Psychopathology and relationship measures in children with inflammatory bowel disease and their parents

Szajnberg, Nathan; Krall,; Davis, Patricia M.; W, Treem; Hyams, Jeffrey S.

doi:10.1007/bf00707151

Cited by 50 publications

(36 citation statements)

References 23 publications

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“…However, the high number of E− relapses within the 3-day period preceding a scheduled visit to the outpatient clinic is surprising. Since Hans Selye reported a relationship between disease and stress in terms of the neuroendocrine axis [6], there have been numerous studies documenting the relationship between mental stress and the causes or worsening of diseases [7][8][9][10][11]. However, the relationship between mental stress and relapses of nephrotic syndrome has never been investigated, despite its obvious temporal nature.…”

Section: Discussionmentioning

confidence: 99%

Triggers of relapse in steroid-dependent and frequently relapsing nephrotic syndrome

et al. 2007

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An awareness of the triggers of relapse is critical for the control of steroid-dependent, frequently relapsing nephrotic syndrome (SDFRNS). We have investigated the triggers, usually described as 'episodes', to such relapses within a temporal context. Thirty-five patients with SDFRNS were analyzed retrospectively. A total of 442 relapses occurred in 2499 patient-months. The relapses were classified into two groups: those with episodes (E+) and those without episodes (E-). There were 135 E+ relapses and 296 E- relapses. The common cold was the most common episode (52%) of E+ relapse, followed by school events (18%). These E+ relapses occurred almost evenly throughout the 4 weeks between each follow-up visit. Conversely, 161 (55%) of the 296 E-z relapses occurred within the 3-day period preceding the patient's appointment (relapse-related hospital visit, RRHV). McNemar's test revealed that the concentration of relapses in this period was statistically significant (P < 0.00011). In addition, 15 out of 26 RRHV without additional therapy showed a spontaneous remission. From a chronological perspective, the common cold and school events as well as up-coming hospital visits may trigger relapses in SDFRNS patients.

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Section: Discussionmentioning

confidence: 99%

Triggers of relapse in steroid-dependent and frequently relapsing nephrotic syndrome

et al. 2007

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“…Previous research has found that the summative score from 24-items comprise a single factor, which was used in the following analysis (19). The IOF has been uses as a measure of the economic and social burden as well as personal strain and coping strategies used by the family of a child with a chronic illnesses (25)(26)(27).…”

Section: Impact On Family Scale (Iof)mentioning

confidence: 99%

Factors Influencing Parent Reports on Quality of Life for Children with Asthma

Annett

Bender

DuHamel³

et al. 2003

Journal of Asthma

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Children and parents often differ in their perceptions of a complex disease such as asthma. This ancillary study of children with mild to moderate asthma that was conducted at four of the eight clinics in the Childhood Asthma Management Program had two aims: (1) to relate quality of life to asthma symptoms, sociodemographic characteristics, child psychosocial adjustment and family social support and (2) to relate agreement between child- and parent-reported quality of life to child age. For this study participants completed the Caregiver's Pediatric Asthma Quality of Life Questionnaire (C-PAQLQ), Pediatric Asthma Quality of Life Questionnaire, and a battery of psychosocial health outcomes questionnaires at the 12-month follow-up. The average asthma symptom score from diary cards for the 2 weeks before the visit was also collected. Parent-reported family burden was the strongest correlate of C-PAQLQ scores. Although the average asthma symptom score was not associated with parent-reported quality of life, the study had low power to detect a relationship because of the few episodes of asthma reported during the assessment period. The correlation between child and parent reported quality of life improved with increasing age of the child, suggesting increased child-parent agreement about quality of life outcomes was associated with increasing age of the child. Family characteristics, such as degree of cohesion among family members, are not associated with quality of life ratings.

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“…While prior studies suggest that mothers of youth with IBD have a low incidence of psychopathology [9,10], they may still experience added stress or burden related to their child's health. Although, measures of psychiatric symptoms or psychopathology are likely insensitive to these issues, measures of HRQoL are designed to assess these domains.…”

Section: Introductionmentioning

confidence: 97%

Maternal, paternal, and family health-related quality of life in the context of pediatric inflammatory bowel disease

2011

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Psychopathology and relationship measures in children with inflammatory bowel disease and their parents

Cited by 50 publications

References 23 publications

Triggers of relapse in steroid-dependent and frequently relapsing nephrotic syndrome

Triggers of relapse in steroid-dependent and frequently relapsing nephrotic syndrome

Factors Influencing Parent Reports on Quality of Life for Children with Asthma

Maternal, paternal, and family health-related quality of life in the context of pediatric inflammatory bowel disease

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