Psychometric Properties of a Spanish-Language Version of a Short-Form FAMCARE: Applications to Caregivers of Patients With Alzheimer’s Disease and Related Dementias

Teresi, Jeanne A.; Ocepek‐Welikson, Katja; Ramírez, Mildred; Ornstein, Katherine; Bakken, Suzanne; Siu, Albert L.; Luchsinger, José A.

doi:10.1177/1074840719867345

Cited by 4 publications

(6 citation statements)

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“…A strong point in reaching equivalence between the original and the Spanish version of the instrument was the involvement of expert translators with knowledge of the source and the target languages. They were able to analyze all possible item meanings and select the most appropriate language in relation to the original scale (D’Angelo et al, 2017; Hagedoorn et al, 2018; Teresi et al, 2019).…”

Section: Discussionmentioning

confidence: 99%

Cross-Cultural Adaptation and Psychometric Testing of the Spanish Version of Iceland Health Care Practitioner Illness Beliefs Questionnaire

et al. 2020

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The beliefs of nursing professionals who care for families experiencing illness are fundamental to the quality of the nurse–family relationship and the level of the nurse’s involvement in the therapeutic process of Family Systems Nursing. It is essential to have valid and reliable instruments for assessing nurses’ illness beliefs, especially in the Spanish context where no instruments have been identified to date. The Iceland Health Care Practitioner Illness Beliefs Questionnaire (ICE-HCP-IBQ) is a reliable and valid measure of professionals’ beliefs about their understanding of the meaning of the illness experience of families. The purpose of this study was to adapt and psychometrically test the Spanish version of the ICE-HCP-IBQ ( N = 249 nurses). The exploratory factor analysis showed one-factor solution with good internal consistency (Cronbach’s α = .91) and test–retest reliability ( r = .72, p < .01). This questionnaire is a promising tool for mapping nurse’s illness beliefs and monitoring the effectiveness of family nursing educational interventions in the Spanish context.

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Section: Discussionmentioning

confidence: 99%

Cross-Cultural Adaptation and Psychometric Testing of the Spanish Version of Iceland Health Care Practitioner Illness Beliefs Questionnaire

et al. 2020

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“…Qualitative methods, including content analyses and cognitive interviews, were used to develop Spanish translations for use among Spanish speakers (Teresi et al, 2019). The first step in the evaluation of DIF is the generation of a priori hypotheses regarding potential group differences in item responses, conditional on the trait.…”

Section: Qualitativementioning

confidence: 99%

“…The Family Satisfaction with End-of-Life Care (FAMCARE) scale (Kristjanson, 1986(Kristjanson, , 1989, although used most widely with cancer patients in palliative care, has also been applied to a range of serious illness (Hwang et al, 2003), including caregivers to patients with Alzheimer's disease (Teresi et al, 2019) and residents in long-term care (Rodriguez et al, 2010). The FAMCARE is used widely internationally as a quality measure of end-of-life care in clinical and research settings, and translations are available in many languages, including Italian (D'Angelo et al, 2017), Spanish (Teresi et al, 2019), and Swedish (Ljungberg et al, 2015). Although the psychometric properties of the scale have been examined in cancer patients in diverse settings internationally, little evidence exists regarding measurement equivalence across ethnically diverse groups.…”

Section: Introductionmentioning

confidence: 99%

Evaluation of measurement equivalence of the Family Satisfaction with the End-of-Life Care (FAMCARE): Tests of differential item functioning between Hispanic and non-Hispanic White caregivers

et al. 2020

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Objective Although the psychometric properties of the Family Satisfaction with End-of-Life Care measure have been examined in diverse settings internationally; little evidence exists regarding measurement equivalence in Hispanic caregivers. The aim was to examine the psychometric properties of a short-form of the FAMCARE in Hispanics using latent variable models and place information on differential item functioning (DIF) in an existing family satisfaction item bank. Method The graded form of the item response theory model was used for the analyses of DIF; sensitivity analyses were performed using a latent variable logistic regression approach. Exploratory and confirmatory factor analyses to examine dimensionality were performed within each subgroup studied. The sample included 1,834 respondents: 317 Hispanic and 1,517 non-Hispanic White caregivers of patients with Alzheimer's disease and cancer, respectively. Results There was strong support for essential unidimensionality for both Hispanic and non-Hispanic White subgroups. Modest DIF of low magnitude and impact was observed; flagged items related to information sharing. Only 1 item was flagged with significant DIF by both a primary and sensitivity method after correction for multiple comparisons: “The way the family is included in treatment and care decisions.” This item was more discriminating for the non-Hispanic, White responders than for the Hispanic subsample, and was also a more severe indicator at some levels of the trait; the Hispanic respondents located at higher satisfaction levels were more likely than White non-Hispanic respondents to report satisfaction. Significance of results The magnitude of DIF was below the salience threshold for all items. Evidence supported the measurement equivalence and use for cross-cultural comparisons of the short-form FAMCARE among Hispanic caregivers, including those interviewed in Spanish.

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confidence: 99%

“…In this special issue, Teresi and colleagues (2019), Booker, Cousin, and Buck (2019), and Henriquez, Hyndman, and Chachula (2019) address the nuances and diversity of family structures and their application to family caregiving and meeting the needs of older adults for whom they are providing care. For example, Teresi et al (2019) address end-of-life care in Spanish-speaking family caregivers of people with Alzheimer’s disease and related dementias (ADRD) and test the psychometric properties of an instrument, FAMCARE, to measure this complex issue. Their findings demonstrate an association between caregiver burden, stress, depression, and dissatisfaction with formal care services, important findings given that Latinx individuals make up the fastest growing ethnic group in the United States and have a higher prevalence rate of ADRD compared with non-Latinx White people.…”

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confidence: 99%

Family-Focused Care of Older Adults: Contemporary Issues and Challenges

Anderson

Rose

2019

J Fam Nurs

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For many years, researchers, practitioners, and policymakers warned of the Silver Tsunami-an impending wave of older adults worldwide that was going to swamp existing resources and stretch health care systems to the limits (Das, 2015; McGregor, 2018). Although the increasing number of older adults globally will have significant impacts on current systems and programs, framing the reality of our aging population in such stark terms often comes across as ageist and stigmatizing. If we are to address the needs of a growing older adult population adequately, positive, strengths-based, and affirming approaches are needed. Enter family nursing and family-focused care. Family nursing has always understood the inherent, transformative value in family-focused care. When questioned, families and patients consistently point to outcomes within the domains of quality of life and well-being as having the most meaning and benefit during their illness journeys, domains in which nursing and family nursing excel. Fortunately, a family-focused, holistic approach to health and health care has garnered more attention and credibility over the last decade or so (Perez et al., 2018), with numerous studies demonstrating the benefits of patient-centered, family-focused, and integrated care (Fauth et al., 2019; Segelman et al., 2014). One cannot discuss novel approaches to the family-focused care of older adults at present without acknowledging the impact of technology on health and in supporting family care of older adults (Croff et al., 2019). As more older adults strive to age in their homes or with their families, the promise of technology to aid in this desire is appealing. Many opportunities exist to understand better how smart health technology can enhance the lives of older adults by exploring and addressing the potential pitfalls of the use of this technology (Pu, Moyle, Jones, & Todorovic, 2019). In this special issue, Koerner and Shirai's work (2019) provides insights into Latinx family caregiver's reactions and unmet expectations regarding their sense of receiving limited help from their relatives when caring for an older family member. They offer that telehealth and other technology-enabled support programs may provide a culturally congruent means to meet Latinx caregiver's needs for psychological and emotional support. However, challenges remain and

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Psychometric Properties of a Spanish-Language Version of a Short-Form FAMCARE: Applications to Caregivers of Patients With Alzheimer’s Disease and Related Dementias

Cited by 4 publications

References 58 publications

Cross-Cultural Adaptation and Psychometric Testing of the Spanish Version of Iceland Health Care Practitioner Illness Beliefs Questionnaire

Cross-Cultural Adaptation and Psychometric Testing of the Spanish Version of Iceland Health Care Practitioner Illness Beliefs Questionnaire

Evaluation of measurement equivalence of the Family Satisfaction with the End-of-Life Care (FAMCARE): Tests of differential item functioning between Hispanic and non-Hispanic White caregivers

Family-Focused Care of Older Adults: Contemporary Issues and Challenges

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