Public attitudes to death and dying in the UK: a review of published literature

Cox, Karen; Bird, Lydia; Arthur, Antony; Kennedy, Sheila Suess; Pollock, Kristian; Kumar, Arun; Stanton, Wendy; Seymour, Jane

doi:10.1136/bmjspcare-2012-000203

Cited by 50 publications

(53 citation statements)

References 23 publications

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“…4 The policy is not based on evidence about patients' and the public's understanding and experience of ACP, their preferences for how and when this should be discussed, or their attitudes to death and dying. 175 This study supports findings from previous research that ACP remains uncommon, is often limited to documentation of a few key decisions about CPR and place of death, is reported to be challenging by many health professionals, is not welcomed by a substantial number of patients and tends to be postponed until death is clearly imminent. [5][6][7][8][9][10][11][12][13][14] The current model of ACP presupposes a high degree of prognostic accuracy in identifying patients entering the last year of life that is not achievable in practice.…”

Section: Introductionsupporting

confidence: 90%

Care and communication between health professionals and patients affected by severe or chronic illness in community care settings: a qualitative study of care at the end of life

Pollock

Wilson

2015

Health Serv Deliv Res

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(2015) Care and communication between health professionals and patients affected by severe or chronic illness in community settings: a qualitative study of care at the end of life. Health Services Delivery and Research, 3 (31). ISSN 2050-4349 Access from the University of Nottingham repository: http://eprints.nottingham.ac.uk/35464/2/FullReport-hsdr03310.pdf Copyright and reuse:The Nottingham ePrints service makes this work by researchers of the University of Nottingham available open access under the following conditions. This article is made available under the Creative Commons Attribution Non-commercial licence and may be reused according to the conditions of the licence. For more details see: http://creativecommons.org/licenses/by-nc/2.5/ A note on versions:The version presented here may differ from the published version or from the version of record. If you wish to cite this item you are advised to consult the publisher's version. Please see the repository url above for details on accessing the published version and note that access may require a subscription.For more information, please contact eprints@nottingham.ac.uk This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/). HEALTH SERVICES AND DELIVERY RESEARCHEditorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: http://www.nets.nihr.ac.uk/programmes/hsdr This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its preceding programmes as project number 10/2002/23. The contractual start date was in April 2012. The final report began...

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Section: Introductionsupporting

confidence: 90%

Care and communication between health professionals and patients affected by severe or chronic illness in community care settings: a qualitative study of care at the end of life

Pollock

Wilson

2015

Health Serv Deliv Res

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“…We know little about public understanding or attitudes to death and dying: how this is envisaged, or the effect of complex contextual factors in influencing preferences. 19 However, there is evidence that people often hope for a quick and unexpected-and certainly a pain free-death. 13 20-22 What matters most to patients?…”

Section: Is Place Of Death a Public Priority?mentioning

confidence: 99%

Is home always the best and preferred place of death?

Pollock

2015

BMJ

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142

124

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“…While there is recognition that this is an important area of action to improve the end-of-life experiences for people and their families by policymakers and palliative care services,1 public attitudes about these issues are complex 2. For example, in England, the End of Life Care Strategy3 identified a need to raise the profile of end-of-life care and to change attitudes to death and dying in society.…”

Section: Introductionmentioning

confidence: 99%

End-of-life conversations and care: an asset-based model for community engagement

Matthiesen¹,

Froggatt

Owen³

et al. 2014

BMJ Support Palliat Care

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A facilitated, asset-based approach of community engagement for end-of-life conversations and care can catalyse community-led awareness initiatives. This occurs through the involvement of community and local health and social care organisations as co-creators of this change across multiple sectors in a sustainable way. This approach provides a framework for other communities seeking to engage with public awareness in end-of-life issues.

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Public attitudes to death and dying in the UK: a review of published literature

Cited by 50 publications

References 23 publications

Care and communication between health professionals and patients affected by severe or chronic illness in community care settings: a qualitative study of care at the end of life

Care and communication between health professionals and patients affected by severe or chronic illness in community care settings: a qualitative study of care at the end of life

Is home always the best and preferred place of death?

End-of-life conversations and care: an asset-based model for community engagement

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