Promoting dementia awareness in African‐American faith communities

Epps, Fayron; Alexander, Karah; Brewster, Glenna; Parker, Lauren; Chester, Mia; Tomlinson, Audrey; Adkins, Aisha; Zingg, Sabrina; Thornton, Jacque

doi:10.1111/phn.12759

Cited by 24 publications

(32 citation statements)

References 23 publications

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“…The churches varied in Christian denomination and included United Methodist ( n = 1), Pan African Orthodox Christian ( n = 1), African Methodist Episcopal ( n = 1), Catholic ( n = 1), and non-denominational ( n = 2) congregations. The workshops were facilitated by Faith Village Connections (FVC), an interdisciplinary collaborative developed by the primary author and comprised of predominantly African American women, to address gaps in the lack of resources and awareness about dementia in African American faith communities (Epps, Alexander, et al, 2020). Current research and resources from aging support organizations (i.e., Alzheimer’s Association, AARP, The Eden Alternative, and SageNavigator) guided the curriculum content.…”

Section: Methodsmentioning

confidence: 99%

Perceptions and Attitudes Toward Dementia in Predominantly African American Congregants

et al. 2021

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The purpose of this study was to identify the perceptions and attitudes of African American congregants toward dementia before and after attending a dementia-focused workshop. Six churches in Metropolitan Atlanta, Georgia, hosted the workshops. Attendees ( N = 171) participated in a free association exercise to evaluate their perceptions and attitudes toward dementia. Before and after the workshop, participants wrote words and phrases that occurred to them when they thought of dementia. Content analysis was used to identify themes. Before the workshop, participants’ responses tended to include negative language (e.g., fear, memory loss, sadness). After the workshop, participants expressed more positive words (e.g., support, hopefulness, caring). These findings suggest that education can change congregants’ perceptions about dementia and potentially reduce dementia-associated stigma. This change will allow families to feel comfortable both interacting with and seeking help from those in their faith communities.

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Section: Methodsmentioning

confidence: 99%

Perceptions and Attitudes Toward Dementia in Predominantly African American Congregants

et al. 2021

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“…research but may also result in more culturally appropriate and effective services. [420][421][422][423][424][425][426][427][428][429][430][431][432] In addition, a greater understanding is needed of how multiple chronic diseases (multimorbidity) intersect with dementia among Black people, indigenous peoples and people of color. 433…”

Section: Race/ethnicity and Dementia Caregivingmentioning

confidence: 99%

“…This hinders the progress of all Alzheimer's disease caregiving research, and, by extension, if these individuals continue to lack representation in Alzheimer's research, they will not receive the benefits of prevention, treatment or care innovations 413 . Establishing stronger relationships with existing organizations and resources in Black communities, indigenous communities and communities of color offers the potential of research‐based partnerships that not only enhance representation in Alzheimer's disease research but may also result in more culturally appropriate and effective services 420–432 . In addition, a greater understanding is needed of how multiple chronic diseases (multimorbidity) intersect with dementia among Black people, indigenous peoples and people of color 433 …”

Section: Caregivingmentioning

confidence: 99%

2022 Alzheimer's disease facts and figures

2022

Alzheimer's & Dementia

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This article describes the public health impact of Alzheimer's disease (AD), including incidence and prevalence, mortality and morbidity, use and costs of care, and the overall impact on family caregivers, the dementia workforce and society. The Special Report discusses consumers' and primary care physicians' perspectives on awareness, diagnosis and treatment of mild cognitive impairment (MCI), including MCI due to Alzheimer's disease. An estimated 6.5 million Americans age 65 and older are living with Alzheimer's dementia today. This number could grow to 13.8 million by 2060 barring the development of medical breakthroughs to prevent, slow or cure AD. Official death certificates recorded 121,499 deaths from AD in 2019, the latest year for which data are available. Alzheimer's disease was officially listed as the sixth-leading cause of death in the United States in 2019 and the seventh-leading cause of death in 2020 and 2021, when COVID-19 entered the ranks of the top ten causes of death. Alzheimer's remains the fifth-leading cause of death among Americans age 65 and older. Between 2000 and 2019, deaths from stroke, heart disease and HIV decreased, whereas reported deaths from AD increased more than 145%. More than 11 million family members and other unpaid caregivers provided an estimated 16 billion hours of care to people with Alzheimer's or other dementias in 2021. These figures reflect a decline in the number of caregivers compared with a decade earlier, as well as an increase in the amount of care provided by each remaining caregiver. Unpaid dementia caregiving was valued at $271.6 billion in 2021. Its costs, however, extend to family caregivers' increased risk for emotional distress and negative mental and physical health outcomes -costs that have been aggravated by COVID-19. Members of the dementia care workforce have also been affected by COVID-19. As essential care workers, some have opted to change jobs to protect their own health and the health of their families. However, this occurs at a time when more members of the dementia care workforce are needed. Average per-person Medicare payments for services to beneficiaries age 65 and older with AD or other dementias are almost three times as great as payments for beneficiaries without these conditions, and Medicaid payments are more than 22 times as great. Total payments in 2022 for health care, long-term care and hospice services for people age 65 and older with dementia are estimated to be $321 billion. A recent survey commissioned by the Alzheimer's Association revealed several barriers to consumers' understanding of MCI. The survey showed low awareness of MCI among Americans, a reluctance among Americans to see their doctor after noticing MCI symptoms, and persistent challenges for primary care physicians in diagnosing MCI. Survey results indicate the need to improve MCI 700

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“…Studies were also conducted in culturally sensitive settings. For example, one study held educational sessions at Black/African American churches as these are pillars of trust for African Americans in the Atlanta area of the United States 14 . In addition, a study observed religious customs in refreshments, music, venue, and intervention timing 10 …”

Section: Resultsmentioning

confidence: 99%

“…Black older adults were also found to have a high level of religious participation 51 . Therefore, when promoting dementia knowledge in this population, barriers were addressed via the use of low‐literacy text messages rather than via app that requires Internet access 27 and recruitment via faith‐based organizations 14 . Among all studies, three used YouTube as an intervention delivery mode, and all reported an increase in video engagement over time.…”

Section: Discussionmentioning

confidence: 99%

Interventions to promote dementia knowledge among racial/ethnic minority groups: A systematic review

Huggins

Min

Dennis

et al. 2021

J American Geriatrics Society

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Background Certain racial/ethnic minority groups have a higher risk of developing dementia, yet studies have demonstrated that they often have limited knowledge and understanding of this disease. An increasing number of educational and advocacy programs have been developed to promote dementia knowledge. We aimed at assessing current evidence and quality regarding educational interventions for promoting dementia knowledge. Methods We searched for intervention studies published in English that focused on educational interventions for promoting dementia knowledge among racial/ethnic minority groups. We identified 25 relevant studies through PubMed, PsycINFO, CINAHL, and Scopus, using tailored search terms. We screened titles and abstracts, reviewed full texts, synthesized relevant evidence, and evaluated the studies' quality based on the Mixed Methods Appraisal Tool. Relevant intervention studies took place in communities, hospitals or clinics, and schools, and online. Results Most studies were conducted in the United States (n = 21), followed by the UK (n = 3). Over half of the studies included Asian/Pacific Islander groups (n = 14), followed by Black groups (n = 12) and Hispanic groups (n = 11). The intervention delivery mode varied across studies—from workshops hosted in a faith community to talk shows on YouTube. Target populations included middle‐aged and older adults, caregivers and family members, health students and professionals, and elementary school students. Common content included symptoms and signs of dementia, protective and risk factors, and local resources. The assessment of study outcomes varied across studies. Improvement in dementia knowledge and attitudes towards dementia was reported in many studies. Among the included studies, intervention satisfaction was high. The overall quality of the interventions was low. Conclusion Formally evaluated educational interventions promoting dementia knowledge are at an early stage. Existing published interventions showed adequate acceptability and promise in promoting better understanding and awareness of dementia in minority groups. More well‐designed randomized controlled trials are needed.

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Promoting dementia awareness in African‐American faith communities

Cited by 24 publications

References 23 publications

Perceptions and Attitudes Toward Dementia in Predominantly African American Congregants

Perceptions and Attitudes Toward Dementia in Predominantly African American Congregants

2022 Alzheimer's disease facts and figures

Interventions to promote dementia knowledge among racial/ethnic minority groups: A systematic review

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