Qualidade De Vida De Pessoas Afetadas Pela Hanseníase Inseridas Em Grupos De Apoio Ao Autocuidado

D'Azevedo, Stephanie Steremberg Pires; Santos, Danielle Christine Moura dos; Alves, Maria Geórgia Torres; Souza, Niedja Madelon Nascimento; Arruda, Gustavo Aires de; Lima, Marize Conceição Ventin

doi:10.5380/ce.v24i0.64266

Cited by 7 publications

(7 citation statements)

References 13 publications

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“…(18) A study carried out with patients from leprosy self-care support groups in the city of Recife (PE) and its metropolitan region found lower QoL scores for the environment and physical domains, both with the same mean. (19) However, previous studies observed the physical domain showed the lowest mean QoL scores in populations of individuals with leprosy. (16,20) Despite the fact the WHOQOL-BREF allows comparing its results among different populations, one must take into consideration the notion of QoL suffers personal influences related to the individual's ability to deal with certain situations.…”

Section: ❚ Discussionmentioning

confidence: 93%

Factors associated to quality of life in patients with leprosy

Pinto

Nicácio

Oliveira

et al. 2021

Einstein (São Paulo)

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Objective To evaluate quality of life and associated factors in patients with leprosy. Methods A cross-sectional study with 63 people diagnosed as leprosy, seen at a reference service for the disease in the southeastern region of Mato Grosso, Brazil. The questionnaire World Health Organization Quality of Life Bref was used to evaluate quality of life. Simple and multiple linear regressions evaluated the association between sociodemographic variables and quality of life domains. Results The highest mean of quality of life was observed in the psychological domain (16.28±2.30), and the lowest in the environmental domain (13.86±2.21). Females, individuals with no partners, and people who owned their own house had the lowest quality of life means within the psychological domain. People who did not receive visits by Community Health Workers had the lowest means in quality of life within the environmental domain. Multivariate analysis revealed that the best quality of life was associated to self-reported white skin color within the environmental domain, and the worst quality of life was associated to less schooling within the physical domain. Conclusion This study showed the influence of sociodemographic factors on the quality of life of patients with leprosy, and indicated the need for comprehensive health care, considering the social determinants of health.

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Section: ❚ Discussionmentioning

confidence: 93%

Factors associated to quality of life in patients with leprosy

Pinto

Nicácio

Oliveira

et al. 2021

Einstein (São Paulo)

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“…Acerca da faixa etária e do status de trabalho, estudos sobre a situação epidemiológica da hanseníase relataram que as pessoas afetadas pela doença estão na faixa etária economicamente ativa (12,(15)(16) . Pesquisas realizadas em Alagoas (23,7%) e no Pará (57,6%) corroboram a caracterização socioeconômica encontrada neste estudo (14)(15) .…”

Section: Discussionunclassified

“…Apesar do contexto histórico de discriminação, estigma, isolamento e falta de informação, em que as pessoas afetadas pela doença tendem a ser excluídas e desabilitadas de suas relações sociais e de suas atividades econômicas (7)(8) , os participantes não perceberam dificuldades no domínio das Relações Interpessoais. Fazer parte de um grupo de apoio ao autocuidado, espaço de compartilhamento de experiências e dificuldades, pode influenciar a percepção deles em relação a amizades e ao relacionamento entre pessoas que apresentam os mesmos desafios (16) .…”

Section: Discussionunclassified

Profile of functionality of persons affected by leprosy

et al. 2021

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Objective: to analyze the functioning and disability profile of persons affected by leprosy. Methods: a quantitative study, carried out with 43 people in six reference units with support groups for self-care in leprosy. A sociodemographic and clinical questionnaire and the World Health Organization Disability Assessment Schedule instrument were used. The analyses used descriptive statistics, the chi-square test of adjustment adequacy for categorical variables, binomial and Mann-Whitney. Results: the median (interquartile range) in the Participation, Mobility, Cognition and Life Activities domains were 37.5 (20.8-54.2), 25.0 (6.3-56.3), 20.0 (0.0-40.0) and 10.0 (0.0-40.0), respectively, representing the impact of the disease in these domains. Conclusion: the functionality scores were higher in the Participation and Mobility domains, reflecting physical disabilities, discrimination and stigma in the lives of people affected by leprosy.

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“…Leprosy compromises mainly the physical component of QoL (2,(6)(7)10,(15)(16)(17)(18)(19)(20)(22)(23)34,44,(48)(49)52,(56)(57)(58)(60)(61)(63)(64)(65)84) .…”

Section: Main Findingsmentioning

confidence: 99%

Leprosy patients quality of life: a scoping review

Barcelos

Sousa

Almeida

et al. 2021

Rev. esc. enferm. USP

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Objective: To explore the scientific evidence regarding the leprosy patients quality of life. Method: Scoping review according to the Joanna Briggs Institute methodology, with articles indexed in PubMed, Cochrane, LILACS, Embase, CINAHL, Scopus, Web of Science, PsyINFO, INFOLEP, and Google Scholar databases, published in full in Portuguese, English, or Spanish. Results: Seventy-four studies were identified, with 71 of quantitative approach and 3 with a mixed method. There was a predominance of studies published in Brazil (58.1%), with an adult population, (97.3%) and recruited in reference centers for the treatment of leprosy (52.7%). There was greater use of the WHOQOL-bref (50%) and SF-36 (18.9%) instruments to assess quality of life. The study showed that the greatest impairment in quality of life was related to the delay in the diagnosis of the disease, to leprosy reactions, physical disabilities, neuropathic pain, and stigma. Conclusion: Most studies were developed in endemic countries, with adults, and based on observational studies, and the worst scores obtained were associated with physical domain impairment.

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Qualidade De Vida De Pessoas Afetadas Pela Hanseníase Inseridas Em Grupos De Apoio Ao Autocuidado

Cited by 7 publications

References 13 publications

Factors associated to quality of life in patients with leprosy

Factors associated to quality of life in patients with leprosy

Profile of functionality of persons affected by leprosy

Leprosy patients quality of life: a scoping review

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