Protecting Personhood and Achieving Quality of Life for Older Adults With Dementia in the U.S. Health Care System

Murray, Louise M.; Boyd, Suzanne

doi:10.1177/0898264308329017

Cited by 28 publications

(32 citation statements)

References 59 publications

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“…There is a need for a broader perspective if we are to understand variations in QoL among PwD (O'Connor et al ., ). It has been suggested that domains potentially relevant to QoL in dementia include social, environmental, economic, cultural and psychological factors (Parse, ; Katsuno, ; Smith et al ., ; Byrne‐Davis et al ., ; Murray and Boyd, ; Venturato, ; Moyle et al ., ). The present findings raise questions about the association between taking AChEI medication and QoL and highlight for the first time the central importance of the perceived quality of relationship with a carer as a predictor of subsequent self‐ratings of QoL by PwD.…”

Section: Discussionmentioning

confidence: 97%

Trajectories of quality of life in early‐stage dementia: individual variations and predictors of change

Clare

Woods

Nelis

et al. 2013

Int J Geriat Psychiatry

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Key points:Reliable change in self-rated quality of life scores was observed in 25% of participants with early-stage dementia at 20-month follow-up.A better perceived quality of relationship with the carer was associated with an increase in self-rated quality of life at 20-month follow-up. In this sample, use of acetylcholinesterase-inhibiting medication appeared to be associated with a decline in self-rated quality of life at 20-month follow-up. Conflicts of interest:The authors declare no actual or potential conflicts of interest.

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Section: Discussionmentioning

confidence: 97%

Trajectories of quality of life in early‐stage dementia: individual variations and predictors of change

Clare

Woods

Nelis

et al. 2013

Int J Geriat Psychiatry

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“…A person’s ability to complete ADL is not only necessary for physical well-being, but is central to one’s independence, pride, and dignity [5,6]. An inability to complete ADL often results in a dependence on caregivers, thus increasing caregiver burden and care costs [7-9]. The associated social and economic costs (both direct and indirect) for caring for older adults, particularly those with dementia, is expected to be enormous.…”

Section: Introductionmentioning

confidence: 99%

Examining the impact of familiarity on faucet usability for older adults with dementia

2013

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BackgroundChanges in cognition caused by dementia can significantly alter how a person perceives familiarity, impacting the recognition and usability of everyday products. A person who is unable to use products cannot autonomously complete associated activities, resulting in increased dependence on a caregiver and potential move to assisted living facilities. The research presented in this paper hypothesised that products that are more familiar will result in better usability for older adults with dementia. Better product usability could, in turn, potentially support independence and autonomy.MethodsThis research investigated the impact of familiarity on the use of five faucet designs during 1309 handwashing trials by 27 older adults, who ranged from cognitively intact to the advanced (severe) stages of dementia. Human factors methods were used to collect empirical and self-reported data to gauge faucets’ usability. Participants’ data were grouped according to cognition (i.e., no/mild, moderate, or severe dementia). Logistic regression, ranking by odds, and Wald tests of odds ratios were used to compare performance of the three groups on the different faucets. Qualitative data were used in the interpretation of quantitative results.ResultsResults indicated that more familiar faucets correlated with lower levels of assistance from a caregiver, fewer operational errors, and greater levels of operator satisfaction. Aspects such as the ability to control water temperature and flow as well as pleasing aesthetics appeared to positively impact participants’ acceptance of a faucet. The dual lever design achieved the best overall usability.ConclusionsWhile work must be done to expand these findings to other products and tasks, this research provides evidence that familiarity plays a substantial role in product usability for older adults that appears to become more influential as dementia progresses. The methods used in this research could be adapted to analyse usability for other products by older adults with dementia.

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“…It is expected that by 2050 approximately 1.5 billion people or 16% of the world's population will be aged 65 or older (World Health Organisation [WHO], 2011). Alzheimer's disease (AD) is the most common form of dementia and is most typically diagnosed in people over 65 years of age (Murray & Boyd, 2009). By 2050 it is estimated that AD will affect 1 in 85 people globally (Brookmeyer, Johnson, Ziegler-Graham, & Arrighi, 2007).…”

Section: Introductionmentioning

confidence: 99%

Assessing accuracy of knowledge of cognitive effects of normal ageing and mild stage of Alzheimer's disease

Bettens

Ownsworth

Hohaus

et al. 2013

Aging & Mental Health

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Protecting Personhood and Achieving Quality of Life for Older Adults With Dementia in the U.S. Health Care System

Abstract: The implications of current and future public policy, avenues for further research, and strategies by which the health care community may better serve persons with dementia are outlined.

Cited by 28 publications

References 59 publications

Trajectories of quality of life in early‐stage dementia: individual variations and predictors of change

Trajectories of quality of life in early‐stage dementia: individual variations and predictors of change

Examining the impact of familiarity on faucet usability for older adults with dementia

Assessing accuracy of knowledge of cognitive effects of normal ageing and mild stage of Alzheimer's disease

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