Promoting palliative care in the community: Production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care

Murray, Scott A; Firth, Adam; Schneider, Nils; Eynden, Bart Van den; Gómez-Batiste, Xavier; Brogaard, Trine; Villanueva, Tiago; Abela, Jurgen; Eychmüller, Steffen; Mitchell, Geoffrey; Downing, Julia; Sallnow, Libby; Rijswijk, Erik van; Barnard, Alan; Lynch, Marie; Fogen, Frederic; Moine, Sébastien

doi:10.1177/0269216314545006

Cited by 102 publications

(84 citation statements)

References 16 publications

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“…Factors include the place of the PCP in the healthcare system, access to essential medicines, the existence or otherwise of community nurses attached to primary care, and health insurance arrangements. 215 The WHO Public Health Strategy for palliative care describes four domains of public policy to facilitate community-based palliative care (fi gure 7), 216 and primary care involvement in palliative care should be embedded in all of these domains.…”

Section: Primary Care and National Health Modelsmentioning

confidence: 99%

The expanding role of primary care in cancer control

Rubin

Berendsen

Crawford

et al. 2015

The Lancet Oncology

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450

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The nature of cancer control is changing, with an increasing emphasis, fuelled by public and political demand, on prevention, early diagnosis, and patient experience during and after treatment. At the same time, primary care is increasingly promoted, by governments and health funders worldwide, as the preferred setting for most health care for reasons of increasing need, to stabilise health-care costs, and to accommodate patient preference for care close to home. It is timely, then, to consider how this expanding role for primary care can work for cancer control, which has long been dominated by highly technical interventions centred on treatment, and in which the contribution of primary care has been largely perceived as marginal. In this Commission, expert opinion from primary care and public health professionals with academic and clinical cancer expertise-from epidemiologists, psychologists, policy makers, and cancer specialists-has contributed to a detailed consideration of the evidence for cancer control provided in primary care and community care settings. Ranging from primary prevention to end-of-life care, the scope for new models of care is explored, and the actions needed to eff ect change are outlined. The strengths of primary care-its continuous, coordinated, and comprehensive care for individuals and families-are particularly evident in prevention and diagnosis, in shared follow-up and survivorship care, and in end-of-life care. A strong theme of integration of care runs throughout, and its elements (clinical, vertical, and functional) and the tools needed for integrated working are described in detail. All of this change, as it evolves, will need to be underpinned by new research and by continuing and shared multiprofessional development.

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Section: Primary Care and National Health Modelsmentioning

confidence: 99%

The expanding role of primary care in cancer control

Rubin

Berendsen

Crawford

et al. 2015

The Lancet Oncology

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448

450

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“…PC can then be started at any stage of a chronic disease, and in conjunction with curative or lifeprolonging treatments (4) . While some studies have shown that PHC professionals consider PC as part of their responsibilities to their patients, it is still known that few patients with chronic diseases receive adequate and quality PC in this level of care (1,3,5) . An important challenge for implementing PC in PHC is the appropriate assessment of the patient, including identifying the parameters that scientifically and clinically support their diagnosis.…”

mentioning

confidence: 99%

Interface between social support, quality of life and depression in users eligible for palliative care

Azevedo

Pessalácia

Mata

et al. 2017

Rev. esc. enferm. USP

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Objective: Analyzing the relationship between social support, quality of life and depression in patients eligible for palliative care at Primary Health Care of a municipality in the interior of Minas Gerais, Brazil. Method: A correlational cross-sectional study carried out with patients treated in six primary health care units. Data were submitted to descriptive statistical analysis, tests for differences between averages and medians, and correlation tests. The significance level was 0.05. Results: The sample consisted of 115 participants, and it was identified that the higher the social support, the better the global quality of life (p<0.001) and functional quality of life (p=0.035); the greater the presence of physical symptoms, the lower the level of social support (p=0.012) and the higher the level of depression (p<0.001); the higher the symptoms of depression, the worse the global quality of life (p<0.001), functional quality of life (p<0.001) and the lower the levels of social support (p<0.001). Conclusion: Levels of quality of life, social support and depression of patients eligible for palliative care are influenced by socioeconomic factors such as marital status, gender, age, income, education and presence of a caregiver.

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“…There is a lack of literature sources regarding global trends in the development of pediatric palliative care. Unfortunately awareness of the possibility of receiving palliative care for children is low, and the number of online resources of information on pediatric palliative care is extremely limited [2]. Kharkiv region is the largest in area and population of Ukraine (2.95 million people), but there is no access to PPC for children with life-limiting and life-threating diseases [2].…”

Section: о о ріга джоан марстон а ю пеньковmentioning

confidence: 99%

The first experience of mobile pediatric palliative team in Ukraine

Ріга¹,

Marston²,

Penkov³

2016

ZMJ

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The aim of the study was to identify needs among young children with life-limiting diseases under 4 years old and their parents living in rural area of Kharkiv region Ukraine during home visiting.Materials and methods. After the creation of the fi rst mobile pediatric palliative team, we reviewed the visits of 31 families at home to defi ne their clinical, and psychological, and social needs. The fi rst mobile pediatric palliative care team has been created for 2015. 31 families who have young children with life-threating diseases were visited to determine their clinical, and psychological, and social needs.Results. All children (31) had severe pathology of the central nervous system: congenital birth defects (29 %); cerebral palsy (35.4 %); genetic disorders (12.9 %). Parental and children's needs were divided into three categories. Medical needs: orthopedic (93.5 %), vaccination (93.5 %), food (80.6 %), posture (61.3 %), salivation (32.2 %), anticonvulsant therapy (16 %). Psychological problems: communication with siblings (100 %); socialization of children (90.3 %); sensory activity (83.8 %), parental relationships (74.2 %). Social issues: the need for support/social worker or volunteers (58.1 %), poverty (58.1 %), communication with local rehabilitation centers (54.8 %), the need for medical equipment (41.9 %).Along with high medical, social and psychological needs of children with incurable diseases, both they and their families feel the lack of pediatric palliative care, and at present they have no access to it. The authors suggest that pediatric palliative care in Ukraine requires its development, application and inclusion in the general health care at all levels of the health system. The establishment of a national concept of modern educational programs, protocols and standards, dissemination of public information communities is also very necessary due to author's point of view.Conclusions. Mobile team that performs home visits may be one of the best ways to start creation of the pediatric palliative care services. Zaporozhye medical journal 2016; №6 (99): 62-66Перший досвід виїзних педіатричних паліативних бригад в Україні О. О. Ріга, Джоан Марстон, А. Ю. ПеньковМета роботи -визначити потреби серед дітей молодшого віку з невиліковними захворюваннями у віці до 4 років та їхніх батьків, які проживають у сільській місцевості Харківської області, за допомогою домашніх візитів.Матеріали та методи. Протягом 2015 року створені перші мобільні команди дитячої паліативної допомоги. Здійснили візити до 31 родини, які виховують дітей раннього віку з невиліковними захворюваннями, для визначення їхніх клінічних, психологічних, со-ціальних потреб.Результати. Діти (31) мали тяжку патологію центральної нервової системи: вроджені вади розвитку (29 %), церебральний параліч (35,4 %), генетичні розлади (12,9 %). Батьківські та дитячі потреби поділили на три категорії. Медичні потреби: ортопедичні (93,5 %), вакцинація (93,5 %), харчування (80,6 %), поза (61,3 %), слинотеча (32,2 %), протисудомна терапія (16 %). Психологічні ...

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Promoting palliative care in the community: Production of the primary palliative care toolkit by the European Association of Palliative Care Taskforce in primary palliative care

Abstract: Many barriers and facilitators were identified. The primary palliative care toolkit can help community-based palliative care services to be established nationally.

Cited by 102 publications

References 16 publications

The expanding role of primary care in cancer control

The expanding role of primary care in cancer control

Interface between social support, quality of life and depression in users eligible for palliative care

The first experience of mobile pediatric palliative team in Ukraine

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