Psychometric properties of the ‘Self‐Management and Transition to Adulthood with R_x = Treatment Questionnaire’ in Chinese children and young people with chronic diseases

Abstract

Aims The aims of this work were to translate, culturally adapt and evaluate the reliability and validity of the Chinese version of the Self‐Management and Transition to Adulthood with Rx = Treatment Questionnaire. Background Children and young people with chronic diseases are expected to start self‐managing their diseases and have a smooth and coordinated transition from paediatric‐ to adult‐oriented care. Design This study involved the cultural adaptation of a questionnaire into Chinese and examined its factor structure. Methods This was a multicentre cross‐sectional study of children and young people/adolescents (8–18 years) who were diagnosed with chronic diseases in China from June 2016 to December 2018. Exploratory and confirmatory factor analyses were performed to analyse the questionnaire's validity. Results Four major factors were identified in the Chinese version of the questionnaire, and it had a good fit to the target population. The internal reliability was good. All factors were positively and strongly correlated with the total score. The t test revealed that the Medication Management score was not significantly different between two age groups (8–11 and 12–18 years), but the scores of the other factors and overall scale were lower in the 8–11 years age group. Conclusion The Chinese version of the questionnaire has good reliability and validity in the Chinese context.

Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

“…Ten studies focused on multiple chronic conditions such as kidney disease, systemic lupus erythematosus, inflammatory bowel disease, hypertension, renal transplant, and systemic lupus erythematosus ( 2 , 29 , 53 – 61 ). Four studies did not specify the chronic condition of their sample ( 57 , 62 – 64 ).…”

“… † The same scale is used by Karahroudy et al ( 48 ) (Author of included study); ‡The Chinese version is C-SMODA by Guo et al ( 47 ) (included study); §The Malay version is by Tan et al ( 51 ) (included studies); ¶ Translated in English; The same scale is also used by Sawicki et al ( 60 ) (included study); *The German version is TRAQ G.V 15 by Culen et al ( 55 ); # The same scale is also used by Shackleford et al ( 40 ) and Zhong et al ( 61 ) (included studies); °The same scale is used by Cohen et al ( 54 ) ◆ The Spanish version is C TRxANSITION Scale™ Version 3 by Cantú-Quintanilla et al ( 53 ) (included study); ◼ The Chinese version is by Sheng et al ( 2 ) and Ma et al ( 57 ) (included studies). …”

“…The 13 studies reported in Table 3 explored the psychometric characteristics—validity and reliability—of the 11 measurement tools included in this review. Content validity was tested for five instruments ( 46 , 49 , 56 , 57 , 65 ), following the COSMIN taxonomy ( 45 ). Construct validity was verified through Exploratory Factor Analysis (EFA) for six instruments ( 29 , 49 , 50 , 57 – 59 , 65 ), and through Confirmatory Factor Analysis (CFA) for two instruments ( 46 , 57 ).…”

Influence of transition readiness from paediatric to adult health care on quality of life in child–parent dyads with long‐term conditions

“…The exploratory factor analysis using principal component analysis with varimax rotation and confirmatory factor analysis employing structural equation modelling procedures indicated that the STARx Questionnaire had four dimensions in Chinese culture with 18 items using a 5‐point Likert format as per the original measure (Ma, 2020). The scale‐level content validity average scores (S‐CVI/Ave) of the expert content validity scores of the Chinese version of STARx Questionnaire was 0.96 and four factors were identified as Medication Management (Items 2, 5, 6, 8, 12 & 16), Health‐Care Engagement (Items 1, 3, 4, 7 & 9), Provider Communication (Items 13, 14, 15, 17 & 18) and Disease Knowledge (Items 10 & 11; Ma et al, 2020). Higher scores indicate better transition readiness.…”

“…Higher scores indicate better transition readiness. The overall Cronbach's α of the Chinese version of the STARx Questionnaire was 0.81 and the subscales were over 0.75 (Ma et al, 2020).…”