Projecting social support needs of informal caregivers in Malaysia

Bakar, Siti Hajar Abu; Weatherley, Richard A.; Omar, Noralina; Abdullah, Fatimah; Aun, Nur Saadah Mohamad

doi:10.1111/hsc.12070

Cited by 27 publications

(37 citation statements)

References 26 publications

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“…Although the Saudi health system is comprehensive and free to all citizens , more than half of the current participants were not served well; this may result from an absence of LTC options satisfying the variety of nonmedical health needs . Additionally, recent studies have found that inadequate income was of a great concern among informal caregivers. The incomes in this study were not very high, although most of the participants had a job.…”

Section: Discussionmentioning

confidence: 96%

Illustration of informal caregiving within Saudi society: demography, scope of care and enabling arrangements

Alrashed

2016

Scandinavian Caring Sciences

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Although informal caregiving is a vital element in the process of supporting individuals with dependency, it is unrecognised most of the time, particularly by caregivers themselves. In Saudi Arabia, little attention has been devoted to informal caregivers; therefore, scarce coverage of this topic is obvious within the literature. This descriptive cross-sectional study was carried to explore informal caregiving within Saudi society by (i) describing informal caregivers and their care recipients and (ii) measuring the scope of care and enabling arrangements in the lives of informal caregivers. Numerical measures of frequency distribution were used to describe the participants and the correlate of demography among 341 female primary caregivers of the elderly (40%), individuals with disabilities (10%) or/and children aged five or younger (51%). Inferential statistics were used to test for significant associations among study variables. The majority of the participants were married with children and were middle-aged. However, the majority of care recipients were living with their caregivers; in addition, they were primarily females cared for by a mother or, less often, by a daughter (in-law). Enabling arrangements were on a moderate level, mainly in healthcare access, financial resources and family support, with lower signs detected in the quality of sleep indicator. These arrangements were significantly associated with caregiver age, education, career status and source of assistance. In conclusion, the statistics revealed by this survey indicated certain challenges that have been encountered by informal caregivers, primarily involving financial and social support. More coverage within the formal system of childcare must be provided to facilitate healthier childhoods. The long-term needs of individuals with dependency must be considered in the planning process of healthcare services, as well, remembering the needs and expectations of informal caregivers.

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Section: Discussionmentioning

confidence: 96%

Illustration of informal caregiving within Saudi society: demography, scope of care and enabling arrangements

Alrashed

2016

Scandinavian Caring Sciences

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“…Although this result contrasts with some earlier research (cf. Abu Bakar, Weatherley, Omar, Abdullah, & Aun, 2014), it simultaneously highlights the uniqueness of each individual caregiver's situation. In place of emotional support, focus group participants emphasized that they lacked more tangible forms of support, and especially the sharing of caregiver responsibilities to help alleviate some of the stress associated with balancing their caregiving and other responsibilities.…”

Section: Meeting the Needs Of Informal Caregiversmentioning

confidence: 99%

We Are Caregivers: Social Identity Is Associated with Lower Perceived Stress among Rural Informal Caregivers

et al. 2018

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RÉSUMÉLes aidants naturels ressentent fréquemment de hauts niveaux de stress dans des contextes où les sources d’appuis sont limitées, particulièrement en milieu rural. Cette recherche a fait appel à une approche à méthodes mixtes afin d’explorer les expériences d’aidants naturels vivant en milieu rural, en considérant les liens entre le stress perçu et l’identité sociale de l’aidant, les interactions sociales, ainsi que les appuis formels et informels favorisant l’adaptation. Les thèmes principaux qui sont ressortis dans les groupes de discussion (n = 8) incluaient : le manque de services accessibles, la conciliation des difficultés rencontrées, les besoins pratiques non satisfaits, la forte identité communautaire. Les données de l’enquête (n = 22) ont révélé que le soutien perçu (p. ex. pouvoir compter sur quelqu’un), les interactions sociales et l’identité d’aidant (rôle perçu comme important pour l’image de soi) étaient tous associés à une diminution du stress provenant de bouleversements de la vie, mais seule l’identité d’aidant était associée à une atténuation de la détresse personnelle et des émotions négatives liées au stress de l’aidant. Ces résultats suggèrent que, bien que la disponibilité des services dans les milieux ruraux soit insuffisante, d’autres options pourraient aider à amoindrir le stress de l’aidant, telles que l’accroissement de l’accès à des services de soutien, la promotion des interactions sociales pour les aidants et les personnes âgées et la valorisation de l’identité sociale de l’aidant.

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“…When a stroke survivor develops long-term disability, the role of caregivers is of utmost importance in the rehabilitation and nursing care of the patient. The majority of stroke caregivers in Malaysia are informal caregivers, comprising family members of the patients [1][2]. Very few Malaysian families can afford paid caregivers, whether trained or untrained [1].…”

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confidence: 99%

“…Informal caregivers have been found to have a higher prevalence of depression, as well as the negative effects of their physical, psychological, and social health [6]. In Malaysia, stroke caregivers also face unmet needs in terms of information regarding problem-solving and medical-related knowledge, financial, and social support [2]. The burden faced by caregivers has been associated with various negative impact toward patients' well-being, such as increased poststroke depression, cognitive decline, physical disability, and general quality of life [7][8][9].…”

mentioning

confidence: 99%

“…There are limited studies regarding the unmet needs of caregivers of stroke patients. A study conducted among informal caregivers in the Klang Valley showed that 78% wanted to have more information to solve their problems, as well as 67% who wanted more information and advice from medical specialists [2]. This suggests most Malaysian informal caregivers have low caregiving knowledge.…”

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confidence: 99%

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Caregiving Self-efficacy and Knowledge Regarding Patient Positioning Among Malaysian Caregivers of Stroke Patients

Tan¹,

Hi²,

Azmi³

et al. 2020

Cureus

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Background Most family caregivers of stroke patients in Malaysia do not receive adequate prior preparation or training. This study aimed to determine levels of patient positioning knowledge and caregiving self-efficacy among caregivers of stroke patients. Methods This cross-sectional study was conducted at an urban teaching hospital involving 128 caregivers of stroke patients. The caregivers were conveniently sampled and completed the data collection forms, which comprised their socio-demographic data, patients' functional status, the Caregiving Knowledge For Stroke Questionnaire: Patient Positioning (CKQ-My© Patient Positioning) to measure caregiver's knowledge on patient positioning, and the Family Caregiver Activation Tool (FCAT©) to measure caregivers' self-efficacy in managing the patient. Descriptive and multivariate inferential statistics were used for data analysis. Results Among the caregivers sampled, 87.3% had poor knowledge of positioning (mean score 14.9 ± 4.32). The mean score for FCAT was 49.7 ± 6.0 from a scale of 10 to 60. There was no significant association between knowledge on positioning and self-efficacy. Multiple linear regression showed that caregivers' age (B = 0.146, p = 0.003) and caregiver training (B = 3.302, p = 0.007) were independently associated with caregivers' self-efficacy. Conclusion Caregivers' knowledge on the positioning of stroke patients was poor, despite a fairly good level of self-efficacy. Older caregivers and receiving caregiver training were independently associated with better caregiver self-efficacy. This supports the provision of caregiver training to improve caregiver self-efficacy.

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Projecting social support needs of informal caregivers in Malaysia

Cited by 27 publications

References 26 publications

Illustration of informal caregiving within Saudi society: demography, scope of care and enabling arrangements

Illustration of informal caregiving within Saudi society: demography, scope of care and enabling arrangements

We Are Caregivers: Social Identity Is Associated with Lower Perceived Stress among Rural Informal Caregivers

Caregiving Self-efficacy and Knowledge Regarding Patient Positioning Among Malaysian Caregivers of Stroke Patients

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