Psychological distress and need for psycho-oncological support in spouses of total laryngectomised cancer patients—results for the first 3 years after surgery

Meyer, Alexandra; Keszte, Judith; Wollbrück, Dorit; Dietz, Andreas; Oeken, Jens; Vogel, H; Koscielny, Sven; Breitenstein, Kerstin; Meister, E. F.; Pabst, Friedemann; Schock, J.; Bourkas, Sophia; Schnittger, Susanne

doi:10.1007/s00520-014-2485-8

Cited by 28 publications

(26 citation statements)

References 29 publications

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“…The complex, intensive care needs of IWL over time can place significant demands on social supports and health care resources. Spouses of IWL report increased burden and strain supporting loved ones after TL . Caregivers' perceptions of adjustment after TL and the support they provide in conjunction with health professionals (HP) remain poorly understood.…”

Section: Introductionmentioning

confidence: 99%

Self‐expression and identity after total laryngectomy: Implications for support

et al. 2018

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Loss of self-expression after total laryngectomy influences self-identity and adjustment. How individuals reframe their identity appears to be tied with how they view their disabilities and disfigurement. These perceptions also appear to be influenced by the reactions of others and the support available. Further resourcing, education, and training are needed so that PS and HP can provide holistic care.

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Section: Introductionmentioning

confidence: 99%

Self‐expression and identity after total laryngectomy: Implications for support

et al. 2018

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“…HNC caregivers have also reported a need for psychological support, self-help groups, assistance with coping strategies, patient care, legal/financial support, and healthcare service assistance [22, 23, 25]. In another study, the majority of spouses of laryngectomized cancer patients reported a desire to learn relaxation methods but little interest in professional counseling services [26]. Factors associated with caregivers' unmet supportive care needs have included the caregivers' lack of family support, being female, living with and being married to the patient, and having a secondary education [22, 23].…”

Section: Introductionmentioning

confidence: 99%

Vulnerable characteristics and interest in wellness programs among head and neck cancer caregivers

Nightingale

Sterba

Tooze

et al. 2016

Support Care Cancer

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Purpose Head and neck cancer (HNC) caregivers have poorer psychological health compared to patients and the general population, but have not yet been targeted for wellness programs to reduce adverse psychosocial or physical health outcomes. To inform development of such programs, we identified potential vulnerabilities to poor outcomes and examined wellness program preferences among HNC caregivers. We also examined whether interest in wellness programs varied by potential vulnerabilities among HNC caregivers. Methods Surveys were administered to caregivers (N = 33) of HNC patients undergoing major surgery. Sociodemographic factors, caregiving characteristics, psychosocial functioning, and health behavior data were collected. Fisher's exact tests and t-tests were used to examine characteristics associated with interest in the different types of wellness programs. Results Many caregivers reported a heavy caregiving load (88% live with patient; 73% provide daily care), a smoking history (42%), and compromised psychosocial functioning (45% with depressive symptoms; 33% with anxiety above population norms). Most caregivers were interested in wellness programs focused on diet/exercise (71.9%), cancer education (66.7%), stress reduction (63.6%), and finances, caregiving, and well-being (57.6%). Caregivers endorsed highest interest in programs offered during the patient's medical treatment (63.6%) and mail was the preferred program format (50.0%). Those with more depressive symptoms reported more interest in programs focused on cancer education (p = .03), stress reduction (p = .05), and educational classes on finances, caregiving and well-being (p = .01). Conclusions Wellness programs offering a menu of options should be developed for HNC caregivers.

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“…The psychic well-being after total laryngectomy is severely limited [157]. Also partners of laryngectomees suffer from the enormous psychic stress and need psycho-oncological care [160]. …”

Section: Therapy Of Primarily Diagnosed Laryngeal Cancermentioning

confidence: 99%

Evidence and evidence gaps of laryngeal cancer surgery

Wiegand

2016

GMS Current Topics in Otorhinolaryngology - Head and Neck Surgery; 15:Doc03

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Psychological distress and need for psycho-oncological support in spouses of total laryngectomised cancer patients—results for the first 3 years after surgery

Cited by 28 publications

References 29 publications

Self‐expression and identity after total laryngectomy: Implications for support

Self‐expression and identity after total laryngectomy: Implications for support

Vulnerable characteristics and interest in wellness programs among head and neck cancer caregivers

Evidence and evidence gaps of laryngeal cancer surgery

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