Psychometric properties of the Breast Cancer and Lymphedema Symptom Experience Index: The Chinese version

Shi, Shuang; Lü, Qian; Fu, Mei R.; Ouyang, Qian; Liu, Chao; Lv, Jing; Wang, Yingxin

doi:10.1016/j.ejon.2015.05.002

Cited by 35 publications

(55 citation statements)

References 20 publications

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“…Without timely assessment and intervention in this early disease stage, lymphedema can progress into a chronic condition that no surgical or medical interventions at present can cure (12). Notably, the experience of lymphedema symptoms is an ongoing main debilitating complication that elicits distress and impacts the breast cancer survivors’ quality of life (QOL) (13–15). The experience of lymphedema symptoms exerts tremendous limitations on breast cancer survivors’ daily living, making activities of daily living a source of intense frustration and unwelcome (13–15).…”

Section: Introductionmentioning

confidence: 99%

“…Notably, the experience of lymphedema symptoms is an ongoing main debilitating complication that elicits distress and impacts the breast cancer survivors’ quality of life (QOL) (13–15). The experience of lymphedema symptoms exerts tremendous limitations on breast cancer survivors’ daily living, making activities of daily living a source of intense frustration and unwelcome (13–15). With the increased rate and length of survival from breast cancer, more and more survivors are facing life-long risk of developing lymphedema, thus, managing lymphedema symptoms is essentially needed for breast cancer survivors at risk for lymphedema.…”

Section: Introductionmentioning

confidence: 99%

“…In spite of the growing body of evidence linking the experience of lymphedema symptoms to the higher risk of lymphedema, more distress and poor QOL (13–15), patient-centered care related to lymphedema symptom management is often inadequately addressed in clinical research and practice. The lack of patient-centered care for lymphedema symptoms has been evidenced by more than 40% of breast cancer survivors never receiving information about lymphedema (17,18).…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

mHealth self-care interventions: managing symptoms following breast cancer treatment

Fu¹,

Axelrod²,

Guth³

et al. 2016

mHealth

Self Cite

121

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Background Many women suffer from daily distressing symptoms related to lymphedema following breast cancer treatment. Lymphedema, an abnormal accumulation of lymph fluid in the ipsilateral body area or upper limb, remains an ongoing major health problem affecting more than 40% of 3.1 million breast cancer survivors in the United States. Patient-centered care related to lymphedema symptom management is often inadequately addressed in clinical research and practice. mHealth plays a significant role in improving self-care, patient-clinician communication, and access to health information. The-Optimal-Lymph-Flow health IT system (TOLF) is a patient-centered, web-and-mobile-based educational and behavioral mHealth interventions focusing on safe, innovative, and pragmatic electronic assessment and self-care strategies for lymphedema symptom management. The purpose of this paper is to describe the development and test of TOLF system. Methods The development of TOLF was guided by the Model of Self-Care for Lymphedema Symptom Management and designed based on principles fostering accessibility, convenience, and efficiency of mHealth system to enhance training and motivating assessment of and self-care for lymphedema symptoms. Test of TOLF was accomplished by conducting a psychometric study to evaluate reliability, validity, and efficiency of the electronic version of Breast Cancer and Lymphedema Symptom Experience Index (BCLE-SEI), a usability testing and a pilot feasibility testing of mHealth self-care interventions. Results Findings from the psychometric study with 355 breast cancer survivors demonstrated high internal consistency of the electronic version of the instrument: a Cronbach’s alpha coefficient of 0.959 for the total scale, 0.919 for symptom occurrence, and 0.946 for symptom distress. Discriminant validity of the instrument was supported by a significant difference in symptom occurrence (z=−6.938, P<0.000), symptom distress (z=−5.894, P<0.000), and total scale (z=−6.547, P<0.000) between breast cancer survivors with lymphedema and those without it. Findings of usability testing showed that breast cancer survivors were very satisfied with the mHealth self-care interventions: 90% rated the system having no usability problems; 10% noted minor cosmetic problems: spelling errors or text font size. The majority of participants 96.6% strongly agreed that the system was easy to use and effective in helping to learn about lymphedema, symptoms and self-care strategies. Feasibility testing demonstrated that a 12-week one group intervention using TOLF had significantly positive effects on less pain (P=0.031), less soreness (P=0.021), less aching (P=0.024), less tenderness (P=0.039), fewer numbers of lymphedema symptoms (P=0.003), and improved symptom distress (P=0.000) at 12 weeks after intervention. Themes from the qualitative data included empowerment, high quality information, loving avatar simulation videos, easy accessibility, and user-friendliness. Conclusions TOLF system using the electronic version of the ...

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

mHealth self-care interventions: managing symptoms following breast cancer treatment

Fu¹,

Axelrod²,

Guth³

et al. 2016

mHealth

Self Cite

121

View full text Add to dashboard Cite

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“…The last question about the 'overall quality of life' item is scored through 0 to 10. Higher scores indicate a better overall QoL (8).…”

Section: Instrumentmentioning

confidence: 99%

“…This chronic and incurable condition causes physical and psychological disorders. Patients may develop symptoms such as heaviness, tightness, stiffness, impaired upper limb function and body image, which are all related with swelling (8). Apart from these symptoms, situations such as inability to find a proper outfit, to wear watch or ring trigger psychosocial problems that affect the quality of life (QoL) among breast cancer survivors.…”

Section: Introductionmentioning

confidence: 99%

Translation and Validation of the Turkish Version of Lymphedema Quality of Life Tool (LYMQOL) in Patients with Breast Cancer Related Lymphedema

Bakar¹,

Tuğral²,

Özdemir³

et al. 2017

Eur J Breast Health

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Objective: Breast cancer related lymphedema (BCRL) is a drastic situation that affects patients who have undergone breast cancer surgery. The impact of this condition on individuals' quality of life should be investigated in more detail to obtain better treatment results. Materials and Methods:In total, 65 patients with BCRL participated in this study. Nottingham Health Profile (NHP) was used to evaluate the validity of associated domains in Lymphedema Quality of Life Tool (LYMQoL). Both the LYMQoL and NHP were filled out by BCRL patients. To evaluate its test-retest reliability, the LYMQoL was subsequently performed seven days following its initial application. Measurement properties such as internal consistency, test-retest reliability, criterion validity and factor structure were tested. The internal consistency was assessed via Cronbach's alpha; test-retest reliability was assessed by the intra-class correlation coefficient (ICC). Results:Cronbach's alpha values ranged from 0.74 to 0.91 for the LYMQoL total and domain scores. Test-retest reliability was excellent (ICC=0.92-0.99). When the relation between LYMQoL and NHP was investigated, 'good' to 'very good' correlations were obtained (r=0.539-0.643, p<0.05) for all domains of LYMQoL. Exploratory factor analyses demonstrated a four-factor structure. Conclusion:Turkish version of LYMQoL is a valid and reliable measurement tool to evaluate the quality of life in patients with BCRL.

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Acceptance of disability, coping style, perceived social support and quality of life among patients with chronic lymphedema: a cross-sectional study

Huang

2022

Support Care Cancer

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Objective: To examine acceptance of disability, coping style, perceived social support, and quality of life and to explore the relationships between acceptance of disability, coping style, perceived social support and quality of life among Chinese patients with chronic lymphedema. Methods: Chronic lymphedema patients were recruited from ve tertiary hospitals between May and July 2020 in China. Recruited patients were assessed for quality of life (QOL), acceptance of disability (AOD), coping styles, perceived social support (PSS), and sociodemographic and disease-related factors. Multivariate linear regression models were conducted to examine the multivariate effect of AOD, coping style, PSS, and sociodemographic and disease-related factors on QOL.Results: A total of 163 chronic lymphedema patients were recruited. The mean score of QOL was 2.23 (SD=0.68). AOD, number of symptoms, acceptance-resignation, avoidance, degree of pain, PSS, and educational level were found to be signi cant predictors of QOL.Conclusion: Chinese patients with chronic lymphedema had moderate levels of QOL. The QOL and speci c domains of patients were affected by different factors. Special attention and targeted interventions should be given to improve patients' QOL.

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Psychometric properties of the Breast Cancer and Lymphedema Symptom Experience Index: The Chinese version

Cited by 35 publications

References 20 publications

mHealth self-care interventions: managing symptoms following breast cancer treatment

mHealth self-care interventions: managing symptoms following breast cancer treatment

Translation and Validation of the Turkish Version of Lymphedema Quality of Life Tool (LYMQOL) in Patients with Breast Cancer Related Lymphedema

Acceptance of disability, coping style, perceived social support and quality of life among patients with chronic lymphedema: a cross-sectional study

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