Psychological process from hospitalization to death among uninformed terminal liver cancer patients in Japan

Maeda, Yuko; Hagihara, Akihito; Kobori, Eiko; Nakayama, Takeo

doi:10.1186/1472-684x-5-6

Cited by 10 publications

(6 citation statements)

References 16 publications

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“…Our results indicated that approximately half (57.8%) of the Chinese patients with HCC had knowledge of their cancer diagnosis, with the trend that younger and more educated patients were more likely to be aware of their cancer diagnosis. These findings are consistent with those from other studies on Chinese patients with cancer [3,7,14] and those in studies from India, Japan, Iran, and other Asian countries [12,13,20,21]. This similarity suggests a common situation in that physicians concealed the cancer diagnosis from their patients in Asian countries including China.…”

Section: Discussionsupporting

confidence: 91%

“…Several studies have reported that knowledge of the cancer diagnosis and treatment did not affect patients' quality of life (QOL) or even improved it . Studies in Asian countries have yielded conflicting findings, likely because of the different cultural backgrounds and different types or stages of the cancer being investigated . However, few similar studies have been conducted in China specifically.…”

Section: Introductionmentioning

confidence: 99%

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Impact of disclosure of diagnosis and patient autonomy on quality of life and illness perceptions in Chinese patients with liver cancer

et al. 2015

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Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

Impact of disclosure of diagnosis and patient autonomy on quality of life and illness perceptions in Chinese patients with liver cancer

et al. 2015

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“…In a closed awareness context, it is not possible to discuss either reversible or irreversible control of dying, and patient autonomy regarding end-of-life decisions is consequently low. This pattern is mostly observed in Asian, Islamic and Latin cultures [33-36]. …”

Section: Resultsmentioning

confidence: 95%

De-tabooing dying control - a grounded theory study

et al. 2013

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BackgroundDying is inescapable yet remains a neglected issue in modern health care. The research question in this study was “what is going on in the field of dying today?” What emerged was to eventually present a grounded theory of control of dying focusing specifically on how people react in relation to issues about euthanasia and physician-assisted suicide (PAS).MethodsClassic grounded theory was used to analyze interviews with 55 laypersons and health care professionals in North America and Europe, surveys on attitudes to PAS among physicians and the Swedish general public, and scientific literature, North American discussion forum websites, and news sites.ResultsOpen awareness of the nature and timing of a patient’s death became common in health care during the 1960s in the Western world. Open dying awareness contexts can be seen as the start of a weakening of a taboo towards controlled dying called de-tabooing. The growth of the hospice movement and palliative care, but also the legalization of euthanasia and PAS in the Benelux countries, and PAS in Montana, Oregon and Washington further represents de-tabooing dying control. An attitude positioning between the taboo of dying control and a growing taboo against questioning patient autonomy and self-determination called de-paternalizing is another aspect of de-tabooing. When confronted with a taboo, people first react emotionally based on “gut feelings” - emotional positioning. This is followed by reasoning and label wrestling using euphemisms and dysphemisms - reflective positioning. Rarely is de-tabooing unconditional but enabled by stipulated positioning as in soft laws (palliative care guidelines) and hard laws (euthanasia/PAS legislation). From a global perspective three shapes of dying control emerge. First, suboptimal palliative care in closed awareness contexts seen in Asian, Islamic and Latin cultures, called closed dying. Second, palliative care and sedation therapy, but not euthanasia or PAS, is seen in Europe and North America, called open dying with reversible medical control. Third, palliative care, sedation therapy, and PAS or euthanasia occurs together in the Benelux countries, Oregon, Washington and Montana, called open dying with irreversible medical control.ConclusionsDe-tabooing dying control is an assumed secular process starting with open awareness contexts of dying half a century ago, and continuing with the growth of the palliative care movement and later euthanasia and PAS legislation.

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“… 16 – 19 Studies in Asian countries have yielded conflicting findings because of the different cultural surroundings and different stages of the cancer. 4 , 20 , 21 Fan et al’s study 12 has demonstrated that patients who did not know their diagnosis exhibited better physical and emotional quality of life compared with those who had known of their diagnosis. Few studies have been done in China on the influence on patients who have knowledge about their cancer diagnosis.…”

Section: Introductionmentioning

confidence: 99%

Disclosure of cancer diagnosis in China: the incidence, patients’ situation, and different preferences between patients and their family members and related influence factors

Liu¹,

Jin²,

Huo³

et al. 2018

CMAR

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PurposeThe purpose of this study was to investigate the disclosure incidence of cancer diagnosis to patients before chemotherapy, to survey the attitudes of the patients and their families and related influencing factors toward disclosure of cancer diagnosis, and to compare the anxiety and depression levels between the disclosure and non-disclosure patients.Participants and methodsA prospective cohort study was conducted at a tertiary hospital in China. A consecutive series of patients who had been diagnosed with malignancy by pathology and their family member were included in our study from March 2017 to December 2017. Patients’ situation, preferences, and their family members’ preferences were investigated by a self-designed questionnaire following a semi-structured interview. The Chinese version of HADS for anxiety and depression was used to test the patients’ psychological distress. Binary logistic regression was used to analyze the related influencing factors of patients’ disclosure of their diagnosis.ResultsA total of 124 pairs of patients and their family members were analyzed. Of the 124 patients, 47 (37.90%) patients knew about their cancer diagnosis and 77 (62.10%) patients did not know about their cancer diagnosis before chemotherapy. There were more patients than family members who wanted the patients to be informed about the diagnosis of terminal illness (91.9% vs 53.2%, P<0.01). Binary logistic regression analysis showed that patients with university education (odds ratio [OR], 15.322; 95% confidence interval [CI], 1.781–131.781; P<0.05), patients having equal or above average annual income (OR, 5.170; 95% CI, 1.842–14.514; P<0.01) were more likely informed about cancer diagnosis before chemotherapy. Higher anxiety level was found in diagnosis non-disclosure group (P<0.05) and no significant difference in depression score between two groups (P>0.05).ConclusionMore than half of the patients did not know their exact diagnosis before chemotherapy in China. Educational level and economic status may be influencing factors for the disclosure of cancer diagnosis. Patients and their family members had different preferences toward diagnosis disclosure.

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Psychological process from hospitalization to death among uninformed terminal liver cancer patients in Japan

Cited by 10 publications

References 16 publications

Impact of disclosure of diagnosis and patient autonomy on quality of life and illness perceptions in Chinese patients with liver cancer

Impact of disclosure of diagnosis and patient autonomy on quality of life and illness perceptions in Chinese patients with liver cancer

De-tabooing dying control - a grounded theory study

Disclosure of cancer diagnosis in China: the incidence, patients’ situation, and different preferences between patients and their family members and related influence factors

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Psychological process from hospitalization to death among uninformed terminal liver cancer patients in Japan

Cited by 10 publications

References 16 publications

Impact of disclosure of diagnosis and patient autonomy on quality of life and illness perceptions in Chinese patients with liver cancer

Impact of disclosure of diagnosis and patient autonomy on quality of life and illness perceptions in Chinese patients with liver cancer

De-tabooing dying control - a grounded theory study

Disclosure of cancer diagnosis in China: the incidence, patients&rsquo; situation, and different preferences between patients and their family members and related influence factors

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Disclosure of cancer diagnosis in China: the incidence, patients’ situation, and different preferences between patients and their family members and related influence factors