Propelling a New Era of Patient Education into Practice—Cancer Care Post–COVID-19

Giuliani, Meredith; Papadakos, Tina; Papadakos, Janet

doi:10.1016/j.ijrobp.2020.05.036

Cited by 29 publications

(32 citation statements)

References 16 publications

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“…Many studies reported the use of telehealth through videoconferencing, telephone, email, mobile phone apps and text message as a means to monitor and counsel patients. 3 , 7 - 8 , 11 - 12 , 15 - 19 , 20 - 22 , 24 , 29 , 30 , 33 - 37 , 39 - 41 , 43 , 45 , 46 , 48 - 65 , 78 This included screening, symptom checking and side effect monitoring and outpatient care. 8 , 22 , 29 , 39 , 45 , 52 - 54 These modalities of communication were significant in enabling better evaluation and follow-up of patients, as well as facilitating patient triaging and contact tracing.…”

Section: Discussionmentioning

confidence: 99%

“…These tools aided cancer patients with low health literacy to find reliable cancer-related patient education materials and a website ( pmcancerclasses.ca ) was recommended for online cancer classes for patients and families. 58 These strategies may be an effective way to improve patient compliance with protective measures and inform them of potential risks.…”

Section: Discussionmentioning

confidence: 99%

“…This large-scale surveillance system was informative for high-risk patients as they could make the decision to shield themselves if residing in a high-risk area. 43 The benefits of tracking were also evident in a study conducted by Ning et al who reported that active tracking reduced adverse effects that can occur from treatment delay and workforce incapacitation 46 (2) Outreach and Communication One of the most prominent strategies to ensure the maintenance of care continuity was regular communication between 77 P Brody et al 38 P P Butler et al 19 P P P P P P Casella et al 11 P P P P P P Chiang et al 14 P P P P P P Cinelli et al 53 P P Civantos et al 9 P P Civantos et al 49 P P P Collins et al 17 P P P P Curigliano et al 55 P P P Czernin et al 36 P P P P P de Marinis et al 39 P P P P Dharmarajan et al 51 P Elkaddoum et al 59 P P P Elkin et al 31 P Flannigan et al 57 P P Fosker 26 P P Frey et al 66 P Giuliani et al 58 P Gupta et al 48 P P P Grenda et al 54 P P Guven et al 12 P P P P Harky et al 61 P P P Indini et al 33 P P P P P P Jiang et al 60 P P Lee et al 15 P P P P P Lee et al 27 P P Lee et al 47 P P P Lobascio et al 56 P P Lombe et al 68 P P P Mei et al 21 P P P P P P Mendoza et al 23 P P P Millar et al 65 P Mirnezami et al 73 P P Morrison et al 69 P P Moss et al 32 P Mulvey et al 62 P...…”

Section: Covid-19 Andmentioning

confidence: 99%

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The Effects of COVID-19 on Cancer Care Provision: A Systematic Review

et al. 2021

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This systematic review aims to gather primary data from cancer institutions that have implemented changes to cancer service provision amid the COVID-19 outbreak to inform future intervention and health care facility response strategies. A comprehensive literature search was done on Global Health Medline and EMBASE using pertinent key words and MeSH terms relating to COVID-19 and Cancer service provision. A total of 72 articles were selected for inclusion in this systematic review. Following the narrative synthesis that was conducted of the literature, 6 core themes that encompassed common cancer service intervention adopted by institutions were identified: (1) Testing and Tracking, (2) Outreach and Communication, (3) Protection, (4) Social Distancing (5) Treatment Management, (6) Service Restructuring. Since cancer patients are a high-risk population amid the COVID-19 pandemic, these areas of targeted intervention can be used to inform necessary actions in institutions facing similar risks, based on previous learning from numerous cancer centers globally.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Covid-19 Andmentioning

confidence: 99%

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The Effects of COVID-19 on Cancer Care Provision: A Systematic Review

et al. 2021

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“…The impact of these measures will be further improved by proper patient education programs that are being adapted to the digital format in many hospitals 127 …”

Section: Covid‐19 and Endoscopymentioning

confidence: 99%

“…125 At this point, with all the lessons learned, and with vaccination under way with good results in most countries, gastroenterologists and health providers shall assure that: The impact of these measures will be further improved by proper patient education programs that are being adapted to the digital format in many hospitals. 127 The pandemic had also a negative impact on endoscopy training worldwide. 128,129 The decrement of case volume, PPE shortage, exclusion from endoscopy procedures, or redeployment to another clinical area were the main challenges that endoscopy trainees had to 754 -UNITED EUROPEAN GASTROENTEROLOGY JOURNAL face.…”

Section: Covid-19 and Endoscopymentioning

confidence: 99%

COVID‐19 in gastroenterology: Where are we now? Current evidence on the impact of COVID‐19 in gastroenterology

et al. 2021

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Background The COVID‐19 pandemic has created unprecedented challenges in all fields of society with social, economic, and health‐related consequences worldwide. In this context, gastroenterology patients and healthcare systems and professionals have seen their routines changed and were forced to adapt, adopting measures to minimize the risk of infection while guaranteeing continuous medical care to chronic patients. Objective At this point, it is important to evaluate the impact of the pandemic on this field to further improve the quality of the services provided in this context. Methods/Results/Conclusion We performed a literature review that summarizes the main aspects to consider in gastroenterology, during the pandemic crisis, and includes a deep discussion on the main changes affecting gastroenterology patients and healthcare systems, anticipating the pandemic recovery scenario with future practices and policies.

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Increased Confidence and Deeper Understanding of Fatigue Following Participation in Fatigue Education and Management Education in Systemic Sclerosis: A Mixed Methods Evaluation of a Virtual Intervention

Poole,

Carandang,

Connolly

2024

ACR Open Rheumatology

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ObjectiveNo fatigue‐specific programs exist for people with systemic sclerosis (SSc) despite the burden of fatigue and negative impact on daily activities. This study used a convergent parallel mixed methods design to evaluate the impact of an adapted virtual intervention, Fatigue and Activity Management Education in Systemic Sclerosis (FAME‐iSS), in the United States.MethodsEighteen people with SSc participated in three separate six‐week FAME‐iSS programs. Participants completed the modified Fatigue Impact Scale (m‐FIS), the Self‐Efficacy for Performing Energy Conservation Strategies Assessment (SEPESCA), the Patient‐Reported Outcomes Measurement Information System (PROMIS) Self‐Efficacy for Managing Symptoms, and the Hospital Anxiety and Depression Scale (HADS) before, immediately after, and three months post intervention. Data were analyzed using descriptive and nonparametric inferential statistics. Participants’ perceptions of the program and their use of fatigue management strategies were qualitatively analyzed using content analysis.ResultsEighty‐nine percent of participants were women with a mean ± SD age of 52.0 ± 11.6 years and a mean ± SD disease duration of 13.7 ± 14.5 years, and more than 70% had a college degree. Significant improvements were observed for self‐efficacy on the PROMIS Self‐Efficacy for Managing Symptoms (P = 0.002) and SEPESCA (P = 0.016) immediately post intervention, which continued to significantly improve up to the three‐month follow‐up (P = 0.006 and 0.035, respectively). Significant improvements were also observed for the m‐FIS between baseline and the three‐month follow‐up (P = 0.029). Participants reported a deeper understanding of fatigue and that they liked sharing strategies and experiences with each other along with the facilitator, citing that “there was a power in our group because we had a common condition.”ConclusionFAME‐iSS resulted in improvements in the impact of fatigue and self‐efficacy for managing symptoms and performing energy conservation strategies. Feedback was positive, and the virtual format allowed for greater accessibility and sharing of strategies.

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Propelling a New Era of Patient Education into Practice—Cancer Care Post–COVID-19

Cited by 29 publications

References 16 publications

The Effects of COVID-19 on Cancer Care Provision: A Systematic Review

The Effects of COVID-19 on Cancer Care Provision: A Systematic Review

COVID‐19 in gastroenterology: Where are we now? Current evidence on the impact of COVID‐19 in gastroenterology

Increased Confidence and Deeper Understanding of Fatigue Following Participation in Fatigue Education and Management Education in Systemic Sclerosis: A Mixed Methods Evaluation of a Virtual Intervention

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