Psychometric properties of the Czech Integrated Palliative Outcome Scale: reliability and content validity analysis

Vlčková, Karolína; Höschlová, Eva; Chroustova, Eva; Loučka, Martin

doi:10.1186/s12904-020-00552-x

Cited by 8 publications

(7 citation statements)

References 26 publications

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“…Surprisingly, there was a strong correlation between the IPOS Emotional Symptoms subscale and FACT-G Physical Wellbeing subscale (English: r = − 0.668; Chinese: r = − 0.601). This might be because FACT-G Physical Wellbeing subscale includes items about the emotional effects of physical problems, such as “I am bothered by the side effects of treatment”, which is similar to items in the IPOS Emotional Symptoms subscale, such as “Have you been feeling anxious or worried about your illness or treatment?” The IPOS Communication and Practical Issues subscale had poor correlation with all FACT-G and ESAS-r scores, echoing findings in other IPOS validation studies [ 5 , 8 , 9 ]. The consistently poor correlation between this subscale and other PROMs suggests that the types of problems in this Communication and Practical Issues subscale are not measured by existing PROMs.…”

Section: Discussionsupporting

confidence: 76%

Validity and reliability of the English and translated Chinese versions of the Integrated Palliative care Outcome Scale (IPOS) in Singapore

Long

Cheung

et al. 2021

BMC Palliat Care

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Context Measurement of patient-centred outcomes enables clinicians to focus on patient and family priorities and enables quality of palliative care to be assessed. Objectives This study aimed to evaluate the validity and reliability of the English and translated Chinese versions of the Integrated Palliative care Outcome Scale (IPOS) among advanced cancer patients in Singapore. Methods IPOS was forward and backward translated from English into Chinese. Structural validity was assessed by confirmatory factor analysis; known-group validity by comparing inpatients and community patients; construct validity by correlating IPOS with Edmonton Symptom Assessment System-revised (ESAS-r) and Functional Assessment of Cancer Therapy–General (FACT-G); internal consistency by Cronbach’s alpha; inter-rater reliability between patient and staff responses; test-retest reliability of patient responses between two timepoints. Results One hundred eleven English-responding and 109 Chinese-responding patients participated. The three-factor structure (Physical Symptoms, Emotional Symptoms and Communication and Practical Issues) was confirmed with Comparative Fit Index and Tucker-Lewis-Index > 0.9 and Root Mean Square Error of Approximation < 0.08. Inpatients scored higher than outpatients as hypothesised. Construct validity (Pearson’s correlation coefficient, r ≥ |0.608|) was shown between the related subscales of IPOS and FACT-G and ESAS-r. Internal consistency was confirmed for total and subscale scores (Cronbach’s alpha≥0.84), except for the Communication and Practical Issues subscale (Cronbach’s alpha = 0.29–0.65). Inter-rater reliability (Intra-class correlation coefficient [ICC] ≤ 0.43) between patient and staff responses was insufficient. Test-retest reliability was confirmed with Intra-class correlation coefficient ICC = 0.80 (English) and 0.88 (Chinese) for IPOS Total. Conclusion IPOS in English and Chinese showed good validity, good internal consistency, and good test-retest reliability, except for the Communication and Practical Issues subscale. There was poor inter-rater reliability between patients and staff.

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Section: Discussionsupporting

confidence: 76%

Validity and reliability of the English and translated Chinese versions of the Integrated Palliative care Outcome Scale (IPOS) in Singapore

Long

Cheung

et al. 2021

BMC Palliat Care

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“…The lowest discriminant ability was found in the item vomiting because 91% of patients did not report this symptom. This is consistent with previous results and validation of the parent measure Czech IPOS on palliative patients [ 14 ]. Another study with patients from hospitals and home-based palliative services found similar results when vomiting, practical matters, and having enough information did not have a full range of responses [ 12 ].…”

Section: Discussionsupporting

confidence: 93%

“…The full parent-measure IPOS has already been translated, culturally adapted, and validated in the Czech Republic, but it is not suitable for renal patients, as the measurement tool was tested on palliative patients in hospices and hospitals, 81% of whom had cancer [ 14 ]. The use of the IPOS-r on renal patients has not yet been tested in the Czech Republic.…”

Section: Introductionmentioning

confidence: 99%

Translation, cultural adaptation, and validation of the Integrated Palliative Outcome Scale-renal (IPOS-r) to Czech

Křemenová

Vlčková

2022

BMC Palliat Care

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Background Patients with advanced kidney disease suffer from burdensome symptoms, which should be assessed by valid and reliable patient-reported outcome measures. This study aimed to provide a translation, cultural adaptation, and validation of the Czech version of the IPOS-r. Methods The IPOS-r was translated to Czech and culturally adapted using cognitive interviews. During the validation phase, patients and staff in dialysis centres and outpatient renal clinics completed the IPOS-r. Internal consistency was tested with Cronbach’s alpha, its reliability via intraclass correlation coefficient for total IPOS-r score, and weighted Kappa (for test-retest and interrater reliability of individual items). Convergent validity was tested with Spearman correlation to Kidney Disease Quality of Life Survey-Short Form 1.2 (KDQOL-SF 1.2). We assessed sensitivity to change using a distribution-based approach. Results Two sets of translators independently performed forward and backward translations of the IPOS-r. Ten patients and ten health care professionals participated in cognitive pre-testing. The sample size for validation included 88 patients (mean age 66 ± SD13.8; 58% men) who were treated with haemodialysis (70.5%), home haemodialysis (5.5%), peritoneal dialysis (3%), and conservative management (21%). Cronbach’s alpha was 0.72, and the intraclass correlation was 0.84 for test-retest reliability and 0.73 for interrater reliability. The IPOS-r correlated with KDQOL-SF 1.2 had a rho between 0.4–0.8 for most of the IPOS-r items, showing good convergent validity. The IPOS-r measure is feasible and takes 9 minutes to complete. Patients who reported a change in health status after 1 month demonstrated a total IPOS-r score change of eight points in both positive and negative directions. Conclusions The process of translation and cultural adaptation of the IPOS-r was successful, and the Czech IPOS-r measure is a valid and reliable tool. The Czech IPOS-r can be used to assess symptoms in patients with advanced chronic kidney disease. Trial registration GAUK [82121].

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“…Data were collected by experienced researchers who followed a structured interview protocol focused on participant's prognostic awareness and their quality of life (Integrated Palliative Outcome Scale [ 13 ]). The protocol included a question evaluating participants’ research experience (for complete questionnaire, see Additional file 1 ).…”

Section: Datasetmentioning

confidence: 99%

Views of patients with advanced disease and their relatives on participation in palliative care research

et al. 2021

Self Cite

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Background Patients with advanced disease may not be invited to participate in research based on the assumption that participation would be too burdensome for them. The aim of this study was to explore how patients with advanced disease and their relatives evaluate their experience with research participation. Method This study used data from two parts of a larger project. The first dataset was a cross-sectional questionnaire study focused on priorities at the end of life. The second dataset used a longitudinal design with structured interviews on prognostic awareness. In both studies, participants evaluated their experience on a 5-point Likert scale and specified their motivation in an open-ended question. Data were collected in 6 hospitals in the Czech Republic with patients with advanced disease and life expectancy less than 1 year and their relatives. Data were analysed using non-parametric tests and thematic analysis. Results First dataset consisted of 167 patients and 102 relatives, and second dataset consisted of 135 patients and 92 relatives (in total, 496 respondents). Results were similar in both datasets, with half of the sample (53%, 48%) scoring neutral, and over 30% of the sample identified their experience as interesting. The most significant factors associated with the evaluation were religiosity (p = 0.001) and the type of diagnosis (p = 0.04). Motivation for participation was to improve care, support research, express own opinion, opportunity to talk and trusting relationship. Conclusions Patients with advanced disease and relatives do not mind participating in palliative care research, and it can be even a positive experience for them.

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Psychometric properties of the Czech Integrated Palliative Outcome Scale: reliability and content validity analysis

Cited by 8 publications

References 26 publications

Validity and reliability of the English and translated Chinese versions of the Integrated Palliative care Outcome Scale (IPOS) in Singapore

Validity and reliability of the English and translated Chinese versions of the Integrated Palliative care Outcome Scale (IPOS) in Singapore

Translation, cultural adaptation, and validation of the Integrated Palliative Outcome Scale-renal (IPOS-r) to Czech

Views of patients with advanced disease and their relatives on participation in palliative care research

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