Psychological Adaptation and Adjustment of Mothers of Children With Congenital Heart Disease: Stress, Coping, and Family Functioning

Davis, Craig C.; Brown, Ronald T.; Bakeman, Roger; Campbell, Robert M.

doi:10.1093/jpepsy/23.4.219

Cited by 117 publications

(111 citation statements)

References 23 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…The literature (Davis, Brown, & Campbell, 1998) clearly shows that mothers of children with CHD experience high levels of daily stress. In response to this difficult situation, this study's conceptual model would predict that these mothers should be more likely to engage in an overly protective and more permissive parenting style permission has been granted for this version to appear in e-Publications@Marquette.…”

Section: Discussionmentioning

confidence: 99%

Maternal factors related to parenting young children with congenital heart disease

Carey

Nicholson

Fox

2002

Journal of Pediatric Nursing

View full text Add to dashboard Cite

Section: Discussionmentioning

confidence: 99%

Maternal factors related to parenting young children with congenital heart disease

Carey

Nicholson

Fox

2002

Journal of Pediatric Nursing

View full text Add to dashboard Cite

“…224 Notably, maternal perceptions have been found to be an important predictor of a child's emotional adjustment. [225][226][227] Adaptation in children and adolescents with CHD can be fostered by helping them to develop improved perceptions of competence in areas they deem important or by helping them to reduce the level of importance assigned to areas in which their competence is hindered, such as daily living, social, communication, and community living skills. Therefore, a partnership among families, educational personnel, and medical caregivers may be useful and beneficial in recognition and management of problems and to maximize adaptive functioning.…”

Section: Adaptive Functioningmentioning

confidence: 99%

Neurodevelopmental Outcomes in Children With Congenital Heart Disease: Evaluation and Management

Marino¹,

Lipkin²,

Newburger³

et al. 2012

Circulation

1,334

1,156

View full text Add to dashboard Cite

Background— The goal of this statement was to review the available literature on surveillance, screening, evaluation, and management strategies and put forward a scientific statement that would comprehensively review the literature and create recommendations to optimize neurodevelopmental outcome in the pediatric congenital heart disease (CHD) population. Methods and Results— A writing group appointed by the American Heart Association and American Academy of Pediatrics reviewed the available literature addressing developmental disorder and disability and developmental delay in the CHD population, with specific attention given to surveillance, screening, evaluation, and management strategies. MEDLINE and Google Scholar database searches from 1966 to 2011 were performed for English-language articles cross-referencing CHD with pertinent search terms. The reference lists of identified articles were also searched. The American College of Cardiology/American Heart Association classification of recommendations and levels of evidence for practice guidelines were used. A management algorithm was devised that stratified children with CHD on the basis of established risk factors. For those deemed to be at high risk for developmental disorder or disabilities or for developmental delay, formal, periodic developmental and medical evaluations are recommended. A CHD algorithm for surveillance, screening, evaluation, reevaluation, and management of developmental disorder or disability has been constructed to serve as a supplement to the 2006 American Academy of Pediatrics statement on developmental surveillance and screening. The proposed algorithm is designed to be carried out within the context of the medical home. This scientific statement is meant for medical providers within the medical home who care for patients with CHD. Conclusions— Children with CHD are at increased risk of developmental disorder or disabilities or developmental delay. Periodic developmental surveillance, screening, evaluation, and reevaluation throughout childhood may enhance identification of significant deficits, allowing for appropriate therapies and education to enhance later academic, behavioral, psychosocial, and adaptive functioning.

show abstract

“…[53][54][55][56][57] Research has shown that parental anxiety about raising a child with CHD is more directly related to the diagnosis per se and not the severity of the defect. 31,32,53,54,56,58 In addition, the quality of the parent-child relationship, and not disease severity, holds the key to successful transition, with perceived parental acceptance having a more positive effect on adolescent psychological well-being. 33,59 Parental anxiety can lead to overprotection and may also explain parents' reluctance to shift greater responsibility for illness management to their adolescent.…”

Section: Parent/familymentioning

confidence: 99%

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

Sable¹,

Foster²,

Uzark³

et al. 2011

Circulation

393

280

View full text Add to dashboard Cite

Psychological Adaptation and Adjustment of Mothers of Children With Congenital Heart Disease: Stress, Coping, and Family Functioning

Cited by 117 publications

References 23 publications

Maternal factors related to parenting young children with congenital heart disease

Maternal factors related to parenting young children with congenital heart disease

Neurodevelopmental Outcomes in Children With Congenital Heart Disease: Evaluation and Management

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

Contact Info

Product

Resources

About