbach alpha=0.7, validity=0.422-0.63). The results showed that mean of pre-test score was 27.44, the post-test was 31.94, and the data were normally distributed (p>0.05). The results of the paired T-test showed a significant difference between the pre-test and post-test scores (p=0.000). In conclusion, the administration of psychoreligious therapy increases the self-esteem of lupus survivors at Kupu Parahita Indonesia Foundation.

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Progress report on the rapid test kit development for early detection of systemic lupus erythematosus in Indonesia

Cited by 3 publications

References 15 publications

Relationship Between Family Support and Stress Levels of People with Lupus at the Kupu Parahita Indonesia Foundation

Relationship Between Family Support and Stress Levels of People with Lupus at the Kupu Parahita Indonesia Foundation

Membangun Desa Binaan Tanggap COVID-19, Lupus, Reumatik, dan Alergi: Upaya Menurunkan Angka Kejadian dan Mencegah Kekambuhan di Malang

Psychoreligious Therapy Increase Self-Esteem of Lupus Survivors at Kupu Parahita Indonesia Foundation

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