Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review

Latal, Beatrice; Helfricht, Susanne; Fischer, Joachim E.; Bauersfeld, Urs; Landolt, Markus A.

doi:10.1186/1471-2431-9-6

Cited by 214 publications

(195 citation statements)

References 54 publications

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“…Penelitian di Norwegia, pada anak usia 7-12 tahun, ditunjukkan bahwa anak dengan PJB yang telah menjalani operasi Cardiopulmonary bypass (CPB) mengalami masalah kualitas hidup. 8 Gangguan fungsi kognitif pada lesi sianosis tidak hanya akibat dari hipoksia kronis, tetapi akibat faktor lain yang memengaruhi, seperti kekhawatiran orang tua yang berlebihan sehingga mereka terlalu menjaga anaknya. 9 Pada orang tua, stres berhubungan dengan harapan agar anaknya bisa hidup normal seperti anak lainnya.…”

Section: Pembahasanunclassified

Penilaian Kualitas Hidup pada Anak dengan Penyakit Jantung Bawaan Asianosis dan Sianosis

Rachmawati

Sofyani

Ali

2016

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Latar belakang. Setiap tahun seribu bayi lahir dengan penyakit jantung bawaan (PJB). Terapi bertujuan mengurangi gejala klinis, mencegah gagal jantung, penutupan defek, dan meningkatkan kualitas hidup. Evaluasi terhadap kualitas hidup menjadi penting karena dengan tata laksana yang baik sekarang ini, anak dengan PJB memiliki harapan hidup yang lebih lama.Tujuan. Menilai perbedaan kualitas hidup anak penderita PJB asianosis dengan sianosis.Metode. Penelitian menggunakan studi potong lintang telah dilakukan dari bulan Maret sampai dengan Juli 2012 di RSUP H. Adam Malik, Medan. Sampel terdiri dari anak usia 5 sampai dengan 18 tahun yang menderita PJB asianosis dan sianosis yang belum dikoreksi dan sudah dikoreksi. Anak dan orangtua mengisi kuesioner PedsQL modul kardio versi 3.0. Penilaian kualitas hidup dilihat dari enam domain yaitu menggunakan T-test independen dengan p<0,05 dan interval kepercayaan 95%.Hasil. Terdapat 52 anak penderita PJB, 17 anak sianosis dan 37 anak asianosis. Kualitas hidup anak PJB asianosis lebih baik daripada anak sianosis dalam empat domain yaitu masalah jantung dan terapi, penampilan fisik, cemas terhadap tindakan terapi dan masalah kognitif.Kesimpulan. Kualitas hidup anak penderita PJB asianosis lebih baik dibandingkan penderita PJB sianosis.

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Section: Pembahasanunclassified

Penilaian Kualitas Hidup pada Anak dengan Penyakit Jantung Bawaan Asianosis dan Sianosis

Rachmawati

Sofyani

Ali

2016

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“…Some studies have reported that poorer QOL is related to cardiac instability [15], greater disease severity [8,12], and poorer motor functioning and autonomy [11], although no differences were found for the variables of gender, age, and marital status [15]. Some studies have found poorer psychological wellbeing and QOL in CHD patients than in healthy control subjects [18,19], whereas others have claimed there is no difference between the two groups.…”

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Quality of Life Experienced by Adolescents and Young Adults With Congenital Heart Disease

et al. 2011

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This study aimed to assess the quality of life (QOL) experienced by adolescents and young adults with congenital heart disease (CHD) and to determine which factors negatively affect adjustment and which factors increase resilience. The participants in the study were 74 patients with CHD (41 males and 33 females) ranging in age from 12 to 26 years (mean age, 18.76 ± 3.86 years). Demographic information and a complete clinical history were obtained. The participants were interviewed regarding topics such as social support, family educational style, selfimage, and physical limitations. They responded to questions in a standardized psychiatric interview (SADS-L) and completed a self-report questionnaire (WHOQOL-BREF) for assessment of QOL. Compared with the Portuguese population as a whole, the study patients had better QOL, especially with regard to the environmental dimension (t = 3.754; P = 0.000) and social relationships (t = 2.333; P = 0.022). Patients who had undergone surgery experienced poorer QOL in the physical dimension (t = -1.989; P = 0.050), in social relationships (t = -2.012; P = 0.048) and overall (Mann-Whitney U = 563.000; P = 0.037). Social support played a positive role in the QOL of the patients, both in the physical dimension (t = 3.287; P = 0.002) and in social relationships (t = 3.669; P = 0.000). A higher school achievement also was associated with higher levels of QOL overall (Mann-Whitney U = 457.000; P = 0.046) as well as in the physical (t = 2.045; P = 0.045) and environmental (t = 2.413; P = 0.018) dimensions. Physical limitations had a detrimental impact on general QOL (Mann-Whitney U = 947.500; P = 0.001) and on the physical (t = -2.910; p = 0.005) and psychological (t = -2,046; P = 0.044) dimensions. Patients with CHD tended to perceive QOL as better when their social networks were supportive.

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“…[1][2][3][4] QoL is a multidimensional concept, inherently subjective, in which the self-report element for all individuals, including children, is important. 5,6 Although it is well recognized in industrialized countries that ascertaining children' s views of their QoL is essential for improving health care strategies, assessment of subjective well-being in children is still not common in the United States and the United Kingdom.…”

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confidence: 99%

Self-Reported Quality of Life of Young Children With Conditions From Early Infancy: A Systematic Review

Jardine¹,

Glinianaia

McConachie

et al. 2014

Pediatrics

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CONTEXT: There is little consistency in the use of instruments for measuring self-reported quality of life (QoL) in young children. OBJECTIVE:To systematically review studies of self-reported QoL in children aged ,12 years with congenital health conditions, and to examine the agreement between self-and proxy-reports.DATA SOURCES: Literature databases (MEDLINE, EMBASE, Web of Science, PsychINFO) were systematically searched, reference lists of eligible studies were scanned.

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Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review

Cited by 214 publications

References 54 publications

Penilaian Kualitas Hidup pada Anak dengan Penyakit Jantung Bawaan Asianosis dan Sianosis

Penilaian Kualitas Hidup pada Anak dengan Penyakit Jantung Bawaan Asianosis dan Sianosis

Quality of Life Experienced by Adolescents and Young Adults With Congenital Heart Disease

Self-Reported Quality of Life of Young Children With Conditions From Early Infancy: A Systematic Review

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